Acoustic Neuroma Association

Nonprofit profile at a glance

EIN
232170836
IRS 990 coverage
2010–2025
Forms available
Form 990 2025
Location
Alpharetta, GA, USA
Phone
7702058211
Rating
74
Verdict
SUPPORTED
Rating confidence
Standard

Official website

Reported finances

Revenue
$1,206,993
Expenses
$683,680
Assets
$1,938,164
Liabilities
$55,943

Source: IRS Form 990. Selected filing: tax year 2025. Amounts in USD.

Leadership & pay

18 people listed

Executive titles in this filing

  • RONSON MAHLA (PRESIDENT)
  • SAMIRA RAJABI (Vice President)
  • JIM SHEA (CEO)

Highest reported compensation

  • JIM SHEA (CEO): $141,632 total reported compensation

Source: IRS Form 990. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

Provide support and information to individuals diagnosed with acoustic neuroma brain tumors.

What it reported doing in 2025

The ana provided 1,500+ patient information packets in 2025, and managed 100 patient support group meetings, which included 1,200 attendees. The ana is fortunate to have the support of a strong volunteer network of 125+ dedicated patients, caregivers, and medical providers many of whom volunteer with multiple responsibilities.

Operating model

Revenue model
Donor-supported. 88% of the money available for current operations came from contributions and gifts.
Distribution model
Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.

The verdict

SUPPORTED - The filed numbers largely add up and most voting board members are independent. A relatively small share of available resources goes toward mission work and a relatively small share of total spending goes to programs.

Rating breakdown

  • Financial Efficiency: 39
  • Transparency & Controls: 100
  • Accountability: 100
  • Sustainability: 70
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 32.4%; rating input score 32
  • Program expense ratio: 52.9%; rating input score 53
  • Fundraising efficiency: $8.8 raised per $1 spent on fundraising; rating input score 31; 31st percentile among comparable filings

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
  • Pay-setting controls: Limited
  • Foreign activity oversight: Limited
  • Grant itemization coverage: Limited
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 64th percentile among comparable filings
  • Governance controls: 8 of 8 controls in place; rating input score 100
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Pass
    • Document-retention policy: Pass
    • CEO compensation review process: Pass
    • Other executive compensation review process: NotApplicable
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Pass
    • Independent financial-statement audit: Pass

Sustainability

  • Operating margin: 43.4%; rating input score 88; 88th percentile among comparable filings
  • Total-asset coverage ratio: 2.83; rating input score 73; 73rd percentile among comparable filings
  • Liabilities to assets ratio: 0.03; rating input score 49; 49th percentile among comparable filings
  • Officer compensation ratio: 20.7%; rating input score 15; 15th percentile among comparable filings

Growth

  • Program expense growth: 1.3% per year; rating input score 100; 19th percentile among comparable filings
  • Revenue growth: 7.2% per year; rating input score 100; 49th percentile among comparable filings
  • Asset growth: 10% per year; rating input score 100; 55th percentile among comparable filings

Details

  • Where the money goes: 32.4% of revenue deployed · 52.9% of spending went to programs
  • Governance: 17 of 17 board members independent · 8 of 8 filing controls reported
  • Programs: 1 filed program accomplishment · $361K in reported program spending
  • Leadership: top reported pay $142K · 18 people listed
  • Consistency: 32 of 32 current checks pass
  • Schedules: 4 filed schedules · includes major donors
  • Filing history: 15 filing years from 2010 to 2025
  • Contacts: How to reach this organization
  • Money network: 1 filed money-flow record
  • Related organizations: Filed and resolved organization relationships.
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • Moderate — Financial Efficiency: Mission deployment rate scored 32/100.
  • Review — Financial Efficiency: Program expense ratio scored 53/100.
  • Moderate — Financial Efficiency: Fundraising efficiency scored 31/100.
  • High — Sustainability: Officer compensation ratio scored 15/100.
  • Moderate — Sustainability: Liabilities to assets ratio scored 49/100.