{"success":true,"data":{"_id":341915691,"filings":[{"Organization":{"value":null,"Person":["JULIE BRENEISER","MEREDITH WEISS","KEVIN GULLATT","RONI RUBENSTEIN","SAM BRENEISER","JOHN WOOD","JENNI WERKMEISTER","LISA TACK","MICHAEL RAINEN"],"Title":["EXEC DIRECTOR","PRESIDENT","TREASURER","SECRETARY","TRUSTEE","TRUSTEE","TRUSTEE","TRUSTEE","TRUSTEE"],"Hours":[32.0,4.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0],"Total Compensation":[14423,0,0,0,0,0,0,0,0],"Direct compensation":[14423,0,0,0,0,0,0,0,0],"Other compensation":[0,0,0,0,0,0,0,0,0]},"Basic":{"value":null,"mission":"The mission of the gorlin syndrome alliance (gsa) is to thoughtfully support, comprehensively educate and aggressively seek treatments and a cure for basal cell carcinoma nevus syndrome, its manifestations and sporadic basal cell carcinomas.","year":2019,"name":"GORLIN SYNDROME ALLIANCE","phone":2676896443,"website":"WWW.GORLINSYNDROME.ORG","type":"990","affiliation":null,"foreign_countries":null,"principal_officer":"JULIE BRENEISER","year_formation":2000,"state_legal_domicile":"PA","total_volunteers":0,"tax_period_begin":"2019-01-01T00:00:00","tax_period_end":"2019-12-31T00:00:00","address":"PO BOX 4, READING, PA, 19607, USA","city":"READING","state":"PA","country":"USA","zip_code":19607},"Governance":{"value":null,"501c3 determination":true,"501c determination":false,"Number of voting members":8,"Number of independent voting members":8,"Number of employees total":2,"Total Gross UBI":0,"Net unrelated business taxable income":0,"Number of employees":2,"Prohibited tax shelter transactions":true,"Taxable party notification":true,"Funds to pay premiums":true,"Premiums Paid":true,"Family or business relationship":true,"Delegation of management duties":true,"Conflict of interest policy":true,"Whistle blower policy":true,"Compensation process for CEO":true,"Compensation process for other employees":true,"Changes to organizing documents":true,"Material diversion or misuse":true,"Members or stockholders":true,"Election of board members":true,"Decisions subject to approval":true,"Minutes of governing body":true,"Local chapters":true,"Form 990 provided to governing body":true,"Document retention policy":true,"Investment in joint venture":true,"Independent audit financial statements":true,"Consolidated audit financial statements":true,"Accountant compile or review":true,"Political activities":true,"Donor advised funds":true,"Conservation easements":true,"Collections of art":true,"School":true,"Hospital":true,"Foreign activities":true,"Foreign office":true,"Gaming":true,"Fundraising activities":true,"Professional fundraising":true,"Loan to officer or DQP":true,"Grant to related person":true,"Business relationship through family member":true,"Business relationship with organization":true},"Revenues":{"value":262683,"Contributions":{"value":253744,"Other contributions":253744,"Contributions from gifts and grants":0,"Fundraising revenue":0,"Dues":0,"Campaigns":0,"Grant revenue":0,"Related organizations":0},"Program revenue":{"value":0,"Total revenue":0,"Total other revenue":0,"Unrelated business revenue":0},"Investment income":{"value":0,"Investment income total":0,"Net investment gain":0,"Income from invest bond proceeds":0},"Other revenues":{"value":8939,"Other total":8939,"Royalties revenue":0,"Net rental income":0,"Net income from fundraising events":0,"Net income from gaming":0,"Net income":0,"Gross profit from sales of inventory":0,"Gain from sale of assets":0}},"Expenses":{"value":295833,"Grant expense":{"value":65000,"Grants to domestic orgs":65000,"Grants to domestic individuals":0,"Grants and similar":0,"Foreign grants":0},"Total professional fundraising expense":{"value":0,"Fundraising professional":0,"Fees to independent contractors":0},"Benefits paid to members":{"value":0,"Benefits paid to members Total":0},"Salaries":{"value":38128,"Current officers":16727,"Disqualified persons":0,"Other salaries and wages":12147,"Pension plan contributions":0,"Other employee benefits":6491,"Payroll taxes":2763},"Other expenses":{"value":192705,"Management services":61939,"Legal":0,"Accounting":4500,"Lobbying services":0,"Investment management fees":0,"Other services":6482,"Advertising":1772,"Office expenses":9220,"Information technology":14393,"Royalties":0,"Occupancy":0,"Travel":0,"Conferences and meetings":43059,"Interest":0,"Payments to affiliates":0,"Depreciation and depletion":0,"Insurance":2256,"Travel entertainment public officials":0,"Travel entertainment payments":0,"Printing, publications, postage":0,"Itemized Expenses":{"value":49084,"CONTRACTED SERVICES":40800,"DEVELOPMENT EXPENSES":5473,"TELEPHONE EXPENSE":2661,"STATE FILING FEE":150},"All other expenses":0},"Functional Expenses":{"value":null,"Program Service Expenses":241773,"Management And General Expenses":25525,"Fundraising Expenses":28535}},"Assets":{"value":32342,"Non-interest bearing cash":30719,"Savings and temp cash investments":0,"Pledges and grants receivable":0,"Accounts receivable":0,"Receivables from officers":0,"Receivables from disqual persons":0,"Other net note and loans":0,"Inventories for sale or use":0,"Prepaid expenses deferred charges":1623,"Land, building, equipment":0,"Investments publicly traded":0,"Investments other":0,"Investments program related":0,"Intangible assets":0,"Other assets":0},"Liabilities":{"value":8154,"Sum of Total Liabilities":0,"Accounts payable, accrued":8154,"Grants payable":0,"Deferred, revenue":0,"Tax exempt bond liabilities":0,"Escrow account liability":0,"Loans from officers, directors":0,"Secured mortgages and notes payable":0,"Unsecured notes loans payable":0,"Other liabilities":0},"Fund balance":{"value":24188,"Net assets without donor restriction":20670,"Net assets with donor restriction":3518,"Unrestricted net assets":0,"Temporarily restricted net assets":0,"Permanently restricted net assets":0},"Ratings":{"Program Expense Ratio":{"score":0.8172617659287503,"percentile":0.6475469858941619},"Fundraising Efficiency":{"score":8.892377781671632,"percentile":0.3631337263836205},"Operating Margin":{"score":-0.1261977364351709,"percentile":0.1991984802755591},"Liabilities to Assets Ratio":{"score":0.25211798899264115,"percentile":0.22341077096781065},"Operating Reserve Ratio":{"score":0.10932519360585195,"percentile":0.0724539681532434},"Officer Compensation Ratio":{"score":0.048753857750825635,"percentile":0.7629710087240976},"Program Expense Growth":{"score":-0.005318654762793364,"percentile":0.30310813786791957},"Revenue Growth":{"score":0.013150836984812512,"percentile":0.43025954890055607},"Asset Growth":{"score":-0.0369748361117601,"percentile":0.1935602707953035},"Independent Voting Board Pct":{"score":1.0,"percentile":0.9933392423419786},"Governance Policy Score":{"score":6.0,"percentile":1.0},"Overall Score":{"score":0.4749650167480342,"percentile":0.26321343785066065}},"source_xml":"202013219349318906_public.xml"},{"Organization":{"value":null,"Person":["KRISTI SCHMITT BURR","WILLIAM GINN","KATHLYN ROTH","MICHAEL RAINEN","BRYANT BRADLEY","JULIE BRENEISER","ALAN ROTH"],"Title":["EXECUTIVE DI","PRESIDENT","SECRETARY","TRUSTEE","TRUSTEE","TRUSTEE","TRUSTEE"],"Hours":[40.0,10.0,2.0,2.0,2.0,2.0,2.0],"Total Compensation":[12339,0,0,0,0,0,0],"Direct compensation":[12339,0,0,0,0,0,0],"Other compensation":[0,0,0,0,0,0,0]},"Basic":{"value":null,"mission":"The mission of the bccns life support network is to: focus on the early diagnosis and treatment of children evidencing an initial onset of bccns; develop information about the medical conditions and disorders experienced by those living with bccns; share this information with clinics and healthcare providers treating bccns patients, and other similarly affected populations; engage affected individuals and their families, caregivers, colleagues, and schools in creative learning opportunities to effect an optimum quality of life and attain maximum personal potentials through informed communication; strengthen the capacity of patients and their families to manage their disease; and establish and foster a network of medical professionals actively engaged in advancing the welfare of the bccns patient community.","year":2014,"name":"BASAL CELL CARCINOMA NEVUS SYNDROME LIFE SUPPORT NETWORK","phone":4408340011,"website":"WWW.BCCNS.ORG","type":"990","affiliation":null,"foreign_countries":null,"principal_officer":"KRISTI SCHMITT BURR","year_formation":2000,"state_legal_domicile":"OH","total_volunteers":65,"tax_period_begin":"2014-01-01T00:00:00","tax_period_end":"2014-12-31T00:00:00","address":"P O BOX 321, BURTON, OH, 44021, USA","city":"BURTON","state":"OH","country":"USA","zip_code":44021},"Governance":{"value":null,"501c3 determination":true,"501c determination":false,"Number of voting members":7,"Number of independent voting members":6,"Number of employees total":0,"Total Gross UBI":0,"Net unrelated business taxable income":null,"Number of employees":0,"Prohibited tax shelter transactions":true,"Taxable party notification":true,"Funds to pay premiums":true,"Premiums Paid":true,"Family or business relationship":true,"Delegation of management duties":true,"Conflict of interest policy":true,"Whistle blower policy":true,"Compensation process for CEO":true,"Compensation process for other employees":true,"Changes to organizing documents":true,"Material diversion or misuse":true,"Members or stockholders":true,"Election of board members":true,"Decisions subject to approval":true,"Minutes of governing body":true,"Local chapters":true,"Form 990 provided to governing body":true,"Document retention policy":true,"Investment in joint venture":true,"Independent audit financial statements":true,"Consolidated audit financial statements":true,"Accountant compile or