IRS 990 Nonprofit Profile

Mila's Miracle Foundation

The mission of mila's miracle foundation is to find and fund paths to a cure for batten and other life-threatening neurological disorders. families in this community have been pivotal in raising the necessary funds and awareness. together, with our incredible scientists and partner organizations, we hope that our work will improve the prognosis of batten disease and other neurodegenerative diseases. through our fundraising - which includes grassroots efforts, individuals and family foundations, and grants - our foundation work has focused on the following program initiatives to date: the expansion of individualized medicines; clinical trials & programs, including an antisense oligonucleotide (aso) clinical trial, a cln7 gene therapy trial, and a batten & neurodegenerative disease clinic; and basic science research for batten disease, including a pediatric cell atlas of batten pathobiology and therapeutic response.

Filing year
2024
Total revenue
$707K
Total expenses
$493K
Program expenses
$443K
Administration
$38K
Fundraising
$12K
Program share of expenses
90%
EIN
814713372
Location
Boulder, CO

WWW.STOPBATTEN.ORG

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Financial data on this page is sourced from IRS Form 990 filings.