Alpha 1 Antitrypsin Deficiency Association

Nonprofit profile at a glance

Source: IRS Form 990. Selected filing: tax year 2013. Amounts in USD.

11 people listed

Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.

Source: IRS Form 990. Selected filing: tax year 2013. Names and roles reflect this filing, not necessarily current officeholders.

On july 1, 2014, the association merged with alpha-1 foundation (the "foundation") and the foundation remained as the surviving legal entity.

The merger occured on july 1, 2014. There was no program activity for period reflected on this form 990.

Revenue model: No positive adjusted resources. The filing reports no positive adjusted operating resources.
Distribution model: No current program activity. The filing reports no program spending for the current year.

- The available evidence is not sufficient to produce an overall rating for this filing. This is not a warning sign.

Consistency checks: 84.6%; rating input score 85; 3rd percentile among comparable filings
Pay-setting controls: Limited
Foreign activity oversight: Limited
Grant itemization coverage: Limited
Major donor itemization: Limited
Related-party transparency: Limited

Independent voting board: 100%; rating input score 100; 64th percentile among comparable filings
Governance controls: 5 of 7 controls in place; rating input score 71
- Conflict-of-interest policy: Pass
- Whistleblower policy: Pass
- Document-retention policy: Pass
- CEO compensation review process: NotApplicable
- Other executive compensation review process: NotApplicable
- Form 990 shared with the board: Pass
- Board meeting minutes documented: Pass
- Audit committee oversight: Missing
- Independent financial-statement audit: Fail

Program expense growth: Limited
Revenue growth: -36.6% per year; rating input score 0; 20th percentile among comparable filings
Asset growth: -45% per year; rating input score 0; 7th percentile among comparable filings

Where the money goes: Financial trends and filed revenue, expense, asset, and liability detail
Governance: 10 of 10 board members independent · 5 of 7 filing controls reported
Programs: 1 filed program accomplishment
Leadership: top reported pay $0 · 11 people listed
Consistency: 9 of 11 current checks pass · 2 findings to review
Schedules: 3 filed schedules
Filing history: 4 filing years from 2010 to 2013
Contacts: How to reach this organization
Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
People: Everyone the filings name, and which of them the filings identify by more than a name.

Signals prioritize questions for review. They are not findings of misconduct.

High — Growth: Revenue growth scored 0/100.
Moderate — Transparency & Controls: Schedule A contributions reconciliation did not reconcile in the filed values.
Moderate — Transparency & Controls: Series filing activity did not reconcile in the filed values.
High — Growth: Asset growth scored 0/100.
Review — Accountability: Governance controls: Independent financial-statement audit not reported.