review":true,"Political activities":true,"Donor advised funds":true,"Conservation easements":true,"Collections of art":true,"School":true,"Hospital":true,"Foreign activities":true,"Foreign office":true,"Gaming":true,"Fundraising activities":true,"Professional fundraising":true,"Loan to officer or DQP":true,"Grant to related person":true,"Business relationship through family member":true,"Business relationship with organization":true},"Revenues":{"value":168049,"Contributions":{"value":168035,"Other contributions":166207,"Contributions from gifts and grants":0,"Fundraising revenue":1828,"Dues":0,"Campaigns":0,"Grant revenue":0,"Related organizations":0},"Program revenue":{"value":0,"Total revenue":0,"Total other revenue":0,"Unrelated business revenue":0},"Investment income":{"value":14,"Investment income total":14,"Net investment gain":0,"Income from invest bond proceeds":0},"Other revenues":{"value":0,"Other total":0,"Royalties revenue":0,"Net rental income":0,"Net income from fundraising events":0,"Net income from gaming":0,"Net income":0,"Gross profit from sales of inventory":0,"Gain from sale of assets":0}},"Expenses":{"value":190981,"Grant expense":{"value":0,"Grants to domestic orgs":0,"Grants to domestic individuals":0,"Grants and similar":0,"Foreign grants":0},"Total professional fundraising expense":{"value":0,"Fundraising professional":0,"Fees to independent contractors":0},"Benefits paid to members":{"value":0,"Benefits paid to members Total":0},"Salaries":{"value":35312,"Current officers":12339,"Disqualified persons":0,"Other salaries and wages":22973,"Pension plan contributions":0,"Other employee benefits":0,"Payroll taxes":0},"Other expenses":{"value":155669,"Management services":0,"Legal":6200,"Accounting":1600,"Lobbying services":0,"Investment management fees":0,"Other services":0,"Advertising":5625,"Office expenses":19418,"Information technology":1066,"Royalties":0,"Occupancy":12336,"Travel":1575,"Conferences and meetings":36480,"Interest":0,"Payments to affiliates":0,"Depreciation and depletion":2686,"Insurance":2037,"Travel entertainment public officials":0,"Travel entertainment payments":0,"Printing, publications, postage":0,"Itemized Expenses":{"value":63761,"CONTRACTED SERVICES":55354,"FUNDRAISING EXPENSES":4616,"CAMP FUND":3000,"RESEARCH AND TRIALS":791},"All other expenses":2885},"Functional Expenses":{"value":null,"Program Service Expenses":171407,"Management And General Expenses":12979,"Fundraising Expenses":6595}},"Assets":{"value":33137,"Non-interest bearing cash":302,"Savings and temp cash investments":6028,"Pledges and grants receivable":24760,"Accounts receivable":0,"Receivables from officers":0,"Receivables from disqual persons":0,"Other net note and loans":0,"Inventories for sale or use":0,"Prepaid expenses deferred charges":0,"Land, building, equipment":1707,"Investments publicly traded":0,"Investments other":0,"Investments program related":0,"Intangible assets":0,"Other assets":340},"Liabilities":{"value":11178,"Sum of Total Liabilities":0,"Accounts payable, accrued":11178,"Grants payable":0,"Deferred, revenue":0,"Tax exempt bond liabilities":0,"Escrow account liability":0,"Loans from officers, directors":0,"Secured mortgages and notes payable":0,"Unsecured notes loans payable":0,"Other liabilities":0},"Fund balance":{"value":21959,"Net assets without donor restriction":0,"Net assets with donor restriction":0,"Unrestricted net assets":21959,"Temporarily restricted net assets":0,"Permanently restricted net assets":0},"Ratings":{"Program Expense Ratio":{"score":0.8975081290809034,"percentile":0.7665018568793149},"Fundraising Efficiency":{"score":25.47915087187263,"percentile":0.6559408293226651},"Operating Margin":{"score":-0.13646019910859333,"percentile":0.19098763134902447},"Liabilities to Assets Ratio":{"score":0.3373268551769925,"percentile":0.18681163588334293},"Operating Reserve Ratio":{"score":0.17350940669490683,"percentile":0.10283940270709355},"Officer Compensation Ratio":{"score":0.06460852126651342,"percentile":0.6884120364514221},"Program Expense Growth":{"score":null,"percentile":null},"Revenue Growth":{"score":null,"percentile":null},"Asset Growth":{"score":null,"percentile":null},"Independent Voting Board Pct":{"score":0.8571428571428571,"percentile":0.21680981203217933},"Governance Policy Score":{"score":6.0,"percentile":1.0},"Overall Score":{"score":0.5194123798036291,"percentile":0.37192371064376467}},"source_xml":"201511599349300231_public.xml"},{"Organization":{"value":null,"Person":["STACY BISSELL","TAYLOR HODGE","BETH SPIEGEL","RONI RUBENSTEIN","DR JIM SWIFT","JENNI WERKMEISTER","KEVIN GULLATT","MICHAEL RAINEN","SAMUEL BRENEISER","DR ELENA HAWRYLUK","ALIX ALDERMAN","JULIA BRENEISER","MEREDITH WEISS"],"Title":["DIRECTOR","VICE PRESIDENT","TREASURER","SECRETARY","DIRECTOR","DIRECTOR ROLLED OFF BOARD IN JUNE","PRESIDENT STARTING IN MARCH","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR JOINED BOARD IN SEP.","EXECUTIVE DIRECTOR","EXECUTIVE DIRECTOR"],"Hours":[2.0,2.5,1.5,2.0,0.5,1.0,3.0,1.5,0.5,2.0,1.0,32.0,32.0],"Total Compensation":[0,0,0,0,0,0,0,0,0,0,0,92129,41136],"Direct compensation":[0,0,0,0,0,0,0,0,0,0,0,84517,41136],"Other compensation":[0,0,0,0,0,0,0,0,0,0,0,7612,0]},"Basic":{"value":null,"mission":"To thoughtfully support, comprehensively educate, and aggressively seek the best treatments and a cure for those affected by gorlin syndrome.","year":2024,"name":"GORLIN SYNDROME ALLIANCE","phone":2676896443,"website":"HTTPS://GORLINSYNDROME.ORG/","type":"990","affiliation":null,"foreign_countries":null,"principal_officer":"MEREDITH WEISS","year_formation":2000,"state_legal_domicile":"PA","total_volunteers":29,"tax_period_begin":"2024-01-01T00:00:00","tax_period_end":"2024-12-31T00:00:00","address":"3005 S LAMAR BLVD D 109 264, AUSTIN, TX, 78704, USA","city":"AUSTIN","state":"TX","country":"USA","zip_code":78704},"Governance":{"value":null,"501c3 determination":true,"501c determination":false,"Number of voting members":10,"Number of independent voting members":10,"Number of employees total":3,"Total Gross UBI":0,"Net unrelated business taxable income":0,"Number of employees":3,"Prohibited tax shelter transactions":true,"Taxable party notification":true,"Funds to pay premiums":false,"Premiums Paid":false,"Family or business relationship":true,"Delegation of management duties":true,"Conflict of interest policy":true,"Whistle blower policy":true,"Compensation process for CEO":true,"Compensation process for other employees":true,"Changes to organizing documents":true,"Material diversion or misuse":true,"Members or stockholders":true,"Election of board members":true,"Decisions subject to approval":true,"Minutes of governing body":true,"Local chapters":true,"Form 990 provided to governing body":true,"Document retention policy":true,"Investment in joint venture":true,"Independent audit financial statements":true,"Consolidated audit financial statements":true,"Accountant compile or review":true,"Political activities":true,"Donor advised funds":true,"Conservation easements":true,"Collections of art":true,"School":true,"Hospital":true,"Foreign activities":true,"Foreign office":true,"Gaming":true,"Fundraising activities":true,"Professional fundraising":true,"Loan to officer or DQP":true,"Grant to related person":true,"Business relationship through family member":true,"Business relationship with organization":true},"Revenues":{"value":489524,"Contributions":{"value":480996,"Other contributions":462996,"Contributions from gifts and grants":0,"Fundraising revenue":18000,"Dues":0,"Campaigns":0,"Grant revenue":0,"Related organizations":0},"Program revenue":{"value":0,"Total revenue":0,"Total other revenue":0,"Unrelated business revenue":0},"Investment income":{"value":10499,"Investment income total":10499,"Net investment gain":0,"Income from invest bond proceeds":0},"Other revenues":{"value":-1971,"Other total":0,"Royalties revenue":0,"Net rental income":0,"Net income from fundraising events":-1971,"Net income from gaming":0,"Net income":0,"Gross profit from sales of inventory":0,"Gain from sale of assets":0}},"Expenses":{"value":430424,"Grant expense":{"value":0,"Grants to domestic orgs":0,"Grants to domestic individuals":0,"Grants and similar":0,"Foreign grants":0},"Total professional fundraising expense":{"value":0,"Fundraising professional":0,"Fees to independent contractors":0},"Benefits paid to members":{"value":0,"Benefits paid to members Total":0},"Salaries":{"value":322924,"Current officers":133265,"Disqualified persons":0,"Other salaries and wages":174855,"Pension plan contributions":0,"Other employee benefits":943,"Payroll taxes":13861},"Other expenses":{"value":107500,"Management services":0,"Legal":0,"Accounting":23308,"Lobbying services":0,"Investment management fees":0,"Other services":0,"Advertising":0,"Office expenses":3503,"Information technology":25611,"Royalties":0,"Occupancy":0,"Travel":12557,"Conferences and meetings":1500,"Interest":0,"Payments to affiliates":0,"Depreciation and depletion":592,"Insurance":1857,"Travel entertainment public officials":0,"Travel entertainment payments":0,"Printing, publications, postage":0,"Itemized Expenses":{"value":38572,"RESEARCH EXPENSES":34233,"MISCELLANEOUS EXPENSES":4339},"All other expenses":0},"Functional Expenses":{"value":null,"Program Service Expenses":279283,"Management And General Expenses":70574,"Fundraising Expenses":80567}},"Assets":{"value":670207,"Non-interest bearing cash":427649,"Savings and temp cash investments":242295,"Pledges and grants receivable":0,"Accounts receivable":0,"Receivables from officers":0,"Receivables from disqual persons":0,"Other net note and loans":0,"Inventories for sale or use":0,"Prepaid expenses deferred