16P Genetic Syndrome Foundation
Nonprofit profile at a glance
- EIN
- 883066433
- IRS 990-EZ coverage
- 2022–2025
- Forms available
- Form 990-EZ 2025, Form 990-T 2025
- Location
- Irvine, CA, USA
- Phone
- 5105029267
- Rating
- 84
- Verdict
- STRONG
- Rating confidence
- Moderate
- Sector
- Education N.E.C.
Reported finances
- Revenue
- $100,772
- Expenses
- $70,051
- Assets
- $34,018
- Liabilities
- $319
Source: IRS Form 990-EZ. Selected filing: tax year 2025. Amounts in USD.
Leadership & pay
3 people listed
Executive titles in this filing
- FARANAK HERRERA (CEO)
People named in this filing
- FARANAK HERRERA (CEO)
- WENDY CHUNG (Secretary)
- CAROLINE PEREIRA (CFO)
Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.
Source: IRS Form 990-EZ. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
During the tax year, the organization advanced planning efforts for the development of Centers of Excellence dedicated to individuals affected by 16p11.2 genetic variances. We conducted community outreach initiatives, including surveys, educational discussions, and engagement opportunities to better understand the needs of affected individuals and families. The organization also organized and supported fundraising efforts to further research, awareness, and program development. We expanded our reach within the 16p11.2 community, successfully connecting with and supporting hundreds of individuals and families impacted by these genetic variances. In addition, we continued to build partnerships and collaborations across healthcare, education, research, and community sectors to improve diagnosis, treatment, management, and long-term outcomes. We also supported scientific and clinical initiatives, including efforts to advance recognition of 16p11.2 genetic variances within healthcare system
What it reported doing in 2025
Our mission is to treat and integrate 16p11.2 genetic variances seamlessly throughout the health, education, and societal landscapes by 2030. We do it for our children.
Operating model
- Revenue model
- Cannot be determined from the filing. The filing does not provide enough consistent revenue detail to tell how this nonprofit funds its work.
- Distribution model
- Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.
The verdict
STRONG - The filed numbers largely add up and a large share of available resources goes toward mission work. Total assets are small relative to annual expenses; liquid coverage is unknown and liabilities are high compared with assets.
Rating breakdown
- Financial Efficiency: 71
- Transparency & Controls: 100
- Sustainability: 61
- Growth: 100
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 61.4%; rating input score 61
- Program expense ratio: 88.3%; rating input score 88
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 52nd percentile among comparable filings
- Major donor itemization: Yes; rating input score 100
Sustainability
- Operating margin: 30.5%; rating input score 82; 82nd percentile among comparable filings
- Total-asset coverage ratio: 0.49; rating input score 37; 37th percentile among comparable filings
- Liabilities to assets ratio: 0.01; rating input score 38; 38th percentile among comparable filings
- Officer compensation ratio: 0%; rating input score 63; 63rd percentile among comparable filings
Growth
- Program expense growth: 183.4% per year; rating input score 100; 99th percentile among comparable filings
- Revenue growth: 97.5% per year; rating input score 100; 99th percentile among comparable filings
- Asset growth: 74.7% per year; rating input score 100; 96th percentile among comparable filings
Details
- Where the money goes: 61.4% of revenue deployed · 88.3% of spending went to programs
- Governance: Filed governance answers
- Accomplishments: 1 filed program accomplishment · $62K in reported program spending
- Leadership: top reported pay $0 · 3 people listed
- Consistency: 7 of 7 current checks pass
- Schedules: 3 filed schedules
- Filing history: 4 filing years from 2022 to 2025
- Contacts: How to reach this organization
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- Moderate — Sustainability: Total-asset coverage ratio scored 37/100.
- Moderate — Sustainability: Liabilities to assets ratio scored 38/100.