1J Foundation
Nonprofit profile at a glance
- EIN
- 932224114
- IRS 990-EZ coverage
- 2023–2025
- Forms available
- Form 990-EZ 2025
- Location
- Chicago, IL, USA
- Phone
- 7738352412
- Rating
- 64
- Verdict
- SUPPORTED
- Rating confidence
- Moderate
- Sector
- Specifically Named Diseases Research
Reported finances
- Revenue
- $114,580
- Expenses
- $332
- Assets
- $249,624
Source: IRS Form 990-EZ. Selected filing: tax year 2025. Amounts in USD.
Leadership & pay
5 people listed
People named in this filing
- LAURA GEAN (CHAIRPERSON)
- MICHELLE MOON (VICE CHAIRPE)
- JENNIFER EBERT (SECRETARY)
Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.
Source: IRS Form 990-EZ. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
Cmt 1j is a newly identified subtype of cmt, caused by an itpr3 gene mutation. This neuromuscular disease causes widely variable symptoms ranging from mild walking difficulties to significant mobility and respiratory impairments. The 1j foundation seeks to find and support other families with cmt1j and raise money for a cure. Research for a treatment is currently underway for our specific variant.
What it reported doing in 2025
Donations to the 1j foundation fund treatment for cmt1j.
Operating model
- Revenue model
- Donor-supported. 96% of the money available for current operations came from contributions and gifts.
- Distribution model
- Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.
The verdict
SUPPORTED - The filed numbers largely add up and revenue comfortably covers expenses. A relatively small share of available resources goes toward mission work and program spending has declined or grown slowly.
Rating breakdown
- Financial Efficiency: 38
- Transparency & Controls: 100
- Sustainability: 84
- Growth: 20
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 0.6%; rating input score 1
- Program expense ratio: 100%; rating input score 100
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 52nd percentile among comparable filings
- Major donor itemization: Yes; rating input score 100
Sustainability
- Operating margin: 99.7%; rating input score 100; 100th percentile among comparable filings
- Total-asset coverage ratio: 751.88; rating input score 100; 100th percentile among comparable filings
- Liabilities to assets ratio: Limited
- Officer compensation ratio: 0%; rating input score 63; 63rd percentile among comparable filings
Growth
- Program expense growth: -96% per year; rating input score 0; 2nd percentile among comparable filings
- Revenue growth: -10.6% per year; rating input score 0; 4th percentile among comparable filings
- Asset growth: 67.7% per year; rating input score 100; 95th percentile among comparable filings
Details
- Where the money goes: 0.6% of revenue deployed · 100% of spending went to programs
- Governance: Filed governance answers
- Accomplishments: 1 filed program accomplishment · $332 in reported program spending
- Leadership: top reported pay $0 · 5 people listed
- Consistency: 6 of 6 current checks pass
- Schedules: 3 filed schedules
- Filing history: 3 filing years from 2023 to 2025
- Contacts: How to reach this organization
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- High — Financial Efficiency: Mission deployment rate scored 1/100.
- High — Growth: Program expense growth scored 0/100.
- High — Growth: Revenue growth scored 0/100.