charges":0,"Land, building, equipment":263,"Investments publicly traded":0,"Investments other":0,"Investments program related":0,"Intangible assets":0,"Other assets":0},"Liabilities":{"value":275536,"Sum of Total Liabilities":0,"Accounts payable, accrued":500,"Grants payable":0,"Deferred, revenue":275036,"Tax exempt bond liabilities":0,"Escrow account liability":0,"Loans from officers, directors":0,"Secured mortgages and notes payable":0,"Unsecured notes loans payable":0,"Other liabilities":0},"Fund balance":{"value":394671,"Net assets without donor restriction":183103,"Net assets with donor restriction":211568,"Unrestricted net assets":0,"Temporarily restricted net assets":0,"Permanently restricted net assets":0},"Ratings":{"Program Expense Ratio":{"score":0.6488555470884523,"percentile":0.5120078867021662},"Fundraising Efficiency":{"score":5.970136656447429,"percentile":0.24821308049082322},"Operating Margin":{"score":0.12072952500796692,"percentile":0.6569164194356305},"Liabilities to Assets Ratio":{"score":0.4111207432927439,"percentile":0.1611153034988275},"Operating Reserve Ratio":{"score":1.557085571436537,"percentile":0.5487580581372156},"Officer Compensation Ratio":{"score":0.30961331152537963,"percentile":0.17821178219596426},"Program Expense Growth":{"score":0.07518136106989728,"percentile":0.614408642323357},"Revenue Growth":{"score":0.07885891332484239,"percentile":0.7091527614113803},"Asset Growth":{"score":0.20133133050644708,"percentile":0.8481437423233591},"Independent Voting Board Pct":{"score":1.0,"percentile":0.9933392423419786},"Governance Policy Score":{"score":6.0,"percentile":1.0},"Overall Score":{"score":0.5758790190569214,"percentile":0.5343138715574387}},"source_xml":"202523099349303027_public.xml"},{"Organization":{"value":null,"Person":["BRYANT BRADLEY","ABBY DOCKEMEYER","WILLIAM GINN","LISA TACK","JENNIFER WERKMEISTER","REGAN BRANDT","JULIE BRENEISER","KATHY RAINEN","JOYCE RANCOURT"],"Title":["EMERITUS TRUSTEE (NON-VOTING)","TRUSTEE","EMERITUS TRUSTEE (NON-VOTING)","TRUSTEE","TRUSTEE","TREASURER","PRESIDENT, TRUSTEE","VICE PRESIDENT","SECRETARY"],"Hours":[2.0,2.0,2.0,2.0,2.0,2.0,2.0,2.0,2.0],"Total Compensation":[0,0,0,0,0,0,0,0,0],"Direct compensation":[0,0,0,0,0,0,0,0,0],"Other compensation":[0,0,0,0,0,0,0,0,0]},"Basic":{"value":null,"mission":"The bccns alliance's primary exempt purpose is to thoughtfully support, comprehensively educate, and aggressively seek treatments and a cure for basal cell cancer nevus syndrome, its manifestations and sporadic basal cell cancers, and to empower those with basal cell cancer nevus syndrome to live rich, full, happy lives.","year":2017,"name":"BASAL CELL CARCINOMA NEVUS SYNDROME LIFE SUPPORT NETWORK","phone":4408340011,"website":"WWW.BCCNS.ORG","type":"990EZ","affiliation":null,"foreign_countries":null,"principal_officer":null,"year_formation":null,"state_legal_domicile":null,"total_volunteers":null,"tax_period_begin":"2017-01-01T00:00:00","tax_period_end":"2017-12-31T00:00:00","address":"1586 SUMNEYTOWN PIKE NO 1322, KULPSVILLE, PA, 19443, USA","city":"KULPSVILLE","state":"PA","country":"USA","zip_code":19443},"Governance":{"value":null,"501c3 determination":true,"501c determination":false,"Number of voting members":null,"Number of independent voting members":null,"Number of employees total":null,"Total Gross UBI":null,"Net unrelated business taxable income":null,"Number of employees":null,"Prohibited tax shelter transactions":false,"Taxable party notification":false,"Funds to pay premiums":false,"Premiums Paid":false,"Family or business relationship":false,"Delegation of management duties":false,"Conflict of interest policy":false,"Whistle blower policy":false,"Compensation process for CEO":false,"Compensation process for other employees":false,"Changes to organizing documents":false,"Material diversion or misuse":false,"Members or stockholders":false,"Election of board members":false,"Decisions subject to approval":false,"Minutes of governing body":false,"Local chapters":false,"Form 990 provided to governing body":false,"Document retention policy":false,"Investment in joint venture":false,"Independent audit financial statements":false,"Consolidated audit financial statements":false,"Accountant compile or review":false,"Political activities":false,"Donor advised funds":false,"Conservation easements":false,"Collections of art":false,"School":false,"Hospital":false,"Foreign activities":false,"Foreign office":false,"Gaming":false,"Fundraising activities":false,"Professional fundraising":false,"Loan to officer or DQP":false,"Grant to related person":false,"Business relationship through family member":false,"Business relationship with organization":false},"Revenues":{"value":194027,"Contributions":{"value":193977,"Other contributions":0,"Contributions from gifts and grants":193977,"Fundraising revenue":0,"Dues":0,"Campaigns":0,"Grant revenue":0,"Related organizations":0},"Program revenue":{"value":0,"Total revenue":0,"Total other revenue":0,"Unrelated business revenue":0},"Investment income":{"value":50,"Investment income total":50,"Net investment gain":0,"Income from invest bond proceeds":0},"Other revenues":{"value":0,"Other total":0,"Royalties revenue":0,"Net rental income":0,"Net income from fundraising events":0,"Net income from gaming":0,"Net income":0,"Gross profit from sales of inventory":0,"Gain from sale of assets":0}},"Expenses":{"value":297802,"Grant expense":{"value":0,"Grants to domestic orgs":0,"Grants to domestic individuals":0,"Grants and similar":0,"Foreign grants":0},"Total professional fundraising expense":{"value":67121,"Fundraising professional":0,"Fees to independent contractors":67121},"Benefits paid to members":{"value":0,"Benefits paid to members Total":0},"Salaries":{"value":51990,"Current officers":51990,"Disqualified persons":0,"Other salaries and wages":0,"Pension plan contributions":0,"Other employee benefits":0,"Payroll taxes":0},"Other expenses":{"value":178691,"Management services":0,"Legal":0,"Accounting":0,"Lobbying services":0,"Investment management fees":0,"Other services":0,"Advertising":0,"Office expenses":5850,"Information technology":0,"Royalties":0,"Occupancy":0,"Travel":0,"Conferences and meetings":0,"Interest":0,"Payments to affiliates":0,"Depreciation and depletion":0,"Insurance":0,"Travel entertainment public officials":0,"Travel entertainment payments":0,"Printing, publications, postage":7840,"Itemized Expenses":165001,"All other expenses":0},"Functional Expenses":{"value":null,"Program Service Expenses":0,"Management And General Expenses":0,"Fundraising Expenses":0}},"Assets":{"value":77350,"Non-interest bearing cash":0,"Savings and temp cash investments":53233,"Pledges and grants receivable":0,"Accounts receivable":0,"Receivables from officers":0,"Receivables from disqual persons":0,"Other net note and loans":0,"Inventories for sale or use":0,"Prepaid expenses deferred charges":0,"Land, building, equipment":0,"Investments publicly traded":0,"Investments other":0,"Investments program related":0,"Intangible assets":0,"Other assets":24117},"Liabilities":{"value":59883,"Sum of Total Liabilities":59883,"Accounts payable, accrued":0,"Grants payable":0,"Deferred, revenue":0,"Tax exempt bond liabilities":0,"Escrow account liability":0,"Loans from officers, directors":0,"Secured mortgages and notes payable":0,"Unsecured notes loans payable":0,"Other liabilities":0},"Fund balance":{"value":17467,"Net assets without donor restriction":0,"Net assets with donor restriction":0,"Unrestricted net assets":0,"Temporarily restricted net assets":0,"Permanently restricted net assets":0},"Ratings":{"Program Expense Ratio":{"score":0.0,"percentile":0.4421253816471043},"Fundraising Efficiency":{"score":null,"percentile":null},"Operating Margin":{"score":-0.534848242770336,"percentile":0.07029255429181326},"Liabilities to Assets Ratio":{"score":0.7741822882999354,"percentile":0.08252667423754532},"Operating Reserve Ratio":{"score":0.2597363348802224,"percentile":0.14380431582097866},"Officer Compensation Ratio":{"score":null,"percentile":null},"Program Expense Growth":{"score":-0.33560551300689534,"percentile":0.055914690732912824},"Revenue Growth":{"score":-0.03650710953508722,"percentile":0.25033799002254015},"Asset Growth":{"score":0.14355795295168336,"percentile":0.7717228786257365},"Independent Voting Board Pct":{"score":null,"percentile":null},"Governance Policy Score":{"score":0.0,"percentile":0.3578721869904765},"Overall Score":{"score":0.27498723027484545,"percentile":0.00943607719648675}},"source_xml":"201813189349201961_public.xml"},{"Organization":{"value":null,"Person":["MEREDITH WEISS","STACY BISSELL","TAYLOR HODGE","BETH SPIEGEL","RONI RUBENSTEIN","DR JIM SWIFT","JENNI WERKMEISTER","KEVIN GULLATT","MICHAEL RAINEN","SAMUEL BRENEISER","DR ELENA HAWRYLUK","JULIA BRENEISER"],"Title":["PRESIDENT","VICE PRESIDENT","VICE PRESIDENT","TREASURER","SECRETARY","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","EXECUTIVE DIRECTOR"],"Hours":[4.0,2.0,2.0,1.0,2.0,0.5,1.0,1.0,0.5,0.5,2.0,32.0],"Total Compensation":[0,0,0,0,0,0,0,0,0,0,0,89343],"Direct compensation":[0,0,0,0,0,0,0,0,0,0,0,74996],"Other compensation":[0,0,0,0,0,0,0,0,0,0,0,14347]},"Basic":{"value":null,"mission":"To thoughtfully support, comprehensively educate, and aggressively seek the best treatments and a cure for those affected by gorlin syndrome.","year":2023,"name":"GORLIN SYNDROME ALLIANCE","phone":2676896443,"website":"HTTPS://GORLINSYNDROME.ORG/","type":"990","affiliation":null,"foreign_countries":null,"principal_officer":"MEREDITH WEISS","year_formation":2000,"state_legal_domicile":"PA","total_volunteers":12,"tax_period_begin":"2023-01-01T00:00:00","tax_period_end":"2023-12-31T00:00:00","address":"3005 S LAMAR BLVD D 109 