Crohn's & Colitis Foundation

What it reported doing in 2024

Since its inception, the crohn's & colitis foundation has provided more than $500 million for research on the treatment and cures of ibd. The foundation funds a set of priority research initiatives: multi-institutional, multi-disciplinary, collaborative research projects targeting areas of science with a high probability of advancing treatment. The foundation has defined itself by sponsoring the best and brightest researchers resulting in groundbreaking studies and research initiatives to advance the understanding and treatment of inflammatory bowel diseases ("ibd"). (continued in schedule o)the foundation's research portfolio is a combination of basic, translational, and clinical research. Designed to cut years off the research process, ibd plexus, the foundation's innovative research platform, is the single largest ibd database in the us and the most comprehensive ibd database in the world. It currently provides researchers with data from over 30,000 patients, including 250,000 biosamples (blood, stool, and intestinal tissue).the foundation leads the way in new, critically important areas of ibd research, and accelerating novel therapies and innovative products that address unmet patient needs. In 2020, the foundation launched the most extensive ibd-focused precision nutrition effort, to better understand the direct impact that food may have in the management of ibd and on patient quality of life. The foundation also launched the surgical research network, our first-ever coordinated-funding effort to study surgical outcomes in ibd, with over 50 centers participating.

Financial Efficiency

• Mission deployment rate: 80.9%; rating input score 81
• Program expense ratio: 81.4%; rating input score 81
• Fundraising efficiency: $12.31 raised per $1 spent on fundraising; rating input score 46; 46th percentile among comparable filings

Transparency & Controls

• Consistency checks: 94.7%; rating input score 95; 33rd percentile among comparable filings
• Pay-setting controls: 5 of 6 controls in place; rating input score 83
  • Compensation committee: Pass
  • Independent consultant: Pass
  • Other Form 990s reviewed: Pass
  • Written employment contract: Missing
  • Compensation survey or study: Pass
  • Board or committee approval: Pass
• Foreign activity oversight: 2 of 8 controls in place; rating input score 25
  • Claims monitoring procedures: Pass
  • Requires narrative reports: Pass
  • Conducts field audits: Fail
  • May suspend future funding: Fail
  • Requires financial reports: Fail
  • Conducts site visits: Fail
  • Requires grant agreements: Fail
  • May require repayment: Fail
• Grant itemization coverage: 82.1%; rating input score 82; 18th percentile among comparable filings
• Major donor itemization: Yes; rating input score 100
• Related-party transparency: Limited

Accountability

• Independent voting board: 100%; rating input score 100; 76th percentile among comparable filings
• Governance controls: 9 of 9 controls in place; rating input score 100
  • Conflict-of-interest policy: Pass
  • Whistleblower policy: Pass
  • Document-retention policy: Pass
  • CEO compensation review process: Pass
  • Other executive compensation review process: Pass
  • Form 990 shared with the board: Pass
  • Board meeting minutes documented: Pass
  • Audit committee oversight: Pass
  • Independent financial-statement audit: Pass

Sustainability

• Operating margin: 2%; rating input score 42; 42nd percentile among comparable filings
• Total-asset coverage ratio: 0.61; rating input score 23; 23rd percentile among comparable filings
• Liabilities to assets ratio: 0.94; rating input score 9; 9th percentile among comparable filings
• Officer compensation ratio: 5.1%; rating input score 16; 16th percentile among comparable filings

Growth

• Program expense growth: 3.6% per year; rating input score 100; 28th percentile among comparable filings
• Revenue growth: 4.1% per year; rating input score 100; 33rd percentile among comparable filings
• Asset growth: 6.7% per year; rating input score 100; 49th percentile among comparable filings