{"success":true,"data":{"_id":263531031,"filings":[{"Organization":{"value":null,"Person":["ANN SLAW JD","KEN SLAW PHD","ANDREA GREENFIELD","RUTH WOODRUFF JD","TARA D SCHIMMEL MS ED","CAROL ALTERMAN RN","PAT WHITE","TERRY FINESMITH HORWICH JD"],"Title":["PRESIDENT","VICE PRESIDENT","TREASURER","ADVISORY BOARD","NY REGIONAL REPRESENTATIVE","FL REGIONAL REPRESENTATIVE","ADVISORY BOARD","ADVISORY BOARD"],"Hours":[40.0,4.0,4.0,1.0,1.0,1.0,1.0,1.0],"Total Compensation":[0,0,0,0,0,0,0,0],"Direct compensation":[0,0,0,0,0,0,0,0],"Other compensation":[0,0,0,0,0,0,0,0]},"Basic":{"value":null,"mission":"To discover new treatments and cures for patients with familial dysautonomia, a rare, fatal, genetic disease present at birth","year":2021,"name":"FAMILIAL DYSAUTONOMIA NOW FOUNDATION FD NOW","phone":8479130455,"website":"WWW.FDNOW.ORG","type":"990","affiliation":null,"foreign_countries":null,"principal_officer":"ANN SLAW","year_formation":2009,"state_legal_domicile":"IL","total_volunteers":0,"tax_period_begin":"2021-08-01T00:00:00","tax_period_end":"2022-07-31T00:00:00","address":"1170 GREEN KNOLLS DRIVE, BUFFALO GROVE, IL, 60089, USA","city":"BUFFALO GROVE","state":"IL","country":"USA","zip_code":60089},"Governance":{"value":null,"501c3 determination":true,"501c determination":false,"Number of voting members":8,"Number of independent voting members":8,"Number of employees total":0,"Total Gross UBI":0,"Net unrelated business taxable income":0,"Number of employees":0,"Prohibited tax shelter transactions":true,"Taxable party notification":true,"Funds to pay premiums":false,"Premiums Paid":false,"Family or business relationship":true,"Delegation of management duties":true,"Conflict of interest policy":true,"Whistle blower policy":true,"Compensation process for CEO":true,"Compensation process for other employees":true,"Changes to organizing documents":true,"Material diversion or misuse":true,"Members or stockholders":true,"Election of board members":true,"Decisions subject to approval":true,"Minutes of governing body":true,"Local chapters":true,"Form 990 provided to governing body":true,"Document retention policy":true,"Investment in joint venture":true,"Independent audit financial statements":true,"Consolidated audit financial statements":true,"Accountant compile or review":true,"Political activities":true,"Donor advised funds":true,"Conservation easements":true,"Collections of art":true,"School":true,"Hospital":true,"Foreign activities":true,"Foreign office":true,"Gaming":true,"Fundraising activities":true,"Professional fundraising":true,"Loan to officer or DQP":true,"Grant to related person":true,"Business relationship through family member":true,"Business relationship with organization":true},"Revenues":{"value":293462,"Contributions":{"value":283631,"Other contributions":99335,"Contributions from gifts and grants":0,"Fundraising revenue":184296,"Dues":0,"Campaigns":0,"Grant revenue":0,"Related organizations":0},"Program revenue":{"value":0,"Total revenue":0,"Total other revenue":0,"Unrelated business revenue":0},"Investment income":{"value":1633,"Investment income total":1633,"Net investment gain":0,"Income from invest bond proceeds":0},"Other revenues":{"value":8198,"Other total":0,"Royalties revenue":0,"Net rental income":0,"Net income from fundraising events":8198,"Net income from gaming":0,"Net income":0,"Gross profit from sales of inventory":0,"Gain from sale of assets":0}},"Expenses":{"value":226342,"Grant expense":{"value":177012,"Grants to domestic orgs":177012,"Grants to domestic individuals":0,"Grants and similar":0,"Foreign grants":0},"Total professional fundraising expense":{"value":0,"Fundraising professional":0,"Fees to independent contractors":0},"Benefits paid to members":{"value":0,"Benefits paid to members Total":0},"Salaries":{"value":0,"Current officers":0,"Disqualified persons":0,"Other salaries and wages":0,"Pension plan contributions":0,"Other employee benefits":0,"Payroll taxes":0},"Other expenses":{"value":49330,"Management services":31827,"Legal":0,"Accounting":0,"Lobbying services":0,"Investment management fees":0,"Other services":0,"Advertising":0,"Office expenses":12050,"Information technology":0,"Royalties":0,"Occupancy":0,"Travel":805,"Conferences and meetings":0,"Interest":0,"Payments to affiliates":0,"Depreciation and depletion":0,"Insurance":1229,"Travel entertainment public officials":0,"Travel