Active Against ALS
Nonprofit profile at a glance
- EIN
- 263407678
- IRS 990-EZ coverage
- 2020–2025
- Forms available
- Form 990-EZ 2025, Form 990-N 2011
- Location
- Ann Arbor, MI, USA
- Phone
- 7344766499
- Rating
- 93
- Verdict
- STRONG
- Rating confidence
- Moderate
- Sector
- Fund Raising and/or Fund Distribution
Reported finances
- Revenue
- $108,189
- Expenses
- $122,935
- Assets
- $189,874
- Liabilities
- $482
Source: IRS Form 990-EZ. Selected filing: tax year 2025. Amounts in USD.
Leadership & pay
12 people listed
People named in this filing
- Jennifer Collins (Co-Chair)
- Susan Miller (Co-Chair)
- Shelly Webber (Secretary)
Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.
Source: IRS Form 990-EZ. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
Active Against ALS is a grassroots, nonprofit organization whose mission is to raise funds for research toward effective treatments and ultimately a cure for ALS, while raising awareness of the disease, enouraging physical activity, and building a compassionate community.
What it reported doing in 2025
All funds will be put towards the next grant. The organization sent out a request for proposal from neurologists around the country who are doing research on therapeutic treatments for people with ALS. The grant was awarded in Sepember of 2024.
Operating model
- Revenue model
- Donor-supported. 93% of the money available for current operations came from contributions and gifts.
- Distribution model
- Grant intermediary. The nonprofit sent 92% of its reported program spending out as grants.
The verdict
STRONG - A large share of available resources goes toward mission work and the filed numbers largely add up. Expenses are high relative to revenue and program spending has declined or grown slowly.
Rating breakdown
- Financial Efficiency: 96
- Transparency & Controls: 100
- Sustainability: 38
- Growth: 60
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 100%; rating input score 100
- Program expense ratio: 88.3%; rating input score 88
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 52nd percentile among comparable filings
- Major donor itemization: Yes; rating input score 100
Sustainability
- Operating margin: -13.6%; rating input score 10; 10th percentile among comparable filings
- Total-asset coverage ratio: 1.54; rating input score 72; 72nd percentile among comparable filings
- Liabilities to assets ratio: 0; rating input score 44; 44th percentile among comparable filings
- Officer compensation ratio: 0%; rating input score 63; 63rd percentile among comparable filings
Growth
- Program expense growth: -9.3% per year; rating input score 0; 16th percentile among comparable filings
- Revenue growth: 19.5% per year; rating input score 100; 81st percentile among comparable filings
- Asset growth: 13% per year; rating input score 100; 66th percentile among comparable filings
Details
- Where the money goes: 100% of revenue deployed · 88.3% of spending went to programs
- Governance: Filed governance answers
- Accomplishments: 1 filed program accomplishment · $108K in reported program spending
- Leadership: top reported pay $0 · 12 people listed
- Consistency: 9 of 9 current checks pass
- Schedules: 4 filed schedules
- Filing history: 6 filing years from 2020 to 2025
- Contacts: How to reach this organization
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- High — Sustainability: Operating margin scored 10/100.
- High — Growth: Program expense growth scored 0/100.
- Moderate — Sustainability: Liabilities to assets ratio scored 44/100.