A Cure for Robert Inc

Nonprofit profile at a glance

EIN
851792143
IRS 990 coverage
2021–2024
Forms available
Form 990 2024, Form 990-N 2020
Location
Louisville, KY, USA
Phone
5028026337
Rating
82
Verdict
STRONG
Rating confidence
Moderate
Sector
Fund Raising and/or Fund Distribution

Reported finances

Revenue
$735,912
Expenses
$382,100
Assets
$1,572,385
Liabilities
$0

Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.

Leadership & pay

9 people listed

Executive titles in this filing

  • ROBERT B VICE JR (PRESIDENT)
  • HELEN K VICE (VICE PRESIDENT)

People named in this filing

  • ROBERT B VICE JR (PRESIDENT)
  • HELEN K VICE (VICE PRESIDENT)
  • DEANA PARADIS (TREASURER)

Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.

Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

The organization is working to find a cure or treatment for mucopolysaccharidosis type iva ("morquio") through fundraising and granting of funds to various research institutions.

What it reported doing in 2024

The organization is working to find a cure or treatment for mucopolysaccharidosis type iva ("morquio") through fundraising and granting of funds to various research institutions.this disease is a rare genetic disease that prohibits the body from breaking down certain sugars. It is severely progressive, and the effects of the disease will get significantly worse with time. The disease affects about 1 in 200,000 people, but the effects are felt in communities through the united states and world. There is one treatment available- a slow weekly intravenous medication that is disruptive, expensive, causes adverse reactions (many cannot take it), and worse, has been proven to have limited effects.

Operating model

Revenue model
Donor-supported. 96% of the money available for current operations came from contributions and gifts.
Distribution model
Grant intermediary. The nonprofit sent 95% of its reported program spending out as grants.

The verdict

STRONG - A large share of total spending goes to programs and the filed numbers largely add up. A relatively small share of available resources goes toward mission work and some filing-based governance responses are negative or unanswered.

Rating breakdown

  • Financial Efficiency: 73
  • Transparency & Controls: 94
  • Accountability: 76
  • Sustainability: 87
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 53%; rating input score 53
  • Program expense ratio: 98.6%; rating input score 99
  • Fundraising efficiency: $180.98 raised per $1 spent on fundraising; rating input score 91; 91st percentile among comparable filings

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
  • Pay-setting controls: Limited
  • Foreign activity oversight: Limited
  • Grant itemization coverage: 100%; rating input score 100; 76th percentile among comparable filings
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
  • Governance controls: 3 of 7 controls in place; rating input score 43
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Fail
    • Document-retention policy: Fail
    • CEO compensation review process: NotApplicable
    • Other executive compensation review process: NotApplicable
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Missing
    • Independent financial-statement audit: Fail

Sustainability

  • Operating margin: 48.1%; rating input score 92; 92nd percentile among comparable filings
  • Total-asset coverage ratio: 4.12; rating input score 81; 81st percentile among comparable filings
  • Liabilities to assets ratio: 0; rating input score 91; 91st percentile among comparable filings
  • Officer compensation ratio: 0%; rating input score 81; 81st percentile among comparable filings

Growth

  • Program expense growth: 45.5% per year; rating input score 100; 95th percentile among comparable filings
  • Revenue growth: 15% per year; rating input score 100; 78th percentile among comparable filings
  • Asset growth: 38.4% per year; rating input score 100; 94th percentile among comparable filings

Details

  • Where the money goes: 53% of revenue deployed · 98.6% of spending went to programs
  • Governance: 9 of 9 board members independent · 3 of 7 filing controls reported
  • Programs: 1 filed program accomplishment · $377K in reported program spending
  • Leadership: top reported pay $0 · 9 people listed
  • Consistency: 17 of 17 current checks pass
  • Schedules: 5 filed schedules · includes major donors and grants
  • Filing history: 4 filing years from 2021 to 2024
  • Contacts: How to reach this organization
  • Money network: 3 filed money-flow records
  • Related organizations: 3 filed related-organization links
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • Review — Financial Efficiency: Mission deployment rate scored 53/100.
  • Moderate — Accountability: Governance controls: 3 of 6 not reported.