entertainment payments":0,"Printing, publications, postage":0,"Itemized Expenses":3419,"All other expenses":0},"Functional Expenses":{"value":null,"Program Service Expenses":181945,"Management And General Expenses":17490,"Fundraising Expenses":26907}},"Assets":{"value":882138,"Non-interest bearing cash":12776,"Savings and temp cash investments":200073,"Pledges and grants receivable":0,"Accounts receivable":0,"Receivables from officers":0,"Receivables from disqual persons":0,"Other net note and loans":0,"Inventories for sale or use":0,"Prepaid expenses deferred charges":0,"Land, building, equipment":0,"Investments publicly traded":669289,"Investments other":0,"Investments program related":0,"Intangible assets":0,"Other assets":0},"Liabilities":{"value":0,"Sum of Total Liabilities":0,"Accounts payable, accrued":0,"Grants payable":0,"Deferred, revenue":0,"Tax exempt bond liabilities":0,"Escrow account liability":0,"Loans from officers, directors":0,"Secured mortgages and notes payable":0,"Unsecured notes loans payable":0,"Other liabilities":0},"Fund balance":{"value":882138,"Net assets without donor restriction":882138,"Net assets with donor restriction":0,"Unrestricted net assets":0,"Temporarily restricted net assets":0,"Permanently restricted net assets":0},"Ratings":{"Program Expense Ratio":{"score":0.8038499262178473,"percentile":0.630361587974189},"Fundraising Efficiency":{"score":10.541160292860594,"percentile":0.415394821605669},"Operating Margin":{"score":0.22871785784871637,"percentile":0.7832674605369538},"Liabilities to Assets Ratio":{"score":0.0,"percentile":0.9977938754541298},"Operating Reserve Ratio":{"score":3.897367700205883,"percentile":0.7640370077637407},"Officer Compensation Ratio":{"score":null,"percentile":null},"Program Expense Growth":{"score":0.032360724354428626,"percentile":0.45914827836480004},"Revenue Growth":{"score":0.19646692566105114,"percentile":0.8937755242309939},"Asset Growth":{"score":0.059754315047840026,"percentile":0.5628641366682489},"Independent Voting Board Pct":{"score":1.0,"percentile":0.9933392423419786},"Governance Policy Score":{"score":6.0,"percentile":1.0},"Overall Score":{"score":0.7050582799661698,"percentile":0.8570575493917166}},"source_xml":"202340309349300859_public.xml"},{"Organization":{"value":null,"Person":["ANN SLAW JD","KEN SLAW PHD","ANDREA GREENFIELD","RUTH WOODRUFF JD","TARA D SCHIMMEL MS ED","CAROL ALTERMAN RN","pat white","Terry finesmith horwich jd"],"Title":["PRESIDENT","VICE PRESIDENT","TREASURER","ADVISORY BOARD","NY REGIONAL REPRESENTATIVE","fl regional representative","advisory board","aDVISORY BOARD"],"Hours":[40.0,4.0,4.0,1.0,1.0,1.0,1.0,1.0],"Total Compensation":[0,0,0,0,0,0,0,0],"Direct compensation":[0,0,0,0,0,0,0,0],"Other compensation":[0,0,0,0,0,0,0,0]},"Basic":{"value":null,"mission":"To discover new treatments and cures for patients with famalial dysautonomia, a rare, fatal, genetic disease present at birth","year":2024,"name":"FAMILIAL DYSAUTONOMIA NOW FOUNDATION FD NOW","phone":8479130455,"website":"www.fdnow.org","type":"990","affiliation":null,"foreign_countries":["Mali"],"principal_officer":"ANN SLAW","year_formation":2009,"state_legal_domicile":"IL","total_volunteers":8,"tax_period_begin":"2024-08-01T00:00:00","tax_period_end":"2025-07-31T00:00:00","address":"1170 Green Knolls Drive, Buffalo Grove, IL, 60089, USA","city":"Buffalo Grove","state":"IL","country":"USA","zip_code":60089},"Governance":{"value":null,"501c3 determination":true,"501c determination":false,"Number of voting members":8,"Number of independent voting members":8,"Number of employees total":0,"Total Gross UBI":0,"Net unrelated business taxable income":0,"Number of employees":0,"Prohibited tax shelter transactions":true,"Taxable party notification":true,"Funds to pay premiums":true,"Premiums Paid":true,"Family or business relationship":true,"Delegation of management duties":true,"Conflict of interest policy":true,"Whistle blower policy":true,"Compensation process for CEO":true,"Compensation process for other employees":true,"Changes to organizing documents":true,"Material diversion or misuse":true,"Members or stockholders":true,"Election of board members":true,"Decisions subject to approval":true,"Minutes of governing body":true,"Local chapters":true,"Form 990 provided to governing body":true,"Document retention policy":true,"Investment in joint venture":true,"Independent