264, AUSTIN, TX, 78704, USA","city":"AUSTIN","state":"TX","country":"USA","zip_code":78704},"Governance":{"value":null,"501c3 determination":true,"501c determination":false,"Number of voting members":10,"Number of independent voting members":10,"Number of employees total":3,"Total Gross UBI":0,"Net unrelated business taxable income":0,"Number of employees":3,"Prohibited tax shelter transactions":true,"Taxable party notification":true,"Funds to pay premiums":true,"Premiums Paid":true,"Family or business relationship":true,"Delegation of management duties":true,"Conflict of interest policy":true,"Whistle blower policy":true,"Compensation process for CEO":true,"Compensation process for other employees":true,"Changes to organizing documents":true,"Material diversion or misuse":true,"Members or stockholders":true,"Election of board members":true,"Decisions subject to approval":true,"Minutes of governing body":true,"Local chapters":true,"Form 990 provided to governing body":true,"Document retention policy":true,"Investment in joint venture":true,"Independent audit financial statements":true,"Consolidated audit financial statements":true,"Accountant compile or review":true,"Political activities":true,"Donor advised funds":true,"Conservation easements":true,"Collections of art":true,"School":true,"Hospital":true,"Foreign activities":true,"Foreign office":true,"Gaming":true,"Fundraising activities":true,"Professional fundraising":true,"Loan to officer or DQP":true,"Grant to related person":true,"Business relationship through family member":true,"Business relationship with organization":true},"Revenues":{"value":307070,"Contributions":{"value":293741,"Other contributions":270310,"Contributions from gifts and grants":0,"Fundraising revenue":23081,"Dues":0,"Campaigns":350,"Grant revenue":0,"Related organizations":0},"Program revenue":{"value":12056,"Total revenue":12056,"Total other revenue":0,"Unrelated business revenue":0},"Investment income":{"value":3252,"Investment income total":3252,"Net investment gain":0,"Income from invest bond proceeds":0},"Other revenues":{"value":-1979,"Other total":0,"Royalties revenue":0,"Net rental income":0,"Net income from fundraising events":-1979,"Net income from gaming":0,"Net income":0,"Gross profit from sales of inventory":0,"Gain from sale of assets":0}},"Expenses":{"value":359081,"Grant expense":{"value":0,"Grants to domestic orgs":0,"Grants to domestic individuals":0,"Grants and similar":0,"Foreign grants":0},"Total professional fundraising expense":{"value":0,"Fundraising professional":0,"Fees to independent contractors":0},"Benefits paid to members":{"value":0,"Benefits paid to members Total":0},"Salaries":{"value":239275,"Current officers":89342,"Disqualified persons":140021,"Other salaries and wages":0,"Pension plan contributions":0,"Other employee benefits":633,"Payroll taxes":9279},"Other expenses":{"value":119806,"Management services":0,"Legal":0,"Accounting":0,"Lobbying services":0,"Investment management fees":0,"Other services":1859,"Advertising":0,"Office expenses":3716,"Information technology":13302,"Royalties":0,"Occupancy":0,"Travel":3851,"Conferences and meetings":67582,"Interest":0,"Payments to affiliates":0,"Depreciation and depletion":592,"Insurance":2557,"Travel entertainment public officials":0,"Travel entertainment payments":0,"Printing, publications, postage":0,"Itemized Expenses":{"value":26347,"RESEARCH EXPENSES":20000,"MISCELLANEOUS EXPENSES":6347},"All other expenses":0},"Functional Expenses":{"value":null,"Program Service Expenses":296996,"Management And General Expenses":33828,"Fundraising Expenses":28257}},"Assets":{"value":337186,"Non-interest bearing cash":13701,"Savings and temp cash investments":322630,"Pledges and grants receivable":0,"Accounts receivable":0,"Receivables from officers":0,"Receivables from disqual persons":0,"Other net note and loans":0,"Inventories for sale or use":0,"Prepaid expenses deferred charges":0,"Land, building, equipment":855,"Investments publicly traded":0,"Investments other":0,"Investments program related":0,"Intangible assets":0,"Other assets":0},"Liabilities":{"value":1615,"Sum of Total Liabilities":0,"Accounts payable, accrued":1615,"Grants payable":0,"Deferred, revenue":0,"Tax exempt bond liabilities":0,"Escrow account liability":0,"Loans from officers, directors":0,"Secured mortgages and notes payable":0,"Unsecured notes loans payable":0,"Other liabilities":0},"Fund balance":{"value":335571,"Net assets without donor restriction":28908,"Net assets with donor restriction":306663,"Unrestricted net assets":0,"Temporarily restricted net assets":0,"Permanently restricted net assets":0},"Ratings":{"Program Expense Ratio":{"score":0.8271002921346438,"percentile":0.660617442581747},"Fundraising Efficiency":{"score":10.395335669037761,"percentile":0.4111820598561632},"Operating Margin":{"score":-0.16937831764744196,"percentile":0.16837702242188657},"Liabilities to Assets Ratio":{"score":0.004789641325559187,"percentile":0.5307446090263883},"Operating Reserve Ratio":{"score":0.9390248996744467,"percentile":0.4060510979720342},"Officer Compensation Ratio":{"score":0.24881015703977655,"percentile":0.2425766050791508},"Program Expense Growth":{"score":0.07452566379540006,"percentile":0.6125637424475214},"Revenue Growth":{"score":0.07377524097574426,"percentile":0.6936837510859215},"Asset Growth":{"score":0.17955819082320967,"percentile":0.8235605483529198},"Independent Voting Board Pct":{"score":1.0,"percentile":0.9933392423419786},"Governance Policy Score":{"score":6.0,"percentile":1.0},"Overall Score":{"score":0.567960584311425,"percentile":0.5106698826869862}},"source_xml":"202403209349316615_public.xml"},{"Organization":{"value":null,"Person":["KRISTI SCHMITT BURR","WILLIAM GINN","REGAN BRANDT","MICHAEL RAINEN","BRYANT BRADLEY","JULIE BRENEISER","MEREDITH WEISS","KEVIN GULLATT","KATHY RAINEN"],"Title":["EXECUTIVE DIRECTOR","EMERITUS TRUSTEE","TRUSTEE","TRUSTEE","EMERITUS TRUSTEE","PRESIDENT, TRUSTEE","TRUSTEE","TRUSTEE","TRUSTEE"],"Hours":[40.0,2.0,2.0,2.0,2.0,2.0,2.0,2.0,2.0],"Total Compensation":[34632,0,0,0,0,0,0,0,0],"Direct compensation":[34632,0,0,0,0,0,0,0,0],"Other compensation":[0,0,0,0,0,0,0,0,0]},"Basic":{"value":null,"mission":"The mission of the bccns life support network is to:- focus on the early diagnosis and treatment of children evidencing an initial onset of bccns;- develop information about the medical conditions and disorders experienced by those living with bccns;- share this information with clinics and healthcare providers treating bccns patients, and other similarly affected populations;- engage affected individuals and their families, caregivers, colleagues, and schools in creative learning opportunities to effect an optimum quality of life and attain maximum personal potentials through informed communication;- strengthen the capacity of patients and their families to manage their disease; and- establish and foster a network of medical professionals actively engaged in advancing the welfare of the bccns community.","year":2015,"name":"BASAL CELL CARCINOMA NEVUS SYNDROME LIFE SUPPORT NETWORK","phone":4408340011,"website":"WWW.BCCNS.ORG","type":"990","affiliation":null,"foreign_countries":null,"principal_officer":"KRISTI SCHMITT BURR","year_formation":2000,"state_legal_domicile":"OH","total_volunteers":0,"tax_period_begin":"2015-01-01T00:00:00","tax_period_end":"2015-12-31T00:00:00","address":"PO BOX 321, BURTON, OH, 44021, USA","city":"BURTON","state":"OH","country":"USA","zip_code":44021},"Governance":{"value":null,"501c3 determination":true,"501c determination":false,"Number of voting members":8,"Number of independent voting members":6,"Number of employees total":0,"Total Gross UBI":0,"Net unrelated business taxable income":0,"Number of employees":0,"Prohibited tax shelter transactions":true,"Taxable party notification":true,"Funds to pay premiums":true,"Premiums Paid":true,"Family or business relationship":true,"Delegation of management duties":true,"Conflict of interest policy":true,"Whistle blower policy":true,"Compensation process for CEO":true,"Compensation process for other employees":true,"Changes to organizing documents":true,"Material diversion or misuse":true,"Members or stockholders":true,"Election of board members":true,"Decisions subject to approval":true,"Minutes of governing body":true,"Local chapters":true,"Form 990 provided to governing body":true,"Document retention policy":true,"Investment in joint venture":true,"Independent audit financial statements":true,"Consolidated audit financial statements":true,"Accountant compile or review":true,"Political activities":true,"Donor advised funds":true,"Conservation easements":true,"Collections of art":true,"School":true,"Hospital":true,"Foreign activities":true,"Foreign office":true,"Gaming":true,"Fundraising activities":true,"Professional fundraising":true,"Loan to officer or DQP":true,"Grant to related person":true,"Business relationship through family member":true,"Business relationship with organization":true},"Revenues":{"value":248150,"Contributions":{"value":248142,"Other contributions":248142,"Contributions from gifts and grants":0,"Fundraising revenue":0,"Dues":0,"Campaigns":0,"Grant revenue":0,"Related organizations":0},"Program revenue":{"value":0,"Total revenue":0,"Total other revenue":0,"Unrelated business revenue":0},"Investment income":{"value":8,"Investment income total":8,"Net investment gain":0,"Income from invest bond proceeds":0},"Other revenues":{"value":0,"Other total":0,"Royalties revenue":0,"Net rental income":0,"Net income from fundraising events":0,"Net income from gaming":0,"Net income":0,"Gross profit from sales of inventory":0,"Gain from sale of assets":0}},"Expenses":{"value":173033,"Grant