Adcy5 Org Inc
Nonprofit profile at a glance
- EIN
- 811592495
- IRS 990-EZ coverage
- 2020–2025
- Forms available
- Form 990-EZ 2025, Form 990-N 2022
- Location
- La Jolla, CA, USA
- Phone
- 8588827280
- Rating
- 41
- Verdict
- MIXED
- Rating confidence
- Moderate
- Sector
- Nerve, Muscle and Bone Diseases
Reported finances
- Revenue
- $83,627
- Expenses
- $76,321
- Assets
- $132,332
- Liabilities
- $0
Source: IRS Form 990-EZ. Selected filing: tax year 2025. Amounts in USD.
Leadership & pay
4 people listed
Executive titles in this filing
- Steven Grossman (President)
People named in this filing
- Steven Grossman (President)
- Dan Bradbury (Chairman of the Board)
- Jason Keyes (Board Treasurer)
Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.
Source: IRS Form 990-EZ. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
ADCY5.org supports the following groups: families affected by the ADCY5 gene variant rare disease, clinicians treating patients, and researchers pursuing treatments. We achieve our goals through collaboration, or funding efforts. We look to identify anyone affected by, or interested in, the ADCY5 gene variant rare movement disorder.
What it reported doing in 2025
Acted as conduit between researchers, doctors, and patients. We met with researchers by web meeting, in-person, or at conferences to understand the status of current programs related to treatments and the basic science of the condition. Educated researchers on current patient challenges.
Operating model
- Revenue model
- Donor-supported. 100% of the money available for current operations came from contributions and gifts.
- Distribution model
- Cannot be determined from the filing. The filing does not provide enough consistent spending detail to tell whether the nonprofit works directly or through others.
The verdict
MIXED - The filed numbers largely add up and program spending has grown recently. A relatively small share of available resources goes toward mission work and a relatively small share of total spending goes to programs.
Rating breakdown
- Financial Efficiency: 1
- Transparency & Controls: 82
- Sustainability: 60
- Growth: 100
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 0.8%; rating input score 1
- Program expense ratio: 0.9%; rating input score 1
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 51st percentile among comparable filings
- Major donor itemization: Limited
Sustainability
- Operating margin: 8.7%; rating input score 59; 59th percentile among comparable filings
- Total-asset coverage ratio: 1.73; rating input score 62; 62nd percentile among comparable filings
- Liabilities to assets ratio: 0; rating input score 66; 66th percentile among comparable filings
- Officer compensation ratio: 0%; rating input score 56; 56th percentile among comparable filings
Growth
- Program expense growth: 70.5% per year; rating input score 100; 95th percentile among comparable filings
- Revenue growth: 41.9% per year; rating input score 100; 95th percentile among comparable filings
- Asset growth: 15.5% per year; rating input score 100; 79th percentile among comparable filings
Details
- Where the money goes: 0.8% of revenue deployed · 0.9% of spending went to programs
- Governance: Filed governance answers
- Accomplishments: 3 filed program accomplishments · $706 in reported program spending
- Leadership: top reported pay $0 · 4 people listed
- Consistency: 8 of 9 current checks pass · 1 finding to review
- Schedules: 2 filed schedules
- Filing history: 6 filing years from 2020 to 2025
- Contacts: How to reach this organization
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- High — Financial Efficiency: Mission deployment rate scored 1/100.
- High — Financial Efficiency: Program expense ratio scored 1/100.
- Moderate — Transparency & Controls: Part III transfer expenses within program total did not reconcile in the filed values.
- Review — Sustainability: Operating margin scored 59/100.
- Review — Sustainability: Officer compensation ratio scored 56/100.