audit financial statements":true,"Consolidated audit financial statements":true,"Accountant compile or review":true,"Political activities":true,"Donor advised funds":true,"Conservation easements":true,"Collections of art":true,"School":true,"Hospital":true,"Foreign activities":true,"Foreign office":true,"Gaming":true,"Fundraising activities":true,"Professional fundraising":true,"Loan to officer or DQP":true,"Grant to related person":true,"Business relationship through family member":true,"Business relationship with organization":true},"Revenues":{"value":289025,"Contributions":{"value":244764,"Other contributions":109231,"Contributions from gifts and grants":0,"Fundraising revenue":135533,"Dues":0,"Campaigns":0,"Grant revenue":0,"Related organizations":0},"Program revenue":{"value":0,"Total revenue":0,"Total other revenue":0,"Unrelated business revenue":0},"Investment income":{"value":44207,"Investment income total":44166,"Net investment gain":41,"Income from invest bond proceeds":0},"Other revenues":{"value":54,"Other total":54,"Royalties revenue":0,"Net rental income":0,"Net income from fundraising events":0,"Net income from gaming":0,"Net income":0,"Gross profit from sales of inventory":0,"Gain from sale of assets":0}},"Expenses":{"value":233939,"Grant expense":{"value":176400,"Grants to domestic orgs":176400,"Grants to domestic individuals":0,"Grants and similar":0,"Foreign grants":0},"Total professional fundraising expense":{"value":0,"Fundraising professional":0,"Fees to independent contractors":0},"Benefits paid to members":{"value":0,"Benefits paid to members Total":0},"Salaries":{"value":0,"Current officers":0,"Disqualified persons":0,"Other salaries and wages":0,"Pension plan contributions":0,"Other employee benefits":0,"Payroll taxes":0},"Other expenses":{"value":57539,"Management services":0,"Legal":0,"Accounting":0,"Lobbying services":0,"Investment management fees":0,"Other services":34731,"Advertising":0,"Office expenses":13226,"Information technology":2119,"Royalties":0,"Occupancy":0,"Travel":2252,"Conferences and meetings":0,"Interest":0,"Payments to affiliates":0,"Depreciation and depletion":0,"Insurance":1257,"Travel entertainment public officials":0,"Travel entertainment payments":0,"Printing, publications, postage":0,"Itemized Expenses":{"value":3954,"bank fees , credit card":2798,"Books, subscriptions, R":1130,"REGISTRATION":26},"All other expenses":0},"Functional Expenses":{"value":null,"Program Service Expenses":217915,"Management And General Expenses":16024,"Fundraising Expenses":0}},"Assets":{"value":1146133,"Non-interest bearing cash":20083,"Savings and temp cash investments":0,"Pledges and grants receivable":0,"Accounts receivable":0,"Receivables from officers":0,"Receivables from disqual persons":0,"Other net note and loans":0,"Inventories for sale or use":0,"Prepaid expenses deferred charges":0,"Land, building, equipment":0,"Investments publicly traded":1126050,"Investments other":0,"Investments program related":0,"Intangible assets":0,"Other assets":0},"Liabilities":{"value":0,"Sum of Total Liabilities":0,"Accounts payable, accrued":0,"Grants payable":0,"Deferred, revenue":0,"Tax exempt bond liabilities":0,"Escrow account liability":0,"Loans from officers, directors":0,"Secured mortgages and notes payable":0,"Unsecured notes loans payable":0,"Other liabilities":0},"Fund balance":{"value":1146133,"Net assets without donor restriction":1146133,"Net assets with donor restriction":0,"Unrestricted net assets":0,"Temporarily restricted net assets":0,"Permanently restricted net assets":0},"Ratings":{"Program Expense Ratio":{"score":0.9315035115991775,"percentile":0.8188761248016241},"Fundraising Efficiency":{"score":null,"percentile":null},"Operating Margin":{"score":0.19059250929850358,"percentile":0.7466530824616813},"Liabilities to Assets Ratio":{"score":0.0,"percentile":0.9977938754541298},"Operating Reserve Ratio":{"score":4.899281436613818,"percentile":0.8029969732788845},"Officer Compensation Ratio":{"score":null,"percentile":null},"Program Expense Growth":{"score":0.04628800214357854,"percentile":0.5171649381620067},"Revenue Growth":{"score":0.07431782544792546,"percentile":0.6953551533924568},"Asset Growth":{"score":0.08304591781880932,"percentile":0.637583488069368},"Independent Voting Board Pct":{"score":1.0,"percentile":0.9933392423419786},"Governance Policy Score":{"score":6.0,"percentile":1.0},"Overall