Afe Foundation

What it reported doing in 2024

The AFE Foundation remains steadfast in its mission to identify the underlying causes of amniotic fluid embolism (AFE) and to develop effective diagnostic tools and targeted treatments that can save the lives of women and infants affected by this rare and often fatal condition. Our work extends beyond researchwe are equally committed to providing critical education and support to healthcare professionals and families through robust, evidence-based programs and resources.In the past year, weve expanded our reach and deepened our impact: Launched a clinician-focused educational course, Amniotic Fluid Embolism: A Practical Approach Released a new, user-friendly website Published several new research papers and expert opinion pieces Delivered 25 lectures at conferences and hospitals across the countryThese efforts build on our internationally recognized research program and our educational initiatives, which continue to be highly sought after by providers across disciplines in labor and delivery. Weve also developed a global network of support for those affected by AFE, offering compassion, guidance, and community to help families navigate their recovery journey.The AFE Foundation proudly underwrites the Amniotic Fluid Embolism Registry and Biorepository in collaboration with leading researchers at the University of Texas Health Science Center in Houston. This initiative enables in-depth study of both individual and aggregate cases. The biorepository houses critical specimens used in ongoing proteomic and genomic research. Findings from this work have led to multiple publications in respected medical journals, particularly in the fields of obstetrics, gynecology, and critical care.As a leading patient advocacy organization, the AFE Foundation maintains an influential presence in maternal health and safety. We hold positions on several national boards and initiatives, including: CDCs Partnership for Reducing Maternal Mortality and Morbidity California Maternal Quality Care Collaborative (CMQCC) Institute for Perinatal Quality Improvement Obstetric Life Support Study Californias Pregnancy-Associated Mortality Review MoMMAs Voices, a national coalition focused on maternal healthThrough our educational toolsincluding online courses, simulation toolkits, webinars, symposiums, and publicationswe continue to empower healthcare providers with the skills and knowledge needed to improve outcomes for patients experiencing AFE.In addition, we remain a beacon of support for affected families. Approximately 2,300 families each year receive direct assistance from the Foundation, helping them manage the physical, emotional, and financial challenges that often follow an AFE event.Today, the AFE Foundation continues to be the leading source of accurate, up-to-date information for patients, families, and healthcare professionals worldwide.For more details about our programs and services, please visit: www.afesupport.org.

Financial Efficiency

• Mission deployment rate: 68%; rating input score 68
• Program expense ratio: 84%; rating input score 84
• Fundraising efficiency: $14.05 raised per $1 spent on fundraising; rating input score 48; 48th percentile among comparable filings

Transparency & Controls

• Consistency checks: 100%; rating input score 100; 64th percentile among comparable filings
• Pay-setting controls: Limited
• Foreign activity oversight: Limited
• Grant itemization coverage: Limited
• Major donor itemization: Yes; rating input score 100
• Related-party transparency: Limited

Accountability

• Independent voting board: 88.9%; rating input score 89; 24th percentile among comparable filings
• Governance controls: 7 of 9 controls in place; rating input score 78
  • Conflict-of-interest policy: Pass
  • Whistleblower policy: Pass
  • Document-retention policy: Pass
  • CEO compensation review process: Pass
  • Other executive compensation review process: Pass
  • Form 990 shared with the board: Pass
  • Board meeting minutes documented: Pass
  • Audit committee oversight: Missing
  • Independent financial-statement audit: Fail

Sustainability

• Operating margin: 24.8%; rating input score 78; 78th percentile among comparable filings
• Total-asset coverage ratio: 4.03; rating input score 75; 75th percentile among comparable filings
• Liabilities to assets ratio: 0.01; rating input score 50; 50th percentile among comparable filings
• Officer compensation ratio: 45%; rating input score 5; 5th percentile among comparable filings

Growth

• Program expense growth: 18.7% per year; rating input score 100; 83rd percentile among comparable filings
• Revenue growth: 13.6% per year; rating input score 100; 80th percentile among comparable filings
• Asset growth: 19.6% per year; rating input score 100; 84th percentile among comparable filings