Alliance for Proton Therapy Access

Nonprofit profile at a glance

EIN
814615231
IRS 990 coverage
2019–2022
Forms available
Form 990 2022
Location
Chevy Chase, MD, USA
Phone
2029998923
Rating confidence
Limited

Official website

Reported finances

Revenue
$0
Expenses
$21,614
Assets
$0
Liabilities
$0

Source: IRS Form 990. Selected filing: tax year 2022. Amounts in USD.

Leadership & pay

7 people listed

Executive titles in this filing

  • DANIEL SMITH (EXECUTIVE DIRECTOR)

People named in this filing

  • KOLLEEN KENNEDY (BOARD CHAIR)
  • STEVEN J FRANK (DIRECTOR)
  • JEROEN CAMMERAAT (DIRECTOR)

Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.

Source: IRS Form 990. Selected filing: tax year 2022. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

The alliance for proton therapy access's mission is to attain a fast, fair, and transparent insurance review process for cancer patients in need of proton therapy. We support patients, families, caregivers to speak out and influence decision-makers through grassroots actions, earned media and social media.

What it reported doing in 2022

Continued highlighting an advocacy report created in 2018 that highlights the cost to patients of the broken insurance review and approval process and highlighting patient's stories. Worked with patient advocates and caregivers to generate op-eds and news stories about how proton therapy benefited them and the struggles they and others have accessing the cancer treatment.

Operating model

Revenue model
No positive adjusted resources. The filing reports no positive adjusted operating resources.
Distribution model
Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.

The verdict

- The available evidence is not sufficient to produce an overall rating for this filing. This is not a warning sign.

Rating breakdown

  • Financial Efficiency: 56
  • Transparency & Controls: 90
  • Accountability: 76
  • Sustainability: 8
  • Growth: 0

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: Limited
  • Program expense ratio: 74.7%; rating input score 75
  • Fundraising efficiency: Limited

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
  • Pay-setting controls: Limited
  • Foreign activity oversight: Limited
  • Grant itemization coverage: Limited
  • Major donor itemization: Limited
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 64th percentile among comparable filings
  • Governance controls: 3 of 7 controls in place; rating input score 43
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Fail
    • Document-retention policy: Fail
    • CEO compensation review process: NotApplicable
    • Other executive compensation review process: NotApplicable
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Missing
    • Independent financial-statement audit: Fail

Sustainability

  • Operating margin: Limited
  • Total-asset coverage ratio: 0; rating input score 2; 2nd percentile among comparable filings
  • Liabilities to assets ratio: Limited
  • Officer compensation ratio: 0%; rating input score 61; 61st percentile among comparable filings

Growth

  • Program expense growth: -54.7% per year; rating input score 0; 5th percentile among comparable filings
  • Revenue growth: -56.8% per year; rating input score 0; 8th percentile among comparable filings
  • Asset growth: -14.2% per year; rating input score 0; 10th percentile among comparable filings

Details

  • Where the money goes: 74.7% of spending went to programs
  • Governance: 7 of 7 board members independent · 3 of 7 filing controls reported
  • Programs: 1 filed program accomplishment · $16K in reported program spending
  • Leadership: top reported pay $0 · 7 people listed
  • Consistency: 14 of 14 current checks pass
  • Schedules: 3 filed schedules
  • Filing history: 4 filing years from 2019 to 2022
  • Contacts: How to reach this organization
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • Moderate — Accountability: Governance controls: 3 of 6 not reported.
  • High — Sustainability: Total-asset coverage ratio scored 2/100.
  • High — Growth: Program expense growth scored 0/100.
  • High — Growth: Revenue growth scored 0/100.
  • High — Growth: Asset growth scored 0/100.