Score":{"score":0.7829580746603682,"percentile":0.9474216275033333}},"source_xml":"202533459349300628_public.xml"},{"Organization":{"value":null,"Person":["ANN SLAW JD","KEN SLAW PHD","ANDREA GREENFIELD","RUTH WOODRUFF JD","TARA D SCHIMMEL MS ED","CAROL ALTERMAN RN","pat white","Terry finesmith horwich jd"],"Title":["PRESIDENT","VICE PRESIDENT","TREASURER","ADVISORY BOARD","NY REGIONAL REPRESENTATIVE","fl regional representative","advisory board","aDVISORY BOARD"],"Hours":[40.0,4.0,4.0,1.0,1.0,1.0,1.0,1.0],"Total Compensation":[0,0,0,0,0,0,0,0],"Direct compensation":[0,0,0,0,0,0,0,0],"Other compensation":[0,0,0,0,0,0,0,0]},"Basic":{"value":null,"mission":"To discover new treatments and cures for patients with famalial dysautonomia, a rare, fatal, genetic disease present at birth","year":2023,"name":"FAMILIAL DYSAUTONOMIA NOW FOUNDATION FD NOW","phone":8479130455,"website":"www.fdnow.org","type":"990","affiliation":null,"foreign_countries":["Mali"],"principal_officer":"ANN SLAW","year_formation":2009,"state_legal_domicile":"IL","total_volunteers":0,"tax_period_begin":"2023-08-01T00:00:00","tax_period_end":"2024-07-31T00:00:00","address":"1170 Green Knolls Drive, Buffalo Grove, IL, 60089, USA","city":"Buffalo Grove","state":"IL","country":"USA","zip_code":60089},"Governance":{"value":null,"501c3 determination":true,"501c determination":false,"Number of voting members":8,"Number of independent voting members":8,"Number of employees total":0,"Total Gross UBI":0,"Net unrelated business taxable income":0,"Number of employees":0,"Prohibited tax shelter transactions":true,"Taxable party notification":true,"Funds to pay premiums":false,"Premiums Paid":false,"Family or business relationship":true,"Delegation of management duties":true,"Conflict of interest policy":true,"Whistle blower policy":true,"Compensation process for CEO":true,"Compensation process for other employees":true,"Changes to organizing documents":true,"Material diversion or misuse":true,"Members or stockholders":true,"Election of board members":true,"Decisions subject to approval":true,"Minutes of governing body":true,"Local chapters":true,"Form 990 provided to governing body":true,"Document retention policy":true,"Investment in joint venture":true,"Independent audit financial statements":true,"Consolidated audit financial statements":true,"Accountant compile or review":true,"Political activities":true,"Donor advised funds":true,"Conservation easements":true,"Collections of art":true,"School":true,"Hospital":true,"Foreign activities":true,"Foreign office":true,"Gaming":true,"Fundraising activities":true,"Professional fundraising":true,"Loan to officer or DQP":true,"Grant to related person":true,"Business relationship through family member":true,"Business relationship with organization":true},"Revenues":{"value":298955,"Contributions":{"value":249276,"Other contributions":120452,"Contributions from gifts and grants":0,"Fundraising revenue":128824,"Dues":0,"Campaigns":0,"Grant revenue":0,"Related organizations":0},"Program revenue":{"value":0,"Total revenue":0,"Total other revenue":0,"Unrelated business revenue":0},"Investment income":{"value":54373,"Investment income total":43115,"Net investment gain":11258,"Income from invest bond proceeds":0},"Other revenues":{"value":-4694,"Other total":0,"Royalties revenue":0,"Net rental income":0,"Net income from fundraising events":-4694,"Net income from gaming":0,"Net income":0,"Gross profit from sales of inventory":0,"Gain from sale of assets":0}},"Expenses":{"value":235102,"Grant expense":{"value":182880,"Grants to domestic orgs":179280,"Grants to domestic individuals":3600,"Grants and similar":0,"Foreign grants":0},"Total professional fundraising expense":{"value":0,"Fundraising professional":0,"Fees to independent contractors":0},"Benefits paid to members":{"value":0,"Benefits paid to members Total":0},"Salaries":{"value":0,"Current officers":0,"Disqualified persons":0,"Other salaries and wages":0,"Pension plan contributions":0,"Other employee benefits":0,"Payroll taxes":0},"Other expenses":{"value":52222,"Management services":28056,"Legal":0,"Accounting":5492,"Lobbying services":0,"Investment management fees":0,"Other services":0,"Advertising":0,"Office expenses":10409,"Information technology":0,"Royalties":0,"Occupancy":0,"Travel":2869,"Conferences and meetings":0,"Interest":0,"Payments to