expense":{"value":29353,"Grants to domestic orgs":29353,"Grants to domestic individuals":0,"Grants and similar":0,"Foreign grants":0},"Total professional fundraising expense":{"value":0,"Fundraising professional":0,"Fees to independent contractors":0},"Benefits paid to members":{"value":3747,"Benefits paid to members Total":3747},"Salaries":{"value":47700,"Current officers":34632,"Disqualified persons":0,"Other salaries and wages":9485,"Pension plan contributions":0,"Other employee benefits":0,"Payroll taxes":3583},"Other expenses":{"value":92233,"Management services":0,"Legal":238,"Accounting":1943,"Lobbying services":0,"Investment management fees":0,"Other services":0,"Advertising":0,"Office expenses":16305,"Information technology":1182,"Royalties":0,"Occupancy":4900,"Travel":7735,"Conferences and meetings":11917,"Interest":0,"Payments to affiliates":0,"Depreciation and depletion":5996,"Insurance":2243,"Travel entertainment public officials":0,"Travel entertainment payments":0,"Printing, publications, postage":0,"Itemized Expenses":{"value":39774,"CONTRACTED SERVICES":26296,"DEVELOPMENT EXPENSES":12155,"OTHER EXPENSES":1323},"All other expenses":0},"Functional Expenses":{"value":null,"Program Service Expenses":163136,"Management And General Expenses":9897,"Fundraising Expenses":0}},"Assets":{"value":101332,"Non-interest bearing cash":793,"Savings and temp cash investments":41355,"Pledges and grants receivable":4155,"Accounts receivable":0,"Receivables from officers":0,"Receivables from disqual persons":0,"Other net note and loans":0,"Inventories for sale or use":0,"Prepaid expenses deferred charges":0,"Land, building, equipment":40110,"Investments publicly traded":0,"Investments other":0,"Investments program related":0,"Intangible assets":9583,"Other assets":5336},"Liabilities":{"value":4256,"Sum of Total Liabilities":0,"Accounts payable, accrued":4256,"Grants payable":0,"Deferred, revenue":0,"Tax exempt bond liabilities":0,"Escrow account liability":0,"Loans from officers, directors":0,"Secured mortgages and notes payable":0,"Unsecured notes loans payable":0,"Other liabilities":0},"Fund balance":{"value":97076,"Net assets without donor restriction":0,"Net assets with donor restriction":0,"Unrestricted net assets":97076,"Temporarily restricted net assets":0,"Permanently restricted net assets":0},"Ratings":{"Program Expense Ratio":{"score":0.94280281795958,"percentile":0.8350229189659478},"Fundraising Efficiency":{"score":null,"percentile":null},"Operating Margin":{"score":0.3027080394922426,"percentile":0.8369669179500024},"Liabilities to Assets Ratio":{"score":0.04200055263885051,"percentile":0.4028610792926636},"Operating Reserve Ratio":{"score":0.5856223957279825,"percentile":0.28565299431577856},"Officer Compensation Ratio":{"score":0.20014679280830824,"percentile":0.3137798546260477},"Program Expense Growth":{"score":-0.0329157208973263,"percentile":0.22961934051470392},"Revenue Growth":{"score":-0.026001082731322886,"percentile":0.2783878722824664},"Asset Growth":{"score":0.1244810133558687,"percentile":0.737127144097541},"Independent Voting Board Pct":{"score":0.75,"percentile":0.17719847849878714},"Governance Policy Score":{"score":6.0,"percentile":1.0},"Overall Score":{"score":0.5876763093106351,"percentile":0.5691644020068063}},"source_xml":"201632289349301863_public.xml"},{"Organization":{"value":null,"Person":["MICHAEL RAINEN","WILLIAM GINN","BRYANT BRADLEY","JULIE BRENEISER","ALAN ROTH","ELLEN MCCABE","KATHLYN ROTH","RIC JONES","KRISTI SCHMITT BURR"],"Title":["TRUSTEE","PRESIDENT","TRUSTEE","TRUSTEE","TRUSTEE","TREASURER","SECRETARY","TRUSTEE","EXECUTIVE DI"],"Hours":[2.0,10.0,2.0,2.0,2.0,2.0,2.0,2.0,40.0],"Total Compensation":[0,0,0,0,0,0,0,0,0],"Direct compensation":[0,0,0,0,0,0,0,0,0],"Other compensation":[0,0,0,0,0,0,0,0,0]},"Basic":{"value":null,"mission":"The mission of the bccns life support network is to: focus on the early diagnosis and treatment of children evidencing an initial onset of bccns; develop information about the medical conditions and disorders experienced by those living with bccns; share this information with clinics and healthcare providers treating bccns patients, and other similarly affected populations; engage affected individuals and their families, caregivers, colleagues, and schools in creative learning opportunities to effect an optimum quality of life and attain maximum personal potentials through informed communication; strengthen the capacity of patients and their families to manage their disease; and establish and foster a network of medical professionals actively engaged in advancing the welfare of the bccns patient community.","year":2013,"name":"BASAL CELL CARCINOMA NEVUS SYNDROME LIFE SUPPORT NETWORK","phone":4408340011,"website":"WWW.BCCNS.ORG","type":"990","affiliation":null,"foreign_countries":null,"principal_officer":"KRISTI SCHMITT BURR","year_formation":2000,"state_legal_domicile":"OH","total_volunteers":30,"tax_period_begin":"2013-01-01T00:00:00","tax_period_end":"2013-12-31T00:00:00","address":"P O BOX 321, BURTON, OH, 44021, USA","city":"BURTON","state":"OH","country":"USA","zip_code":44021},"Governance":{"value":null,"501c3 determination":true,"501c determination":false,"Number of voting members":8,"Number of independent voting members":8,"Number of employees total":0,"Total Gross UBI":0,"Net unrelated business taxable income":null,"Number of employees":0,"Prohibited tax shelter transactions":true,"Taxable party notification":true,"Funds to pay premiums":true,"Premiums Paid":true,"Family or business relationship":true,"Delegation of management duties":true,"Conflict of interest policy":true,"Whistle blower policy":true,"Compensation process for CEO":true,"Compensation process for other employees":true,"Changes to organizing documents":true,"Material diversion or misuse":true,"Members or stockholders":true,"Election of board members":true,"Decisions subject to approval":true,"Minutes of governing body":true,"Local chapters":true,"Form 990 provided to governing body":true,"Document retention policy":true,"Investment in joint venture":true,"Independent audit financial statements":true,"Consolidated audit financial statements":true,"Accountant compile or review":true,"Political activities":true,"Donor advised funds":true,"Conservation easements":true,"Collections of art":true,"School":true,"Hospital":true,"Foreign activities":true,"Foreign office":true,"Gaming":true,"Fundraising activities":true,"Professional fundraising":true,"Loan to officer or DQP":true,"Grant to related person":true,"Business relationship through family member":true,"Business relationship with organization":true},"Revenues":{"value":259869,"Contributions":{"value":259631,"Other contributions":259631,"Contributions from gifts and grants":0,"Fundraising revenue":0,"Dues":0,"Campaigns":0,"Grant revenue":0,"Related organizations":0},"Program revenue":{"value":0,"Total revenue":0,"Total other revenue":0,"Unrelated business revenue":0},"Investment income":{"value":14,"Investment income total":14,"Net investment gain":0,"Income from invest bond proceeds":0},"Other revenues":{"value":224,"Other total":224,"Royalties revenue":0,"Net rental income":0,"Net income from fundraising events":0,"Net income from gaming":0,"Net income":0,"Gross profit from sales of inventory":0,"Gain from sale of assets":0}},"Expenses":{"value":204989,"Grant expense":{"value":0,"Grants to domestic orgs":0,"Grants to domestic individuals":0,"Grants and similar":0,"Foreign grants":0},"Total professional fundraising expense":{"value":0,"Fundraising professional":0,"Fees to independent contractors":0},"Benefits paid to members":{"value":0,"Benefits paid to members Total":0},"Salaries":{"value":0,"Current officers":0,"Disqualified persons":0,"Other salaries and wages":0,"Pension plan contributions":0,"Other employee benefits":0,"Payroll taxes":0},"Other expenses":{"value":204989,"Management services":0,"Legal":0,"Accounting":2992,"Lobbying services":0,"Investment management fees":0,"Other services":13415,"Advertising":4924,"Office expenses":17760,"Information technology":663,"Royalties":0,"Occupancy":9057,"Travel":91,"Conferences and meetings":25966,"Interest":0,"Payments to affiliates":0,"Depreciation and depletion":4484,"Insurance":2032,"Travel entertainment public officials":0,"Travel entertainment payments":0,"Printing, publications, postage":0,"Itemized Expenses":{"value":120631,"CONTRACT SERVICES":116286,"RESEARCH AND TRIALS":1488,"EDUCATIONAL MATERIALS":1468,"VIDEO":1389},"All other expenses":2974},"Functional Expenses":{"value":null,"Program Service Expenses":174302,"Management And General Expenses":17132,"Fundraising Expenses":13555}},"Assets":{"value":83263,"Non-interest bearing cash":387,"Savings and temp cash investments":76430,"Pledges and grants receivable":387,"Accounts receivable":0,"Receivables from officers":0,"Receivables from disqual persons":0,"Other net note and loans":0,"Inventories for sale or use":0,"Prepaid expenses deferred charges":0,"Land, building, equipment":4393,"Investments publicly traded":0,"Investments other":0,"Investments program related":0,"Intangible assets":0,"Other assets":1666},"Liabilities":{"value":38372,"Sum of Total Liabilities":0,"Accounts payable, accrued":38372,"Grants payable":0,"Deferred, revenue":0,"Tax exempt bond liabilities":0,"Escrow account liability":0,"Loans from officers, directors":0,"Secured mortgages and notes payable":0,"Unsecured notes loans payable":0,"Other liabilities":0},"Fund balance":{"value":44891,"Net assets without donor restriction":0,"Net assets with donor restriction":0,"Unrestricted net assets":44891,"Temporarily restricted net assets":0,"Permanently restricted net assets":0},"Ratings":{"Program Expense Ratio":{"score":0.8502992843518433,"percentile":0.694022338942908},"Fundraising Efficiency":{"score":19.153891552932496,"percentile":0.5866875576638566},"Operating Margin":{"score":0.2111833269839804,"percentile":0.7672649871736056},"Liabilities to Assets Ratio":{"score":0.46085295989815406,"percentile":0.1461947731440286},"Operating Reserve Ratio":{"score":0.4061827707828225,"percentile":0.2107290665262267},"Officer Compensation Ratio":{"score":null,"percentile":null},"Program Expense Growth":{"score":null,"percentile":null},"Revenue Growth":{"score":null,"percentile":null},"Asset Growth":{"score":null,"percentile":null},"Independent Voting Board Pct":{"score":1.0,"percentile":0.9933392423419786},"Governance Policy Score":{"score":6.0,"percentile":1.0},"Overall Score":{"score":0.6731167048966733,"percentile":0.7960258244218493}},"source_xml":"201411839349300131_public.xml"},{"Organization":{"value":null,"Person":["MEREDITH WEISS","STACY BISSELL","BETH SPIEGEL","RONI RUBENSTEIN","DR ELENA HAWRYLUK","DR JIM SWIFT","JENNI WERKMEISTER","KEVIN GULLATT","MICHAEL RAINEN","SAMUEL BRENEISER","JULIA BRENEISER"],"Title":["PRESIDENT","VICE PRESIDENT","TREASURER","SECRETARY","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","EXECUTIVE DIRECTOR"],"Hours":[4.0,4.