Alliance to Solve PANS and Immune Related Encephalopathies Inc ASPIRE

Nonprofit profile at a glance

EIN
842005940
IRS 990-EZ coverage
2019–2023
Forms available
Form 990-EZ 2023
Location
Atlanta, GA, USA
Rating
74
Verdict
SUPPORTED
Rating confidence
Moderate
Sector
Birth Defects, Genetic Diseases Research

Official website

Reported finances

Revenue
$20,068
Expenses
$11,476
Assets
$175,424
Liabilities
$0

Source: IRS Form 990-EZ. Selected filing: tax year 2023. Amounts in USD.

Leadership & pay

5 people listed

Executive titles in this filing

  • Gabriella True (President)
  • Michael McCartney (Vice President)

People named in this filing

  • Gabriella True (President)
  • Michael McCartney (Vice President)
  • Jessica Gowen (Secretary)

Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.

Source: IRS Form 990-EZ. Selected filing: tax year 2023. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

We aspire to improve the lives of children and adults affected by PANS PANDAS and other immune-related encephalopathies. We are experienced leaders in the PANS PANDAS advocacy community who together believe collaboration and empowered action are the keys to the world we seek: one where no one suffers through PANS and PANDAS and immune-related encephalopathies without access to a knowledgeable provider insurance coverage for standard-of-care treatments or the support that comes with public awareness.

What it reported doing in 2023

Ongoing development of and engagement of a robust professional advisory board in order to better serve community

Operating model

Revenue model
Donor-supported. 100% of the money available for current operations came from contributions and gifts.
Distribution model
Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.

The verdict

SUPPORTED - A large share of total spending goes to programs and the filed numbers largely add up. A relatively small share of available resources goes toward mission work and program spending has declined or grown slowly.

Rating breakdown

  • Financial Efficiency: 73
  • Transparency & Controls: 82
  • Sustainability: 84
  • Growth: 20

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 57.2%; rating input score 57
  • Program expense ratio: 100%; rating input score 100

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 51st percentile among comparable filings
  • Major donor itemization: Limited

Sustainability

  • Operating margin: 42.8%; rating input score 88; 88th percentile among comparable filings
  • Total-asset coverage ratio: 15.29; rating input score 94; 94th percentile among comparable filings
  • Liabilities to assets ratio: 0; rating input score 69; 69th percentile among comparable filings
  • Officer compensation ratio: 0%; rating input score 56; 56th percentile among comparable filings

Growth

  • Program expense growth: -22.1% per year; rating input score 0; 17th percentile among comparable filings
  • Revenue growth: -24.2% per year; rating input score 0; 13th percentile among comparable filings
  • Asset growth: 36.2% per year; rating input score 100; 93rd percentile among comparable filings

Details

  • Where the money goes: 57.2% of revenue deployed · 100% of spending went to programs
  • Governance: Filed governance answers
  • Accomplishments: 3 filed program accomplishments · $11K in reported program spending
  • Leadership: top reported pay $0 · 5 people listed
  • Consistency: 8 of 8 current checks pass
  • Schedules: 2 filed schedules
  • Filing history: 4 filing years from 2019 to 2023
  • Contacts: How to reach this organization
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • Review — Financial Efficiency: Mission deployment rate scored 57/100.
  • High — Growth: Program expense growth scored 0/100.
  • High — Growth: Revenue growth scored 0/100.
  • Review — Sustainability: Officer compensation ratio scored 56/100.