affiliates":0,"Depreciation and depletion":0,"Insurance":1254,"Travel entertainment public officials":0,"Travel entertainment payments":0,"Printing, publications, postage":0,"Itemized Expenses":{"value":4142,"bank fees , credit card":3531,"REGISTRATION":611},"All other expenses":0},"Functional Expenses":{"value":null,"Program Service Expenses":188887,"Management And General Expenses":28457,"Fundraising Expenses":17758}},"Assets":{"value":1084316,"Non-interest bearing cash":4082,"Savings and temp cash investments":199870,"Pledges and grants receivable":0,"Accounts receivable":0,"Receivables from officers":0,"Receivables from disqual persons":0,"Other net note and loans":0,"Inventories for sale or use":0,"Prepaid expenses deferred charges":0,"Land, building, equipment":0,"Investments publicly traded":880364,"Investments other":0,"Investments program related":0,"Intangible assets":0,"Other assets":0},"Liabilities":{"value":0,"Sum of Total Liabilities":0,"Accounts payable, accrued":0,"Grants payable":0,"Deferred, revenue":0,"Tax exempt bond liabilities":0,"Escrow account liability":0,"Loans from officers, directors":0,"Secured mortgages and notes payable":0,"Unsecured notes loans payable":0,"Other liabilities":0},"Fund balance":{"value":1084316,"Net assets without donor restriction":1084316,"Net assets with donor restriction":0,"Unrestricted net assets":0,"Temporarily restricted net assets":0,"Permanently restricted net assets":0},"Ratings":{"Program Expense Ratio":{"score":0.8034257471225256,"percentile":0.6298238582810373},"Fundraising Efficiency":{"score":14.037391598152945,"percentile":0.5012936865217545},"Operating Margin":{"score":0.21358732919670184,"percentile":0.7695247641021554},"Liabilities to Assets Ratio":{"score":0.0,"percentile":0.9977938754541298},"Operating Reserve Ratio":{"score":4.612108786824442,"percentile":0.7932525358919167},"Officer Compensation Ratio":{"score":null,"percentile":null},"Program Expense Growth":{"score":0.02831057915144578,"percentile":0.4414876251177163},"Revenue Growth":{"score":0.12029402447991192,"percentile":0.8045304801348097},"Asset Growth":{"score":0.08938697773504319,"percentile":0.6554660486757558},"Independent Voting Board Pct":{"score":1.0,"percentile":0.9933392423419786},"Governance Policy Score":{"score":6.0,"percentile":1.0},"Overall Score":{"score":0.7088259144477296,"percentile":0.862958697363782}},"source_xml":"202403449349300240_public.xml"},{"Organization":{"value":null,"Person":["ANN SLAW JD","KEN SLAW PHD","ANDREA GREENFIELD","RUTH WOODRUFF JD","TARA D SCHIMMEL MS ED","CAROL ALTERMAN RN","pat white","Terry finesmith horwich jd"],"Title":["PRESIDENT","VICE PRESIDENT","TREASURER","ADVISORY BOARD","NY REGIONAL REPRESENTATIVE","fl regional representative","advisory board","aDVISORY BOARD"],"Hours":[40.0,4.0,4.0,1.0,1.0,1.0,1.0,1.0],"Total Compensation":[0,0,0,0,0,0,0,0],"Direct compensation":[0,0,0,0,0,0,0,0],"Other compensation":[0,0,0,0,0,0,0,0]},"Basic":{"value":null,"mission":"To discover new treatments and cures for patients with famalial dysautonomia, a rare, fatal, genetic disease present at birth","year":2022,"name":"FAMILIAL DYSAUTONOMIA NOW FOUNDATION FD NOW","phone":8479130455,"website":"www.fdnow.org","type":"990","affiliation":null,"foreign_countries":["Mali"],"principal_officer":"ANN SLAW","year_formation":2009,"state_legal_domicile":"IL","total_volunteers":0,"tax_period_begin":"2022-08-01T00:00:00","tax_period_end":"2023-07-31T00:00:00","address":"1170 Green Knolls Drive, Buffalo Grove, IL, 60089, USA","city":"Buffalo Grove","state":"IL","country":"USA","zip_code":60089},"Governance":{"value":null,"501c3 determination":true,"501c determination":false,"Number of voting members":8,"Number of independent voting members":8,"Number of employees total":0,"Total Gross UBI":0,"Net unrelated business taxable income":0,"Number of employees":0,"Prohibited tax shelter transactions":true,"Taxable party notification":true,"Funds to pay premiums":false,"Premiums Paid":false,"Family or business relationship":true,"Delegation of management duties":true,"Conflict of interest policy":true,"Whistle blower policy":true,"Compensation process for CEO":true,"Compensation process for other employees":true,"Changes to organizing documents":true,"Material diversion or misuse":true,"Members or stockholders":true,"Election of board members":true,"Decisions subject to approval":true,"Minutes of