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,32.0],"Total Compensation":[0,0,0,0,0,0,0,0,0,0,94676],"Direct compensation":[0,0,0,0,0,0,0,0,0,0,74996],"Other compensation":[0,0,0,0,0,0,0,0,0,0,19680]},"Basic":{"value":null,"mission":"To thoughtfully support, comprehensively educate, and aggressively seek the best treatments and a cure for those affected by gorlin syndrome.","year":2022,"name":"GORLIN SYNDROME ALLIANCE","phone":2676896443,"website":"HTTPS://GORLINSYNDROME.ORG/","type":"990","affiliation":null,"foreign_countries":null,"principal_officer":"JULIA BRENEISER","year_formation":2000,"state_legal_domicile":"PA","total_volunteers":13,"tax_period_begin":"2022-01-01T00:00:00","tax_period_end":"2022-12-31T00:00:00","address":"PO BOX 4, READING, PA, 19607, USA","city":"READING","state":"PA","country":"USA","zip_code":19607},"Governance":{"value":null,"501c3 determination":true,"501c determination":false,"Number of voting members":10,"Number of independent voting members":10,"Number of employees total":3,"Total Gross UBI":0,"Net unrelated business taxable income":0,"Number of employees":3,"Prohibited tax shelter transactions":true,"Taxable party notification":true,"Funds to pay premiums":true,"Premiums Paid":true,"Family or business relationship":true,"Delegation of management duties":true,"Conflict of interest policy":true,"Whistle blower policy":true,"Compensation process for CEO":true,"Compensation process for other employees":true,"Changes to organizing documents":true,"Material diversion or misuse":true,"Members or stockholders":true,"Election of board members":true,"Decisions subject to approval":true,"Minutes of governing body":true,"Local chapters":true,"Form 990 provided to governing body":true,"Document retention policy":true,"Investment in joint venture":true,"Independent audit financial statements":true,"Consolidated audit financial statements":true,"Accountant compile or review":true,"Political activities":true,"Donor advised funds":true,"Conservation easements":true,"Collections of art":true,"School":true,"Hospital":true,"Foreign activities":true,"Foreign office":true,"Gaming":true,"Fundraising activities":true,"Professional fundraising":true,"Loan to officer or DQP":true,"Grant to related person":true,"Business relationship through family member":true,"Business relationship with organization":true},"Revenues":{"value":503388,"Contributions":{"value":501827,"Other contributions":496489,"Contributions from gifts and grants":0,"Fundraising revenue":0,"Dues":0,"Campaigns":323,"Grant revenue":5015,"Related organizations":0},"Program revenue":{"value":1561,"Total revenue":1561,"Total other revenue":0,"Unrelated business revenue":0},"Investment income":{"value":0,"Investment income total":0,"Net investment gain":0,"Income from invest bond proceeds":0},"Other revenues":{"value":0,"Other total":0,"Royalties revenue":0,"Net rental income":0,"Net income from fundraising events":0,"Net income from gaming":0,"Net income":0,"Gross profit from sales of inventory":0,"Gain from sale of assets":0}},"Expenses":{"value":302326,"Grant expense":{"value":0,"Grants to domestic orgs":0,"Grants to domestic individuals":0,"Grants and similar":0,"Foreign grants":0},"Total professional fundraising expense":{"value":0,"Fundraising professional":0,"Fees to independent contractors":0},"Benefits paid to members":{"value":0,"Benefits paid to members Total":0},"Salaries":{"value":141944,"Current officers":94756,"Disqualified persons":0,"Other salaries and wages":38077,"Pension plan contributions":0,"Other employee benefits":0,"Payroll taxes":9111},"Other expenses":{"value":160382,"Management services":0,"Legal":0,"Accounting":10265,"Lobbying services":0,"Investment management fees":0,"Other services":49560,"Advertising":900,"Office expenses":5983,"Information technology":8298,"Royalties":0,"Occupancy":0,"Travel":4936,"Conferences and meetings":33303,"Interest":0,"Payments to affiliates":0,"Depreciation and depletion":592,"Insurance":2667,"Travel entertainment public officials":0,"Travel entertainment payments":0,"Printing, publications, postage":0,"Itemized Expenses":43878,"All other expenses":0},"Functional Expenses":{"value":null,"Program Service Expenses":234531,"Management And General Expenses":52190,"Fundraising Expenses":15605}},"Assets":{"value":391014,"Non-interest bearing cash":257567,"Savings and temp cash investments":0,"Pledges and grants receivable":132000,"Accounts receivable":0,"Receivables from officers":0,"Receivables from disqual persons":0,"Other net note and loans":0,"Inventories for sale or use":0,"Prepaid expenses deferred charges":0,"Land, building, equipment":1447,"Investments publicly traded":0,"Investments other":0,"Investments program related":0,"Intangible assets":0,"Other assets":0},"Liabilities":{"value":3432,"Sum of Total Liabilities":0,"Accounts payable, accrued":3432,"Grants payable":0,"Deferred, revenue":0,"Tax exempt bond liabilities":0,"Escrow account liability":0,"Loans from officers, directors":0,"Secured mortgages and notes payable":0,"Unsecured notes loans payable":0,"Other liabilities":0},"Fund balance":{"value":387582,"Net assets without donor restriction":43582,"Net assets with donor restriction":344000,"Unrestricted net assets":0,"Temporarily restricted net assets":0,"Permanently restricted net assets":0},"Ratings":{"Program Expense Ratio":{"score":0.775755310492647,"percentile":0.5977266319189901},"Fundraising Efficiency":{"score":32.15809035565524,"percentile":0.7050557941315115},"Operating Margin":{"score":0.39941754670353685,"percentile":0.8846967572160315},"Liabilities to Assets Ratio":{"score":0.008777179333732297,"percentile":0.5048751870187289},"Operating Reserve Ratio":{"score":1.2933522092046335,"percentile":0.49664882133291727},"Officer Compensation Ratio":{"score":0.31315864331880156,"percentile":0.1750787649807306},"Program Expense Growth":{"score":0.052824425319167014,"percentile":0.5418654311350205},"Revenue Growth":{"score":0.1022933414546494,"percentile":0.7690443974286721},"Asset Growth":{"score":0.19298159459426278,"percentile":0.8391965744343642},"Independent Voting Board Pct":{"score":1.0,"percentile":0.9933392423419786},"Governance Policy Score":{"score":6.0,"percentile":1.0},"Overall Score":{"score":0.6886755602353748,"percentile":0.8290826922657725}},"source_xml":"202432049349300943_public.xml"},{"Organization":{"value":null,"Person":["JULIE BRENEISER","MEREDITH WEISS","KEVIN GULLATT","RONI RUBENSTEIN","BETH SPIEGEL","JOHN WOOD","JENNI WERKMEISTER","SAM BRENEISER","MICHAEL RAINEN","JAMES SWIFT MD","STACY BISSELL"],"Title":["EXEC DIRECTOR","PRESIDENT","TRUSTEE","SECRETARY","VICE PRESIDENT","TRUSTEE","TRUSTEE","TREASURER","TRUSTEE","TRUSTEE","TRUSTEE"],"Hours":[32.0,4.0,1.0,1.0,4.0,1.0,1.0,1.0,1.0,1.0,1.0],"Total Compensation":[64869,0,0,0,0,0,0,0,0,0,0],"Direct compensation":[64869,0,0,0,0,0,0,0,0,0,0],"Other compensation":[0,0,0,0,0,0,0,0,0,0,0]},"Basic":{"value":null,"mission":"The mission of the gorlin syndrome alliance (gsa) is to thoughtfully support, comprehensively educate and aggressively seek treatments and a cure for basal cell carcinoma nevus syndrome, its manifestations and sporadic basal cell carcinomas.","year":2020,"name":"GORLIN SYNDROME ALLIANCE","phone":2676896443,"website":"WWW.GORLINSYNDROME.ORG","type":"990","affiliation":null,"foreign_countries":null,"principal_officer":"JULIE BRENEISER","year_formation":2000,"state_legal_domicile":"PA","total_volunteers":10,"tax_period_begin":"2020-01-01T00:00:00","tax_period_end":"2020-12-31T00:00:00","address":"PO BOX 4, READING, PA, 19607, USA","city":"READING","state":"PA","country":"USA","zip_code":19607},"Governance":{"value":null,"501c3 determination":true,"501c determination":false,"Number of voting members":10,"Number of independent voting members":10,"Number of employees total":3,"Total Gross UBI":0,"Net unrelated business taxable income":0,"Number of employees":3,"Prohibited tax shelter transactions":true,"Taxable party notification":true,"Funds to pay premiums":true,"Premiums Paid":true,"Family or business relationship":true,"Delegation of management duties":true,"Conflict of interest policy":true,"Whistle blower policy":true,"Compensation process for CEO":true,"Compensation process for other employees":true,"Changes to organizing documents":true,"Material diversion or misuse":true,"Members or stockholders":true,"Election of board members":true,"Decisions subject to approval":true,"Minutes