National Tay-sachs&allied Diseases Association New York Area Inc
Overview
Mission
Offer support and programs geared to families affected by tay-sachs disease and over 40 other fatal degenerative genetic disorders through education research and prevention.
What it reported doing in 2014
Meetings: provide information, literature & speakers to the public and human services professionals about tay sachs and allied diseases, and referral information.
Operating model
- Revenue model
- Donor-supported. 83% of the money available for current operations came from contributions and gifts.
- Distribution model
- Grant intermediary. The nonprofit sent 72% of its reported program spending out as grants.
Nonprofit profile at a glance
- EIN
- 133862642
- IRS 990 coverage
- 2014–2014
- Forms available
- Form 990 2014
- Headquarters
- Pomona, NY, USA
- Rating
- 87
- Verdict
- STRONG
- Rating confidence
- Limited
- Sector
- Birth Defects and Genetic Diseases
The verdict
STRONG - A large share of available resources goes toward mission work and the filed numbers largely add up. The filing reports that some governance safeguards are missing and expenses are high relative to revenue.
Rating breakdown
- Financial Efficiency: 100
- Transparency & Controls: 100
- Accountability: 82
- Sustainability: 12
- Growth: NotEnoughData
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 100%; rating input score 100
- Program expense ratio: 98.7%; rating input score 99
- Fundraising efficiency: Limited
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 62nd percentile among comparable filings
- Pay-setting controls: Limited
- Foreign activity oversight: Limited
- Grant itemization coverage: 100%; rating input score 100; 80th percentile among comparable filings
- Major donor itemization: Limited
- Related-party transparency: Limited
- Public monitoring controls: Limited
- Public policy transparency: Limited
- Public financial transparency: Limited
- Impact reporting controls: Limited
- Public relationship transparency: Limited
Accountability
- Independent voting board: 100%; rating input score 100; 64th percentile among comparable filings
- Governance controls: 4 of 7 controls in place; rating input score 57
- Public governance controls: Limited
- Zakat policy transparency: Limited
Sustainability
- Operating margin: -503.8%; rating input score 6; 6th percentile among comparable filings
- Operating reserve ratio: 0; rating input score 2; 2nd percentile among comparable filings
- Liabilities to assets ratio: Limited
- Officer compensation ratio: 0%; rating input score 61; 61st percentile among comparable filings
Growth
- Program expense growth: Limited
- Revenue growth: Limited
- Asset growth: Limited
Details
- Where the money goes: 100% of revenue deployed · 98.7% of spending went to programs
- Governance: 33 of 33 board members independent · 4 of 7 filing controls reported
- Programs: 4 filed program accomplishments · $51K in reported program spending
- Leadership: top reported pay $0 · 9 people listed
- Consistency: 15 of 15 current checks pass
- Schedules: 5 filed schedules · includes grants
- Contacts: How to reach this organization
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.