governing body":true,"Local chapters":true,"Form 990 provided to governing body":true,"Document retention policy":true,"Investment in joint venture":true,"Independent audit financial statements":true,"Consolidated audit financial statements":true,"Accountant compile or review":true,"Political activities":true,"Donor advised funds":true,"Conservation easements":true,"Collections of art":true,"School":true,"Hospital":true,"Foreign activities":true,"Foreign office":true,"Gaming":true,"Fundraising activities":true,"Professional fundraising":true,"Loan to officer or DQP":true,"Grant to related person":true,"Business relationship through family member":true,"Business relationship with organization":true},"Revenues":{"value":363863,"Contributions":{"value":364345,"Other contributions":127658,"Contributions from gifts and grants":0,"Fundraising revenue":236687,"Dues":0,"Campaigns":0,"Grant revenue":0,"Related organizations":0},"Program revenue":{"value":0,"Total revenue":0,"Total other revenue":0,"Unrelated business revenue":0},"Investment income":{"value":8242,"Investment income total":8242,"Net investment gain":0,"Income from invest bond proceeds":0},"Other revenues":{"value":-8724,"Other total":0,"Royalties revenue":0,"Net rental income":0,"Net income from fundraising events":-8724,"Net income from gaming":0,"Net income":0,"Gross profit from sales of inventory":0,"Gain from sale of assets":0}},"Expenses":{"value":226852,"Grant expense":{"value":177720,"Grants to domestic orgs":177720,"Grants to domestic individuals":0,"Grants and similar":0,"Foreign grants":0},"Total professional fundraising expense":{"value":0,"Fundraising professional":0,"Fees to independent contractors":0},"Benefits paid to members":{"value":0,"Benefits paid to members Total":0},"Salaries":{"value":0,"Current officers":0,"Disqualified persons":0,"Other salaries and wages":0,"Pension plan contributions":0,"Other employee benefits":0,"Payroll taxes":0},"Other expenses":{"value":49132,"Management services":31164,"Legal":0,"Accounting":0,"Lobbying services":0,"Investment management fees":0,"Other services":0,"Advertising":0,"Office expenses":11755,"Information technology":0,"Royalties":0,"Occupancy":0,"Travel":1260,"Conferences and meetings":0,"Interest":0,"Payments to affiliates":0,"Depreciation and depletion":0,"Insurance":1254,"Travel entertainment public officials":0,"Travel entertainment payments":0,"Printing, publications, postage":0,"Itemized Expenses":{"value":3699,"bank fees , credit card":3199,"REGISTRATION":500},"All other expenses":0},"Functional Expenses":{"value":null,"Program Service Expenses":181805,"Management And General Expenses":17281,"Fundraising Expenses":27766}},"Assets":{"value":1031053,"Non-interest bearing cash":9719,"Savings and temp cash investments":339380,"Pledges and grants receivable":0,"Accounts receivable":0,"Receivables from officers":0,"Receivables from disqual persons":0,"Other net note and loans":0,"Inventories for sale or use":0,"Prepaid expenses deferred charges":0,"Land, building, equipment":0,"Investments publicly traded":681954,"Investments other":0,"Investments program related":0,"Intangible assets":0,"Other assets":0},"Liabilities":{"value":0,"Sum of Total Liabilities":0,"Accounts payable, accrued":0,"Grants payable":0,"Deferred, revenue":0,"Tax exempt bond liabilities":0,"Escrow account liability":0,"Loans from officers, directors":0,"Secured mortgages and notes payable":0,"Unsecured notes loans payable":0,"Other liabilities":0},"Fund balance":{"value":1031053,"Net assets without donor restriction":1031053,"Net assets with donor restriction":0,"Unrestricted net assets":0,"Temporarily restricted net assets":0,"Permanently restricted net assets":0},"Ratings":{"Program Expense Ratio":{"score":0.8014255990689966,"percentile":0.6273281480347691},"Fundraising Efficiency":{"score":13.121983721097745,"percentile":0.48156532708907573},"Operating Margin":{"score":0.37654556797475974,"percentile":0.8750511292872429},"Liabilities to Assets Ratio":{"score":0.0,"percentile":0.9977938754541298},"Operating Reserve Ratio":{"score":4.54504699098972,"percentile":0.7908106669436664},"Officer Compensation Ratio":{"score":null,"percentile":null},"Program Expense Growth":{"score":0.027067412177885886,"percentile":0.4360831738790284},"Revenue Growth":{"score":0.20533104674142252,"percentile":0.9004129791528258},"Asset