of governing body":true,"Local chapters":true,"Form 990 provided to governing body":true,"Document retention policy":true,"Investment in joint venture":true,"Independent audit financial statements":true,"Consolidated audit financial statements":true,"Accountant compile or review":true,"Political activities":true,"Donor advised funds":true,"Conservation easements":true,"Collections of art":true,"School":true,"Hospital":true,"Foreign activities":true,"Foreign office":true,"Gaming":true,"Fundraising activities":true,"Professional fundraising":true,"Loan to officer or DQP":true,"Grant to related person":true,"Business relationship through family member":true,"Business relationship with organization":true},"Revenues":{"value":390417,"Contributions":{"value":390417,"Other contributions":390417,"Contributions from gifts and grants":0,"Fundraising revenue":0,"Dues":0,"Campaigns":0,"Grant revenue":0,"Related organizations":0},"Program revenue":{"value":0,"Total revenue":0,"Total other revenue":0,"Unrelated business revenue":0},"Investment income":{"value":0,"Investment income total":0,"Net investment gain":0,"Income from invest bond proceeds":0},"Other revenues":{"value":0,"Other total":0,"Royalties revenue":0,"Net rental income":0,"Net income from fundraising events":0,"Net income from gaming":0,"Net income":0,"Gross profit from sales of inventory":0,"Gain from sale of assets":0}},"Expenses":{"value":255392,"Grant expense":{"value":0,"Grants to domestic orgs":0,"Grants to domestic individuals":0,"Grants and similar":0,"Foreign grants":0},"Total professional fundraising expense":{"value":0,"Fundraising professional":0,"Fees to independent contractors":0},"Benefits paid to members":{"value":0,"Benefits paid to members Total":0},"Salaries":{"value":129741,"Current officers":63389,"Disqualified persons":0,"Other salaries and wages":35508,"Pension plan contributions":0,"Other employee benefits":21508,"Payroll taxes":9336},"Other expenses":{"value":125651,"Management services":67950,"Legal":0,"Accounting":8500,"Lobbying services":0,"Investment management fees":0,"Other services":0,"Advertising":2125,"Office expenses":8706,"Information technology":7469,"Royalties":0,"Occupancy":0,"Travel":0,"Conferences and meetings":6296,"Interest":0,"Payments to affiliates":0,"Depreciation and depletion":332,"Insurance":2421,"Travel entertainment public officials":0,"Travel entertainment payments":0,"Printing, publications, postage":0,"Itemized Expenses":{"value":21852,"LISTENING SESSION,PATIE":17133,"DEVELOPMENT EXPENSES":2731,"TELEPHONE EXPENSE":1838,"STATE FILING FEE":150},"All other expenses":0},"Functional Expenses":{"value":null,"Program Service Expenses":187605,"Management And General Expenses":33875,"Fundraising Expenses":33912}},"Assets":{"value":201655,"Non-interest bearing cash":182401,"Savings and temp cash investments":0,"Pledges and grants receivable":15000,"Accounts receivable":0,"Receivables from officers":0,"Receivables from disqual persons":0,"Other net note and loans":0,"Inventories for sale or use":0,"Prepaid expenses deferred charges":1623,"Land, building, equipment":2631,"Investments publicly traded":0,"Investments other":0,"Investments program related":0,"Intangible assets":0,"Other assets":0},"Liabilities":{"value":12723,"Sum of Total Liabilities":0,"Accounts payable, accrued":12723,"Grants payable":0,"Deferred, revenue":0,"Tax exempt bond liabilities":0,"Escrow account liability":0,"Loans from officers, directors":0,"Secured mortgages and notes payable":0,"Unsecured notes loans payable":0,"Other liabilities":0},"Fund balance":{"value":188932,"Net assets without donor restriction":175404,"Net assets with donor restriction":13528,"Unrestricted net assets":0,"Temporarily restricted net assets":0,"Permanently restricted net assets":0},"Ratings":{"Program Expense Ratio":{"score":0.7345766507956396,"percentile":0.560456727864468},"Fundraising Efficiency":{"score":11.512650389242745,"percentile":0.44207884623323607},"Operating Margin":{"score":0.3458481572267601,"percentile":0.8606646165359503},"Liabilities to Assets Ratio":{"score":0.0630929062011852,"percentile":0.36842751047550687},"Operating Reserve Ratio":{"score":0.7895901202856784,"percentile":0.3594274268990366},"Officer Compensation Ratio":{"score":0.25399777596792383,"percentile":0.2361508673549374},"Program Expense Growth":{"score":0.02519587614311212,"percentile":0.4278830952158567},"Revenue Growth":{"score":0.0694324913362758,"percentile":0.6795888182345792},"Asset Growth":{"score":0.09000695268796635,"percentile":0.6571266282328804},"Independent Voting Board Pct":{"score":1.0,"percentile":0.9933392423419786},"Governance Policy Score":{"score":6.0,"percentile":1.0},"Overall Score":{"score":0.6111675426622418,"percentile":0.6377937449991331}},"source_xml":"202143199349304169_public.xml"},{"Organization":{"value":null,"Person":["WILLIAM GINN","REGAN BRANDT","BRYANT BRADLEY","JULIA BRENEISER","KATHY RAINEN","JENNIFER WERKMEISTERAPPTD 2016","JOYCE RANCOURT APPOINTED 2016","MICHAEL RAINEN RESIGNED 2016","MEREDITH WEISS RESIGNED 2016","KEVIN GULLATT RESIGNED 2016"],"Title":["EMERITUS TRUSTEE (NON-VOTING)","TREASURER","EMERITUS TRUSTEE (NON-VOTING)","PRESIDENT, TRUSTEE","VICE PRESIDENT","TRUSTEE","SECRETARY","TRUSTEE","TRUSTEE","TRUSTEE"],"Hours":[2.0,2.0,2.0,2.0,2.0,2.0,2.0,2.0,2.0,2.0],"Total Compensation":[0,0,0,0,0,0,0,0,0,0],"Direct compensation":[0,0,0,0,0,0,0,0,0,0],"Other compensation":[0,0,0,0,0,0,0,0,0,0]},"Basic":{"value":null,"mission":"The mission of the bccns life support network is to:- focus on the early diagnosis and treatment of children evidencing an initial onset of bccns;- develop information about the medical conditions and disorders experienced by those living with bccns;- share this information with clinics and healthcare providers treating bccns patients, and other similarly affected populations;- engage affected individuals and their families, caregivers, colleagues, and schools in creative learning opportunities to effect an optimum quality of life and attain maximum personal potentials through informed communication;- strengthen the capacity of patients and their families to manage their disease; and- establish and foster a network of medical professionals actively engaged in advancing the welfare of the bccns community.","year":2016,"name":"BASAL CELL CARCINOMA NEVUS SYNDROME LIFE SUPPORT NETWORK","phone":4408340011,"website":"WWW.BCCNS.ORG","type":"990","affiliation":null,"foreign_countries":null,"principal_officer":"JULIA BRENEISER","year_formation":2000,"state_legal_domicile":"OH","total_volunteers":63,"tax_period_begin":"2016-01-01T00:00:00","tax_period_end":"2016-12-31T00:00:00","address":"1586 SUMNEYTOWN PIKE NO 1322, KULPSVILLE, PA, 19443, USA","city":"KULPSVILLE","state":"PA","country":"USA","zip_code":19443},"Governance":{"value":null,"501c3 determination":true,"501c determination":false,"Number of voting members":5,"Number of independent voting members":5,"Number of employees total":8,"Total Gross UBI":0,"Net unrelated business taxable income":0,"Number of employees":8,"Prohibited tax shelter transactions":true,"Taxable party notification":true,"Funds to pay premiums":true,"Premiums Paid":true,"Family or business relationship":true,"Delegation of management duties":true,"Conflict of interest policy":true,"Whistle blower policy":true,"Compensation process for CEO":true,"Compensation process for other employees":true,"Changes to organizing documents":true,"Material diversion or misuse":true,"Members or stockholders":true,"Election of board members":true,"Decisions subject to approval":true,"Minutes of governing body":true,"Local chapters":true,"Form 990 provided to governing body":true,"Document retention policy":true,"Investment in joint venture":true,"Independent audit financial statements":true,"Consolidated audit financial statements":true,"Accountant compile or review":true,"Political activities":true,"Donor advised funds":true,"Conservation easements":true,"Collections of art":true,"School":true,"Hospital":true,"Foreign activities":true,"Foreign office":true,"Gaming":true,"Fundraising activities":true,"Professional fundraising":true,"Loan to officer or DQP":true,"Grant to related person":true,"Business relationship through family member":true,"Business relationship with organization":true},"Revenues":{"value":220131,"Contributions":{"value":220105,"Other contributions":220105,"Contributions from gifts and grants":0,"Fundraising revenue":0,"Dues":0,"Campaigns":0,"Grant revenue":0,"Related organizations":0},"Program revenue":{"value":0,"Total revenue":0,"Total other revenue":0,"Unrelated business revenue":0},"Investment income":{"value":26,"Investment income total":26,"Net investment gain":0,"Income from invest bond proceeds":0},"Other revenues":{"value":0,"Other total":0,"Royalties revenue":0,"Net rental income":0,"Net income from fundraising events":0,"Net income from gaming":0,"Net income":0,"Gross profit from sales of inventory":0,"Gain from sale of assets":0}},"Expenses":{"value":197078,"Grant expense":{"value":5000,"Grants to domestic orgs":5000,"Grants to domestic individuals":0,"Grants and similar":0,"Foreign grants":0},"Total professional fundraising expense":{"value":0,"Fundraising professional":0,"Fees to independent contractors":0},"Benefits paid to members":{"value":0,"Benefits paid to members Total":0},"Salaries":{"value":110674,"Current officers":65985,"Disqualified persons":0,"Other salaries and wages":35896,"Pension plan contributions":0,"Other employee benefits":0,"Payroll taxes":8793},"Other expenses":{"value":81404,"Management services":0,"Legal":0,"Accounting":2088,"Lobbying services":0,"Investment management fees":0,"Other services":1964,"Advertising":0,"Office