3Q29 Foundation

Nonprofit profile at a glance

EIN
932052188
IRS 990 coverage
2024–2025
Forms available
Form 990 2025, Form 990-N 2023
Location
Woodcliff Lake, NJ, USA
Rating
46
Verdict
MIXED
Rating confidence
Moderate
Sector
Specifically Named Diseases

Reported finances

Revenue
$37,967
Expenses
$19,638
Assets
$133,648
Liabilities
$36

Source: IRS Form 990. Selected filing: tax year 2025. Amounts in USD.

Leadership & pay

7 people listed

Executive titles in this filing

  • SANDRA FORMAN (PRESIDENT)

People named in this filing

  • ADELA BALDUCCI (DIRECTOR)
  • LINDSEY BORDONE (DIRECTOR)
  • MICHAEL MERLEY (DIRECTOR)

Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.

Source: IRS Form 990. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

The goals of the organization's research are to identify which genes cause dysfunction, understand the cause of chromosome 3q29 disorders, and discover treatment, prevention, and ways to improve the functionality of these genes. In addition to supporting specific research projects, the organization will work to develop a network of leading scientists and industry partners to increase transparency and facilitate shared resources creating economies of scale on all conditions of chromosome 3q29 disorders. In addition to supporting research activities, the organization also seeks to create a community among chromosome 3q29 disorder patient families. The organization believes that each is a resource for the others and only by sharing information can the greater goal of treatment be achieved. Increasing the number of participants and details on medical history should greatly increase the likelihood of treatment for all those with a chromosome 3q29 disorder. Finally, the organization is commi

What it reported doing in 2025

3q29 family connection series - provides direct support and education to families affected by 3q29 deletion and duplication syndromes through structured virtual meetings. In 2025, we hosted 2 expert-led sessions featuring a prominent researcher and a specialized clinician, with 87 registered participants. One presentation was recorded and is made available to to our network of approximately 800 families, ensuring all community members could access this educational content regardless of their ability to attend live. This program creates a safe space for families to receive the latest research updates, ask questions directly to experts, and connect with others sharing similar experiences.

Operating model

Revenue model
Donor-supported. 89% of the money available for current operations came from contributions and gifts.
Distribution model
No current program activity. The filing reports no program spending for the current year.

The verdict

MIXED - The filed numbers largely add up and most voting board members are independent. A relatively small share of available resources goes toward mission work and a relatively small share of total spending goes to programs.

Rating breakdown

  • Financial Efficiency: 5
  • Transparency & Controls: 90
  • Accountability: 64
  • Sustainability: 68
  • Growth: 20

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 0%; rating input score 0
  • Program expense ratio: 0%; rating input score 0
  • Fundraising efficiency: $5.72 raised per $1 spent on fundraising; rating input score 41; 41st percentile among comparable filings

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
  • Pay-setting controls: Limited
  • Foreign activity oversight: Limited
  • Grant itemization coverage: Limited
  • Major donor itemization: Limited
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 64th percentile among comparable filings
  • Governance controls: 1 of 7 controls in place; rating input score 14
    • Conflict-of-interest policy: Fail
    • Whistleblower policy: Fail
    • Document-retention policy: Fail
    • CEO compensation review process: NotApplicable
    • Other executive compensation review process: NotApplicable
    • Form 990 shared with the board: Fail
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Missing
    • Independent financial-statement audit: Fail

Sustainability

  • Operating margin: 48.3%; rating input score 86; 86th percentile among comparable filings
  • Total-asset coverage ratio: 6.81; rating input score 58; 58th percentile among comparable filings
  • Liabilities to assets ratio: 0; rating input score 30; 30th percentile among comparable filings
  • Officer compensation ratio: 0%; rating input score 58; 58th percentile among comparable filings

Growth

  • Program expense growth: Limited
  • Revenue growth: -118.3% per year; rating input score 0; 3rd percentile among comparable filings
  • Asset growth: 14.8% per year; rating input score 100; 84th percentile among comparable filings

Details

  • Where the money goes: 0% of revenue deployed · 0% of spending went to programs
  • Governance: 7 of 7 board members independent · 1 of 7 filing controls reported
  • Programs: 2 filed program accomplishments
  • Leadership: top reported pay $0 · 7 people listed
  • Consistency: 19 of 19 current checks pass
  • Schedules: 4 filed schedules
  • Filing history: 2 filing years from 2024 to 2025
  • Contacts: How to reach this organization
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • High — Financial Efficiency: Mission deployment rate scored 0/100.
  • High — Financial Efficiency: Program expense ratio scored 0/100.
  • High — Accountability: Governance controls: 5 of 6 not reported.
  • High — Growth: Revenue growth scored 0/100.
  • Moderate — Financial Efficiency: Fundraising efficiency scored 41/100.
  • Review — Sustainability: Total-asset coverage ratio scored 58/100.
  • Moderate — Sustainability: Liabilities to assets ratio scored 30/100.
  • Review — Sustainability: Officer compensation ratio scored 58/100.