IRS 990 Nonprofit Profile

Creutzfeldt-jakob Disease Foundation INC

The mission of the creutzfeldt-jakob disease foundation is to support families affected by prion disease, raise awareness, support medical education, and fund research. we carry out this mission through: -family support including a 7-day helpline, referrals, support groups and teleconference speaker series -education and information for families, caregivers, medical professionals, funeral professionals, and infection control specialists -advocacy with public policy makers -annual family conference that brings together affected families and prion disease experts - support groups for families affected by cjd -collaboration with scientists, clinicians, medical centers, health authorities, professional organizations, and international patient associations -communication of current research and foundation activities via annual conference, website, social media, emails, and family teleconferences -research grant program, which includes national and international awardees selected by our scientific advisory committee

Filing year

2024

Total revenue

$2.9M

Total expenses

$1.9M

Program expenses

$1.6M

Administration

$177K

Fundraising

$89K

Program share of expenses

86%

EIN

650404623

Location

Akron, OH

WWW.CJDFOUNDATION.ORG