Boomer Esiason Foundation

Overview

Mission

The mission of the boomer esiason foundation is to heighten awareness, education and the quality of life for those affected by cystic fibrosis while providing financial support to research aimed at finding a cure.

What it reported doing in 2024

A program to foster education and research in cystic fibrosis which includes the following initiatives: advocacy advancing key cystic fibrosis initiatives with a strong educational focus shared through the organization's advocacy platform, its ambassadors and through grants to other patient organizations; an educational component supporting family building in the cystic fibrosis community, providing clear, accessible information on reproductive health options, decisions, and challenges; nutrition and culinary advice with cystic fibrosis-specific education through engaging social media content; career development with a goal to improve educational and employment access for people with cystic fibrosis through counseling from disability experts, and coaching on self-advocacy through experts and role models; and grants to medical institutions and researchers who are driving scientific breakthroughs that will help the cystic fibrosis community.

Operating model

Revenue model
Donor-supported. 98% of the money available for current operations came from contributions and gifts.
Distribution model
Hybrid. The nonprofit split its reported program spending across 50% for direct work, and 50% for grants.
  • Includes noncash contributions: Reported contributions include donated property or goods.

Nonprofit profile at a glance

EIN
113142753
IRS 990 coverage
2017–2024
Forms available
Form 990 2024
Location
Bethesda, MD, USA
Phone
3016561551
Rating
73
Verdict
SUPPORTED
Rating confidence
Moderate
Sector
Health - General and Rehabilitative N.E.C.

Official website

Reported finances

Revenue
$5,548,024
Expenses
$5,944,611
Assets
$9,457,876
Liabilities
$1,842,349

Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.

The verdict

SUPPORTED - A large share of available resources goes toward mission work and the filed numbers largely add up. Fundraising costs are high for each dollar raised and program spending has declined or grown slowly.

Rating breakdown

  • Financial Efficiency: 77
  • Transparency & Controls: 66
  • Accountability: 91
  • Sustainability: 31
  • Growth: 60

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 84.8%; rating input score 85
  • Program expense ratio: 78.7%; rating input score 79
  • Fundraising efficiency: $8.66 raised per $1 spent on fundraising; rating input score 33; 33rd percentile among comparable filings

Transparency & Controls

  • Consistency checks: 90%; rating input score 90; 4th percentile among comparable filings
  • Pay-setting controls: 1 of 6 controls in place; rating input score 17
    • Compensation committee: Missing
    • Independent consultant: Missing
    • Other Form 990s reviewed: Missing
    • Written employment contract: Pass
    • Compensation survey or study: Missing
    • Board or committee approval: Missing
  • Foreign activity oversight: Limited
  • Grant itemization coverage: 73.7%; rating input score 74; 20th percentile among comparable filings
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 84%; rating input score 84; 17th percentile among comparable filings
  • Governance controls: 9 of 9 controls in place; rating input score 100
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Pass
    • Document-retention policy: Pass
    • CEO compensation review process: Pass
    • Other executive compensation review process: Pass
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Pass
    • Independent financial-statement audit: Pass

Sustainability

  • Operating margin: -7.1%; rating input score 17; 17th percentile among comparable filings
  • Total-asset coverage ratio: 1.59; rating input score 54; 54th percentile among comparable filings
  • Liabilities to assets ratio: 0.19; rating input score 44; 44th percentile among comparable filings
  • Officer compensation ratio: 19.6%; rating input score 13; 13th percentile among comparable filings

Growth

  • Program expense growth: -3.1% per year; rating input score 0; 7th percentile among comparable filings
  • Revenue growth: 3.2% per year; rating input score 100; 28th percentile among comparable filings
  • Asset growth: 10% per year; rating input score 100; 58th percentile among comparable filings

Details

  • Where the money goes: 84.8% of revenue deployed · 78.7% of spending went to programs
  • Governance: 21 of 25 board members independent · 9 of 9 filing controls reported
  • Programs: 3 filed program accomplishments · $4.7M in reported program spending
  • Leadership: top reported pay $218K · 32 people listed · 1 of 6 pay-setting controls reported
  • Highest-paid contractors: 2 contractors listed · $518K reported
  • Consistency: 35 of 37 current checks pass · 2 findings to review
  • Schedules: 9 filed schedules · includes major donors, grants, and executive pay
  • Filing history: 8 annual filings from 2017 to 2024
  • Contacts: How to reach this organization
  • Money network: 32 filed money-flow records
  • Related organizations: 23 filed related-organization links
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.
  • Staff and benefit plans: Retirement and health plans the organization files with the Department of Labor, and the people in them.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • Moderate — Financial Efficiency: Fundraising efficiency scored 33/100.
  • High — Growth: Program expense growth scored 0/100.
  • High — Sustainability: Operating margin scored 17/100.
  • Review — Sustainability: Total-asset coverage ratio scored 54/100.
  • High — Sustainability: Officer compensation ratio scored 13/100.
  • Moderate — Transparency & Controls: Schedule A contributions reconciliation did not reconcile in the filed values.
  • Review — Transparency & Controls: Domestic grant itemization did not reconcile in the filed values.
  • Moderate — Sustainability: Liabilities to assets ratio scored 44/100.

Leadership & pay

32 people listed

Highest reported compensation

  • ROBERT PLANSKER (PRESIDENT): $217,922 total reported compensation
  • ETSUKO MURASE (CFO/COO): $188,620 total reported compensation
  • TAMI AMAKER (VP, DEVELOPMENT, EVENTS AND PROGRAMS): $159,492 total reported compensation

Source: IRS Form 990. Selected filing: tax year 2024.