Growth":{"score":0.09271696387954298,"percentile":0.664392189472604},"Independent Voting Board Pct":{"score":1.0,"percentile":0.9933392423419786},"Governance Policy Score":{"score":6.0,"percentile":1.0},"Overall Score":{"score":0.7306012404087091,"percentile":0.8940579151636985}},"source_xml":"202410169349300021_public.xml"},{"Organization":{"value":null,"Person":["ANN SLAW JD","KEN SLAW PHD","LYNN CABIN MST","ANDREA GREENFIELD","RUTH WOODRUFF JD","TARA D SCHIMMEL MS ED","CAROL ALTERMAN RN","PAT WHITE","TERRY FINESMITH HORWICH JD"],"Title":["PRESIDENT","VICE PRESIDENT","TREASURER","ADVISORY BOARD","ADVISORY BOARD","NY REGIONAL REPRESENTATIVE","FL REGIONAL REPRESENTATIVE","ADVISORY BOARD","ADVISORY BOARD"],"Hours":[40.0,4.0,4.0,1.0,1.0,1.0,1.0,1.0,1.0],"Total Compensation":[0,0,0,0,0,0,0,0,0],"Direct compensation":[0,0,0,0,0,0,0,0,0],"Other compensation":[0,0,0,0,0,0,0,0,0]},"Basic":{"value":null,"mission":"To discover new treatments and cures for patients with familial dysautonomia, a rare, fatal, genetic disease present at birth","year":2019,"name":"FAMILIAL DYSAUTONOMIA NOW FOUNDATION FD NOW","phone":8479130455,"website":"WWW.FDNOW.ORG","type":"990","affiliation":null,"foreign_countries":null,"principal_officer":"ANN SLAW","year_formation":2009,"state_legal_domicile":"IL","total_volunteers":15,"tax_period_begin":"2019-08-01T00:00:00","tax_period_end":"2020-07-31T00:00:00","address":"1170 GREEN KNOLLS DRIVE, BUFFALO GROVE, IL, 60089, USA","city":"BUFFALO GROVE","state":"IL","country":"USA","zip_code":60089},"Governance":{"value":null,"501c3 determination":true,"501c determination":false,"Number of voting members":9,"Number of independent voting members":9,"Number of employees total":0,"Total Gross UBI":0,"Net unrelated business taxable income":0,"Number of employees":0,"Prohibited tax shelter transactions":true,"Taxable party notification":true,"Funds to pay premiums":true,"Premiums Paid":true,"Family or business relationship":true,"Delegation of management duties":true,"Conflict of interest policy":true,"Whistle blower policy":true,"Compensation process for CEO":true,"Compensation process for other employees":true,"Changes to organizing documents":true,"Material diversion or misuse":true,"Members or stockholders":true,"Election of board members":true,"Decisions subject to approval":true,"Minutes of governing body":true,"Local chapters":true,"Form 990 provided to governing body":true,"Document retention policy":true,"Investment in joint venture":true,"Independent audit financial statements":true,"Consolidated audit financial statements":true,"Accountant compile or review":true,"Political activities":true,"Donor advised funds":true,"Conservation easements":true,"Collections of art":true,"School":true,"Hospital":true,"Foreign activities":true,"Foreign office":true,"Gaming":true,"Fundraising activities":true,"Professional fundraising":true,"Loan to officer or DQP":true,"Grant to related person":true,"Business relationship through family member":true,"Business relationship with organization":true},"Revenues":{"value":198758,"Contributions":{"value":175468,"Other contributions":93790,"Contributions from gifts and grants":0,"Fundraising revenue":81678,"Dues":0,"Campaigns":0,"Grant revenue":0,"Related organizations":0},"Program revenue":{"value":0,"Total revenue":0,"Total other revenue":0,"Unrelated business revenue":0},"Investment income":{"value":11173,"Investment income total":11173,"Net investment gain":0,"Income from invest bond proceeds":0},"Other revenues":{"value":12117,"Other total":0,"Royalties revenue":0,"Net rental income":0,"Net income from fundraising events":12117,"Net income from gaming":0,"Net income":0,"Gross profit from sales of inventory":0,"Gain from sale of assets":0}},"Expenses":{"value":206405,"Grant expense":{"value":162206,"Grants to domestic orgs":162206,"Grants to domestic individuals":0,"Grants and similar":0,"Foreign grants":0},"Total professional fundraising expense":{"value":0,"Fundraising professional":0,"Fees to independent contractors":0},"Benefits paid to members":{"value":0,"Benefits paid to members Total":0},"Salaries":{"value":0,"Current officers":0,"Disqualified persons":0,"Other salaries and wages":0,"Pension plan contributions":0,"Other employee benefits":0,"Payroll taxes":0},"Other expenses":{"value":44199,"Management services":23844,"Legal":0,"Accounting":0,"Lobbying services":0,"Investment management