IRS 990 Nonprofit Profile
Cure Cdkl5 Foundation
Cure cdkl5 foundation, established in spring 2022, is a nonprofit organization devoted to funding the research and development of treatments and cures for cdkl5 deficiency disorder, a rare form of epilepsy caused by a mutation in the cdkl5 gene. living with this rare disorder causes a very broad range of clinical symptoms and severity between individuals with the hallmarks being early-onset intractable seizures and neurodevelopmental delays that impact cognitive, motor, speech, and visual functional development. our mission is to fundraise for cdkl5 specific scientific and clinical research while offering affected cdkl5 families resources to make their individual voyages for a cure more streamlined.
- Filing year
- 2024
- Total revenue
- $5K
- Total expenses
- $70
- Program expenses
- $0
- Administration
- $0
- Fundraising
- $0
- Program share of expenses
- 0%
- EIN
- 881224505
- Location
- Manhattan Beach, CA
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Financial data on this page is sourced from IRS Form 990 filings.