expenses":13052,"Information technology":518,"Royalties":0,"Occupancy":5400,"Travel":5142,"Conferences and meetings":18056,"Interest":0,"Payments to affiliates":0,"Depreciation and depletion":10797,"Insurance":2655,"Travel entertainment public officials":0,"Travel entertainment payments":0,"Printing, publications, postage":0,"Itemized Expenses":{"value":21472,"DEVELOPMENT EXPENSES":9347,"CONTRACTED SERVICES":7345,"RESEARCH AND TRIALS":3654,"PARTICIPANT SERVICES":1126},"All other expenses":260},"Functional Expenses":{"value":null,"Program Service Expenses":106790,"Management And General Expenses":90288,"Fundraising Expenses":0}},"Assets":{"value":181917,"Non-interest bearing cash":607,"Savings and temp cash investments":651,"Pledges and grants receivable":81421,"Accounts receivable":0,"Receivables from officers":0,"Receivables from disqual persons":0,"Other net note and loans":0,"Inventories for sale or use":0,"Prepaid expenses deferred charges":0,"Land, building, equipment":31230,"Investments publicly traded":0,"Investments other":0,"Investments program related":0,"Intangible assets":7666,"Other assets":60342},"Liabilities":{"value":61788,"Sum of Total Liabilities":0,"Accounts payable, accrued":39270,"Grants payable":0,"Deferred, revenue":0,"Tax exempt bond liabilities":0,"Escrow account liability":0,"Loans from officers, directors":0,"Secured mortgages and notes payable":0,"Unsecured notes loans payable":0,"Other liabilities":22518},"Fund balance":{"value":120129,"Net assets without donor restriction":0,"Net assets with donor restriction":0,"Unrestricted net assets":120129,"Temporarily restricted net assets":0,"Permanently restricted net assets":0},"Ratings":{"Program Expense Ratio":{"score":0.5418666720790752,"percentile":0.4824782692756962},"Fundraising Efficiency":{"score":null,"percentile":null},"Operating Margin":{"score":0.10472400525141848,"percentile":0.631299296326497},"Liabilities to Assets Ratio":{"score":0.3396494005508006,"percentile":0.185931848982274},"Operating Reserve Ratio":{"score":0.9230710683079796,"percentile":0.4013257996398329},"Officer Compensation Ratio":{"score":null,"percentile":null},"Program Expense Growth":{"score":-0.1369688208110325,"percentile":0.11630881207471117},"Revenue Growth":{"score":-0.017457283482797906,"percentile":0.3045429386612152},"Asset Growth":{"score":0.36447682841693585,"percentile":0.9448422926034821},"Independent Voting Board Pct":{"score":1.0,"percentile":0.9933392423419786},"Governance Policy Score":{"score":6.0,"percentile":1.0},"Overall Score":{"score":0.5264088495217469,"percentile":0.3906342774143501}},"source_xml":"201722439349300142_public.xml"}],"Latest":{"Organization":{"value":null,"Person":["STACY BISSELL","TAYLOR HODGE","BETH SPIEGEL","RONI RUBENSTEIN","DR JIM SWIFT","JENNI WERKMEISTER","KEVIN GULLATT","MICHAEL RAINEN","SAMUEL BRENEISER","DR ELENA HAWRYLUK","ALIX ALDERMAN","JULIA BRENEISER","MEREDITH WEISS"],"Title":["DIRECTOR","VICE PRESIDENT","TREASURER","SECRETARY","DIRECTOR","DIRECTOR ROLLED OFF BOARD IN JUNE","PRESIDENT STARTING IN MARCH","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR JOINED BOARD IN SEP.","EXECUTIVE DIRECTOR","EXECUTIVE DIRECTOR"],"Hours":[2.0,2.5,1.5,2.0,0.5,1.0,3.0,1.5,0.5,2.0,1.0,32.0,32.0],"Total Compensation":[0,0,0,0,0,0,0,0,0,0,0,92129,41136],"Direct compensation":[0,0,0,0,0,0,0,0,0,0,0,84517,41136],"Other compensation":[0,0,0,0,0,0,0,0,0,0,0,7612,0]},"Basic":{"value":null,"mission":"To thoughtfully support, comprehensively educate, and aggressively seek the best treatments and a cure for those affected by gorlin syndrome.","year":2024,"name":"GORLIN SYNDROME ALLIANCE","phone":2676896443,"website":"HTTPS://GORLINSYNDROME.ORG/","type":"990","affiliation":null,"foreign_countries":null,"principal_officer":"MEREDITH WEISS","year_formation":2000,"state_legal_domicile":"PA","total_volunteers":29,"tax_period_begin":"2024-01-01T00:00:00","tax_period_end":"2024-12-31T00:00:00","address":"3005 S LAMAR BLVD D 109 264, AUSTIN, TX, 78704, USA","city":"AUSTIN","state":"TX","country":"USA","zip_code":78704},"Governance":{"value":null,"501c3 determination":true,"501c determination":false,"Number of voting members":10,"Number of independent voting members":10,"Number of employees total":3,"Total Gross UBI":0,"Net unrelated business taxable income":0,"Number of employees":3,"Prohibited tax shelter transactions":true,"Taxable party notification":true,"Funds to pay premiums":false,"Premiums Paid":false,"Family or business relationship":true,"Delegation of management duties":true,"Conflict of interest policy":true,"Whistle blower policy":true,"Compensation process for CEO":true,"Compensation process for other employees":true,"Changes to organizing documents":true,"Material diversion or misuse":true,"Members or stockholders":true,"Election of board members":true,"Decisions subject to approval":true,"Minutes of governing body":true,"Local chapters":true,"Form 990 provided to governing body":true,"Document retention policy":true,"Investment in joint venture":true,"Independent audit financial statements":true,"Consolidated audit financial statements":true,"Accountant compile or review":true,"Political activities":true,"Donor advised funds":true,"Conservation easements":true,"Collections of art":true,"School":true,"Hospital":true,"Foreign activities":true,"Foreign office":true,"Gaming":true,"Fundraising activities":true,"Professional fundraising":true,"Loan to officer or DQP":true,"Grant to related person":true,"Business relationship through family member":true,"Business relationship with organization":true},"Revenues":{"value":489524,"Contributions":{"value":480996,"Other contributions":462996,"Contributions from gifts and grants":0,"Fundraising revenue":18000,"Dues":0,"Campaigns":0,"Grant revenue":0,"Related organizations":0},"Program revenue":{"value":0,"Total revenue":0,"Total other revenue":0,"Unrelated business revenue":0},"Investment income":{"value":10499,"Investment income total":10499,"Net investment gain":0,"Income from invest bond proceeds":0},"Other revenues":{"value":-1971,"Other total":0,"Royalties revenue":0,"Net rental income":0,"Net income from fundraising events":-1971,"Net income from gaming":0,"Net income":0,"Gross profit from sales of inventory":0,"Gain from sale of assets":0}},"Expenses":{"value":430424,"Grant expense":{"value":0,"Grants to domestic orgs":0,"Grants to domestic individuals":0,"Grants and similar":0,"Foreign grants":0},"Total professional fundraising expense":{"value":0,"Fundraising professional":0,"Fees to independent contractors":0},"Benefits paid to members":{"value":0,"Benefits paid to members Total":0},"Salaries":{"value":322924,"Current officers":133265,"Disqualified persons":0,"Other salaries and wages":174855,"Pension plan contributions":0,"Other employee benefits":943,"Payroll taxes":13861},"Other expenses":{"value":107500,"Management services":0,"Legal":0,"Accounting":23308,"Lobbying services":0,"Investment management fees":0,"Other services":0,"Advertising":0,"Office expenses":3503,"Information technology":25611,"Royalties":0,"Occupancy":0,"Travel":12557,"Conferences and meetings":1500,"Interest":0,"Payments to affiliates":0,"Depreciation and depletion":592,"Insurance":1857,"Travel entertainment public officials":0,"Travel entertainment payments":0,"Printing, publications, postage":0,"Itemized Expenses":{"value":38572,"RESEARCH EXPENSES":34233,"MISCELLANEOUS EXPENSES":4339},"All other expenses":0},"Functional Expenses":{"value":null,"Program Service Expenses":279283,"Management And General Expenses":70574,"Fundraising Expenses":80567}},"Assets":{"value":670207,"Non-interest bearing cash":427649,"Savings and temp cash investments":242295,"Pledges and grants receivable":0,"Accounts receivable":0,"Receivables from officers":0,"Receivables from disqual persons":0,"Other net note and loans":0,"Inventories for sale or use":0,"Prepaid expenses deferred charges":0,"Land, building, equipment":263,"Investments publicly traded":0,"Investments other":0,"Investments program related":0,"Intangible assets":0,"Other assets":0},"Liabilities":{"value":275536,"Sum of Total Liabilities":0,"Accounts payable, accrued":500,"Grants payable":0,"Deferred, revenue":275036,"Tax exempt bond liabilities":0,"Escrow account liability":0,"Loans from officers, directors":0,"Secured mortgages and notes payable":0,"Unsecured notes loans payable":0,"Other liabilities":0},"Fund balance":{"value":394671,"Net assets without donor restriction":183103,"Net assets with donor restriction":211568,"Unrestricted net assets":0,"Temporarily restricted net assets":0,"Permanently restricted net assets":0},"Ratings":{"Program Expense Ratio":{"score":0.6488555470884523,"percentile":0.5120078867021662},"Fundraising Efficiency":{"score":5.970136656447429,"percentile":0.24821308049082322},"Operating Margin":{"score":0.12072952500796692,"percentile":0.6569164194356305},"Liabilities to Assets Ratio":{"score":0.4111207432927439,"percentile":0.1611153034988275},"Operating Reserve Ratio":{"score":1.557085571436537,"percentile":0.5487580581372156},"Officer Compensation Ratio":{"score":0.30961331152537963,"percentile":0.17821178219596426},"Program Expense Growth":{"score":0.07518136106989728,"percentile":0.614408642323357},"Revenue Growth":{"score":0.07885891332484239,"percentile":0.7091527614113803},"Asset Growth":{"score":0.20133133050644708,"percentile":0.8481437423233591},"Independent Voting Board Pct":{"score":1.0,"percentile":0.9933392423419786},"Governance Policy Score":{"score":6.0,"percentile":1.0},"Overall Score":{"score":0.5758790190569214,"percentile":0.5343138715574387}},"source_xml":"202523099349303027_public.xml"},"sector":"Health","donation_categories":[],"zakat_policy":null},"error":null}