Alpha-gal Alliance Action Fund

Nonprofit profile at a glance

EIN
991424980
IRS 990-EZ coverage
2024–2025
Forms available
Form 990-EZ 2025
Location
Washington, DC, USA
Phone
2022535878
Rating
93
Verdict
STRONG
Rating confidence
Moderate

Reported finances

Revenue
$56,430
Expenses
$120,172
Assets
$12,354
Liabilities
$0

Source: IRS Form 990-EZ. Selected filing: tax year 2025. Amounts in USD.

Leadership & pay

6 people listed

Executive titles in this filing

  • SHARON FORSYTH (PRESIDENT)

People named in this filing

  • SHARON FORSYTH (PRESIDENT)
  • ANDY BIRKEY (SECRETARY)
  • JULIE SIBBING (BOARD MEMBER UNTIL AUGUST)

Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.

Source: IRS Form 990-EZ. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

Our mission is to advance policy solutions that improve the lives of people with alpha-gal syndrome.

What it reported doing in 2025

Worked with a member of congress to write, introduce, and build support for the alpha-gal allergen inclusion act, a bill that would add alpha-gal to the list of major food allergies. Briefed congressional staff, including the gop doctors caucus, on alpha-gal syndrome, the importance of funding for ags community priorities, and the need for cosponsorship of the alpha-gal allergen inclusion act. Worked with congressional staff to add language in support of alpha-gal syndrome related priorities to the house and senate l-hhs appropriations bills.

Operating model

Revenue model
Donor-supported. 100% of the money available for current operations came from contributions and gifts.
Distribution model
Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.

The verdict

STRONG - A large share of available resources goes toward mission work and the filed numbers largely add up. Expenses are high relative to revenue and revenue has declined or grown slowly.

Rating breakdown

  • Financial Efficiency: 100
  • Transparency & Controls: 100
  • Sustainability: 21
  • Growth: 40

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 100%; rating input score 100
  • Program expense ratio: 99.9%; rating input score 100

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 51st percentile among comparable filings
  • Major donor itemization: Yes; rating input score 100

Sustainability

  • Operating margin: -113%; rating input score 7; 7th percentile among comparable filings
  • Total-asset coverage ratio: 0.1; rating input score 13; 13th percentile among comparable filings
  • Liabilities to assets ratio: 0; rating input score 66; 66th percentile among comparable filings
  • Officer compensation ratio: 0%; rating input score 56; 56th percentile among comparable filings

Growth

  • Program expense growth: 115.3% per year; rating input score 100; 98th percentile among comparable filings
  • Revenue growth: -81.2% per year; rating input score 0; 3rd percentile among comparable filings
  • Asset growth: -144.1% per year; rating input score 0; 1st percentile among comparable filings

Details

  • Where the money goes: 100% of revenue deployed · 99.9% of spending went to programs
  • Governance: Filed governance answers
  • Accomplishments: 1 filed program accomplishment · $120K in reported program spending
  • Leadership: top reported pay $0 · 6 people listed
  • Consistency: 8 of 8 current checks pass
  • Schedules: 2 filed schedules
  • Filing history: 2 filing years from 2024 to 2025
  • Contacts: How to reach this organization
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • High — Sustainability: Operating margin scored 7/100.
  • High — Growth: Revenue growth scored 0/100.
  • High — Sustainability: Total-asset coverage ratio scored 13/100.
  • High — Growth: Asset growth scored 0/100.
  • Review — Sustainability: Officer compensation ratio scored 56/100.