Ald Connect Inc
Nonprofit profile at a glance
- EIN
- 463749890
- IRS 990 coverage
- 2014–2025
- Forms available
- Form 990 2025
- Location
- Middleton, MA, USA
- Phone
- 8335253266
- Rating
- 77
- Verdict
- SUPPORTED
- Rating confidence
- Moderate
- Sector
- Specifically Named Diseases
Reported finances
- Revenue
- $982,449
- Expenses
- $780,119
- Assets
- $1,505,709
- Liabilities
- $30,836
Source: IRS Form 990. Selected filing: tax year 2025. Amounts in USD.
Leadership & pay
14 people listed
Executive titles in this filing
- FLORIAN EICHLER MD (PRESIDENT)
- KELLY MIETTUNEN (EXECUTIVE DIRECTOR)
Highest reported compensation
- KELLY MIETTUNEN (EXECUTIVE DIRECTOR): $128,606 total reported compensation
- KATHLEEN O'SULLIVAN-FORTIN (DIRECTOR): $17,538 total reported compensation
Source: IRS Form 990. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
To improve health outcomes for individuals with x-linked adrenoleukodystrophy (ald) by raising awareness, empowering patients, and accelerating the translation
What it reported doing in 2025
Ald connect improves health outcomes for individuals and families affected by adrenoleukodystrophy (ald) through community engagement, research, education, patient support, and advocacy. The organization provides educational programs, webinars, community calls, peer mentoring, financial assistance, and patient resources; supports research through grantmaking, the emerging investigator program, and the collaborative research network; convenes patients, caregivers, physicians, researchers, and industry stakeholders through the annual meeting and patient learning academy and other collaborative initiatives; and advances awareness, advocacy, and data-driven projects to improve diagnosis, care, treatment, and quality of life for individuals affected by ald.
Operating model
- Revenue model
- Donor-supported. 98% of the money available for current operations came from contributions and gifts.
- Distribution model
- Hybrid. The nonprofit split its reported program spending across 64% for direct work, and 36% for grants.
The verdict
SUPPORTED - A large share of available resources goes toward mission work and the filed numbers largely add up. The filing reports few safeguards for money sent abroad and some filing-based governance responses are negative or unanswered.
Rating breakdown
- Financial Efficiency: 65
- Transparency & Controls: 83
- Accountability: 90
- Sustainability: 61
- Growth: 100
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 60.2%; rating input score 60
- Program expense ratio: 74.8%; rating input score 75
- Fundraising efficiency: $22.74 raised per $1 spent on fundraising; rating input score 59; 59th percentile among comparable filings
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
- Pay-setting controls: Limited
- Foreign activity oversight: 3 of 8 controls in place; rating input score 38
- Claims monitoring procedures: Pass
- Requires narrative reports: Pass
- Conducts field audits: Fail
- May suspend future funding: Fail
- Requires financial reports: Pass
- Conducts site visits: Fail
- Requires grant agreements: Fail
- May require repayment: Fail
- Grant itemization coverage: 100%; rating input score 100; 78th percentile among comparable filings
- Major donor itemization: Yes; rating input score 100
- Related-party transparency: Limited
Accountability
- Independent voting board: 100%; rating input score 100; 64th percentile among comparable filings
- Governance controls: 6 of 8 controls in place; rating input score 75
- Conflict-of-interest policy: Pass
- Whistleblower policy: Pass
- Document-retention policy: Pass
- CEO compensation review process: Fail
- Other executive compensation review process: NotApplicable
- Form 990 shared with the board: Pass
- Board meeting minutes documented: Pass
- Audit committee oversight: Fail
- Independent financial-statement audit: Pass
Sustainability
- Operating margin: 20.6%; rating input score 73; 73rd percentile among comparable filings
- Total-asset coverage ratio: 1.93; rating input score 63; 63rd percentile among comparable filings
- Liabilities to assets ratio: 0.02; rating input score 53; 53rd percentile among comparable filings
- Officer compensation ratio: 18.7%; rating input score 18; 18th percentile among comparable filings
Growth
- Program expense growth: 5.5% per year; rating input score 100; 39th percentile among comparable filings
- Revenue growth: 9.6% per year; rating input score 100; 59th percentile among comparable filings
- Asset growth: 18.4% per year; rating input score 100; 76th percentile among comparable filings
Details
- Where the money goes: 60.2% of revenue deployed · 74.8% of spending went to programs
- Governance: 14 of 14 board members independent · 6 of 8 filing controls reported
- Programs: 1 filed program accomplishment · $583K in reported program spending
- Leadership: top reported pay $129K · 14 people listed
- Consistency: 33 of 33 current checks pass
- Schedules: 6 filed schedules · includes major donors, foreign activity, and grants
- Filing history: 12 filing years from 2014 to 2025
- Contacts: How to reach this organization
- Money network: 3 filed money-flow records
- Related organizations: 1 filed related-organization link
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- Moderate — Transparency & Controls: Foreign activity oversight: 5 of 8 not reported.
- Review — Accountability: Governance controls: 2 of 8 not reported.
- Review — Financial Efficiency: Fundraising efficiency scored 59/100.
- High — Sustainability: Officer compensation ratio scored 18/100.
- Review — Sustainability: Liabilities to assets ratio scored 53/100.