Acmg Foundation for Genetic and Genomic Medicine

Nonprofit profile at a glance

EIN
521841165
IRS 990 coverage
2015–2024
Forms available
Form 990 2024
Location
Bethesda, MD, USA
Phone
3017182014
Rating
62
Verdict
SUPPORTED
Rating confidence
Moderate

Official website

Reported finances

Revenue
$622,219
Expenses
$1,535,415
Assets
$3,524,087
Liabilities
$265,047

Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.

Leadership & pay

23 people listed

Executive titles in this filing

  • NANCY MENDELSOHN (PRESIDENT)
  • BRUCE KORF (PAST PRESIDENT)
  • BRYNN LEVY (PRESIDENT-ELECT)
  • MELANIE WELLS (CEO)

Highest reported compensation

  • MELANIE WELLS (CEO): $370,439 total reported compensation
  • AMY BROWER (ASSOCIATE PROJECT DIRECTOR, NBS): $220,220 total reported compensation
  • CHRIS PITRO (CFO): $220,019 total reported compensation

Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

Support the american college of medical genetics and genomics' (acmg) educational mission to "translate genes into health" by raising funds to attract the next generation of medical geneticists and genetic counselors, to sponsor important research and to promote information about medical genetics.

What it reported doing in 2024

Summer genetics scholars program: in 2024 there were 11 summer scholars enrolled in the summer genetics scholars program. Acmg foundation treatment guidelines development fund: the acceleration of scientific discovery over these last few years has put increasing demands on the acmg to intensify its work in the development of practice guidelines, particularly to be able to respond quickly as new therapeutics for genetic diseases emerge.the acmg foundation, on behalf of acmg, has established a fund to develop and disseminate best-practice guidelines that respond to and incorporate frequent, new scientific discoveries in the diagnosis, management, and treatment of genetic conditions, from detection through newborn screening to common problems of adulthood.day of caring: the day of caring is an event where funds are raised to provide bicycles and helmets to children with genetic diseases. Local genetics organizations are tapped to find recipients and an event is held during the acmg annual meeting to present these bicycles.the purpose of the pfizer/acmg foundation's "translational genomics scholars" award program is to advance education, research and standards of practice in medical genetics, and to develop and expand clinical and laboratory expertise in medical genetics in the united states. It also seeks to initiate and develop a broad-based infrastructure for industry funding of high quality projects in the fields of medical genetics.other awards and fellowships:- sanofi corporation fellowship- takeda corporation fellowship

Operating model

Revenue model
Donor-supported. 79% of the money available for current operations came from contributions and gifts.
Distribution model
Grant intermediary. The nonprofit sent 88% of its reported program spending out as grants.

The verdict

SUPPORTED - The filed numbers largely add up and most voting board members are independent. A relatively small share of total spending goes to programs and a relatively small share of available resources goes toward mission work.

Rating breakdown

  • Financial Efficiency: 38
  • Transparency & Controls: 84
  • Accountability: 95
  • Sustainability: 26
  • Growth: 20

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 56.2%; rating input score 56
  • Program expense ratio: 18.6%; rating input score 19
  • Fundraising efficiency: $1.77 raised per $1 spent on fundraising; rating input score 5; 5th percentile among comparable filings

Transparency & Controls

  • Consistency checks: 92.9%; rating input score 93; 19th percentile among comparable filings
  • Pay-setting controls: 4 of 6 controls in place; rating input score 67
    • Compensation committee: Pass
    • Independent consultant: Missing
    • Other Form 990s reviewed: Pass
    • Written employment contract: Missing
    • Compensation survey or study: Pass
    • Board or committee approval: Pass
  • Foreign activity oversight: Limited
  • Grant itemization coverage: 100%; rating input score 100; 76th percentile among comparable filings
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
  • Governance controls: 8 of 9 controls in place; rating input score 89
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Pass
    • Document-retention policy: Pass
    • CEO compensation review process: Pass
    • Other executive compensation review process: Fail
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Pass
    • Independent financial-statement audit: Pass

Sustainability

  • Operating margin: -146.8%; rating input score 1; 1st percentile among comparable filings
  • Total-asset coverage ratio: 2.3; rating input score 68; 68th percentile among comparable filings
  • Liabilities to assets ratio: 0.08; rating input score 46; 46th percentile among comparable filings
  • Officer compensation ratio: 127.8%; rating input score 0; 0th percentile among comparable filings

Growth

  • Program expense growth: -7% per year; rating input score 0; 6th percentile among comparable filings
  • Revenue growth: -2.3% per year; rating input score 0; 9th percentile among comparable filings
  • Asset growth: 7.1% per year; rating input score 100; 48th percentile among comparable filings

Details

  • Where the money goes: 56.2% of revenue deployed · 18.6% of spending went to programs
  • Governance: 14 of 14 board members independent · 8 of 9 filing controls reported
  • Programs: 1 filed program accomplishment · $286K in reported program spending
  • Leadership: top reported pay $370K · 23 people listed · 4 of 6 pay-setting controls reported
  • Consistency: 31 of 32 current checks pass · 1 finding to review
  • Schedules: 7 filed schedules · includes major donors, grants, and executive pay
  • Filing history: 9 filing years from 2015 to 2024
  • Contacts: How to reach this organization
  • Money network: 17 filed money-flow records
  • Related organizations: 9 filed related-organization links
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • High — Financial Efficiency: Program expense ratio scored 19/100.
  • Review — Financial Efficiency: Mission deployment rate scored 56/100.
  • High — Financial Efficiency: Fundraising efficiency scored 5/100.
  • High — Sustainability: Operating margin scored 1/100.
  • High — Growth: Program expense growth scored 0/100.
  • High — Growth: Revenue growth scored 0/100.
  • Review — Accountability: Governance controls: Other executive compensation review process not reported.
  • High — Sustainability: Officer compensation ratio scored 0/100.
  • Review — Transparency & Controls: Domestic grant itemization did not reconcile in the filed values.
  • Moderate — Sustainability: Liabilities to assets ratio scored 46/100.