Adult Congenital Heart Association

Nonprofit profile at a glance

EIN
043447959
IRS 990 coverage
2015–2025
Forms available
Form 990 2025
Location
Columbia, MD, USA
Phone
8889212242
Rating
74
Verdict
SUPPORTED
Rating confidence
Moderate
Sector
Heart and Circulatory System Diseases, Disorders

Official website

Reported finances

Revenue
$1,858,947
Expenses
$1,831,576
Assets
$2,080,624
Liabilities
$628,584

Source: IRS Form 990. Selected filing: tax year 2025. Amounts in USD.

Leadership & pay

20 people listed

Executive titles in this filing

  • MARK ROEDER (PRESIDENT AND CEO)

Highest reported compensation

  • MARK ROEDER (PRESIDENT AND CEO): $183,054 total reported compensation
  • DANIELLE HILE (SR. DIRECTOR OF MEDICAL AFFAIRS): $126,631 total reported compensation

Source: IRS Form 990. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

To empower the congenital heart disease (chd) community by advancing access to resources and specialized care that improve patient-centered outcomes.

What it reported doing in 2025

Accreditation, support, education, and awareness activities:-medical center accreditation program: the accreditation program started in 2014. As of december 2025, there are a total of 59 accredited sites in the us. There are several additional sites currently in various stages of the accreditation process.-peer support program: adult congenital heart association (acha) manages volunteers to provide one-on-one support to achd patients, and those affected by chd, seeking such help.(continued on schedule o).- educational materials and webinars: through its website, webinars, videos, and social media channels, acha provides 24-hour access to relevant, up-to-date information and resources. From the webinars and videos, patients learn more about specific chd conditions and defects, and the issues that affect their lives. Leading experts and advocates cover a range of interesting, diverse, and timely topics in patient-friendly language.- achd clinic directory: acha expanded its online listing with close to 400 achd clinics (including satellite clinics) in the united states; each listing highlights the board-certified achd providers, and the directory continues to be the only resource of its kind available in the united states. - achd patient directory: the acha achd patient resource directory provides information, resources, and tools for achd patients and families who might experience barriers to accessing recommended specialized care. These searchable resources are provided to help patients take an active role in their cardiac care. Patients can search for topics in areas such as achd/chd organizations, other health advocacy organizations, access to care, and other health resources.

Operating model

Revenue model
Donor-supported. 89% of the money available for current operations came from contributions and gifts.
Distribution model
Direct operator. The filing allocates 93% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.
  • Includes noncash contributions: Reported contributions include donated property or goods.

The verdict

SUPPORTED - The filed numbers largely add up and a large share of available resources goes toward mission work. Fundraising costs are high for each dollar raised and program spending has declined or grown slowly.

Rating breakdown

  • Financial Efficiency: 63
  • Transparency & Controls: 87
  • Accountability: 100
  • Sustainability: 35
  • Growth: 20

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 67.6%; rating input score 68
  • Program expense ratio: 68.1%; rating input score 68
  • Fundraising efficiency: $5.78 raised per $1 spent on fundraising; rating input score 19; 19th percentile among comparable filings

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
  • Pay-setting controls: 4 of 6 controls in place; rating input score 67
    • Compensation committee: Pass
    • Independent consultant: Missing
    • Other Form 990s reviewed: Pass
    • Written employment contract: Missing
    • Compensation survey or study: Pass
    • Board or committee approval: Pass
  • Foreign activity oversight: Limited
  • Grant itemization coverage: 100%; rating input score 100; 78th percentile among comparable filings
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 64th percentile among comparable filings
  • Governance controls: 8 of 8 controls in place; rating input score 100
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Pass
    • Document-retention policy: Pass
    • CEO compensation review process: Pass
    • Other executive compensation review process: NotApplicable
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Pass
    • Independent financial-statement audit: Pass

Sustainability

  • Operating margin: 1.5%; rating input score 35; 35th percentile among comparable filings
  • Total-asset coverage ratio: 1.14; rating input score 47; 47th percentile among comparable filings
  • Liabilities to assets ratio: 0.3; rating input score 19; 19th percentile among comparable filings
  • Officer compensation ratio: 16.9%; rating input score 21; 21st percentile among comparable filings

Growth

  • Program expense growth: -1.9% per year; rating input score 0; 11th percentile among comparable filings
  • Revenue growth: -1.8% per year; rating input score 0; 7th percentile among comparable filings
  • Asset growth: 2.5% per year; rating input score 100; 25th percentile among comparable filings

Details

  • Where the money goes: 67.6% of revenue deployed · 68.1% of spending went to programs
  • Governance: 18 of 18 board members independent · 8 of 8 filing controls reported
  • Programs: 2 filed program accomplishments · $1.2M in reported program spending
  • Leadership: top reported pay $183K · 20 people listed · 4 of 6 pay-setting controls reported
  • Consistency: 34 of 34 current checks pass
  • Schedules: 7 filed schedules · includes major donors, grants, and executive pay
  • Filing history: 11 filing years from 2015 to 2025
  • Contacts: How to reach this organization
  • Money network: 6 filed money-flow records
  • Related organizations: 4 filed related-organization links
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.
  • Staff and benefit plans: Retirement and health plans the organization files with the Department of Labor, and the people in them.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • High — Financial Efficiency: Fundraising efficiency scored 19/100.
  • High — Growth: Program expense growth scored 0/100.
  • High — Growth: Revenue growth scored 0/100.
  • Moderate — Sustainability: Operating margin scored 35/100.
  • Moderate — Sustainability: Total-asset coverage ratio scored 47/100.
  • High — Sustainability: Liabilities to assets ratio scored 19/100.
  • High — Sustainability: Officer compensation ratio scored 21/100.