fees":0,"Other services":0,"Advertising":0,"Office expenses":17195,"Information technology":0,"Royalties":0,"Occupancy":0,"Travel":0,"Conferences and meetings":0,"Interest":0,"Payments to affiliates":0,"Depreciation and depletion":0,"Insurance":1229,"Travel entertainment public officials":0,"Travel entertainment payments":0,"Printing, publications, postage":0,"Itemized Expenses":{"value":1931,"BANK FEES , CREDIT CARD":1304,"DUES":500,"MISCELLANEOUS":127},"All other expenses":0},"Functional Expenses":{"value":null,"Program Service Expenses":170719,"Management And General Expenses":14163,"Fundraising Expenses":21523}},"Assets":{"value":783451,"Non-interest bearing cash":9944,"Savings and temp cash investments":773507,"Pledges and grants receivable":0,"Accounts receivable":0,"Receivables from officers":0,"Receivables from disqual persons":0,"Other net note and loans":0,"Inventories for sale or use":0,"Prepaid expenses deferred charges":0,"Land, building, equipment":0,"Investments publicly traded":0,"Investments other":0,"Investments program related":0,"Intangible assets":0,"Other assets":0},"Liabilities":{"value":0,"Sum of Total Liabilities":0,"Accounts payable, accrued":0,"Grants payable":0,"Deferred, revenue":0,"Tax exempt bond liabilities":0,"Escrow account liability":0,"Loans from officers, directors":0,"Secured mortgages and notes payable":0,"Unsecured notes loans payable":0,"Other liabilities":0},"Fund balance":{"value":783451,"Net assets without donor restriction":783451,"Net assets with donor restriction":0,"Unrestricted net assets":0,"Temporarily restricted net assets":0,"Permanently restricted net assets":0},"Ratings":{"Program Expense Ratio":{"score":0.8271069014800998,"percentile":0.6606254984572998},"Fundraising Efficiency":{"score":8.152580959903359,"percentile":0.33668395742307244},"Operating Margin":{"score":-0.038473923062216364,"percentile":0.30390759208010143},"Liabilities to Assets Ratio":{"score":0.0,"percentile":0.9977938754541298},"Operating Reserve Ratio":{"score":3.7956977786390835,"percentile":0.7591884337501331},"Officer Compensation Ratio":{"score":null,"percentile":null},"Program Expense Growth":{"score":null,"percentile":null},"Revenue Growth":{"score":null,"percentile":null},"Asset Growth":{"score":null,"percentile":null},"Independent Voting Board Pct":{"score":1.0,"percentile":0.9933392423419786},"Governance Policy Score":{"score":6.0,"percentile":1.0},"Overall Score":{"score":0.6274913494344431,"percentile":0.6832604622485917}},"source_xml":"202131039349301118_public.xml"},{"Organization":{"value":null,"Person":["ANN SLAW JD","KEN SLAW PHD","ANDREA GREENFIELD","RUTH WOODRUFF JD","TARA D SCHIMMEL MS ED","CAROL ALTERMAN RN","PAT WHITE","TERRY FINESMITH HORWICH JD"],"Title":["PRESIDENT","VICE PRESIDENT","TREASURER","ADVISORY BOARD","NY REGIONAL REPRESENTATIVE","FL REGIONAL REPRESENTATIVE","ADVISORY BOARD","ADVISORY BOARD"],"Hours":[40.0,4.0,4.0,1.0,1.0,1.0,1.0,1.0],"Total Compensation":[0,0,0,0,0,0,0,0],"Direct compensation":[0,0,0,0,0,0,0,0],"Other compensation":[0,0,0,0,0,0,0,0]},"Basic":{"value":null,"mission":"To discover new treatments and cures for patients with familial dysautonomia, a rare, fatal, genetic disease present at birth","year":2020,"name":"FAMILIAL DYSAUTONOMIA NOW FOUNDATION FD NOW","phone":8479130455,"website":"WWW.FDNOW.ORG","type":"990","affiliation":null,"foreign_countries":null,"principal_officer":"ANN SLAW","year_formation":2009,"state_legal_domicile":"IL","total_volunteers":0,"tax_period_begin":"2020-08-01T00:00:00","tax_period_end":"2021-07-31T00:00:00","address":"1170 GREEN KNOLLS DRIVE, BUFFALO GROVE, IL, 60089, USA","city":"BUFFALO GROVE","state":"IL","country":"USA","zip_code":60089},"Governance":{"value":null,"501c3 determination":true,"501c determination":false,"Number of voting members":8,"Number of independent voting members":8,"Number of employees total":0,"Total Gross UBI":0,"Net unrelated business taxable income":0,"Number of employees":0,"Prohibited tax shelter transactions":true,"Taxable party notification":true,"Funds to pay premiums":false,"Premiums Paid":false,"Family or business relationship":true,"Delegation of management duties":true,"Conflict of interest policy":true,"Whistle blower policy":true,"Compensation process for CEO":true,"Compensation process for other employees":true,"Changes to organizing documents":true,"Material diversion or misuse":true,"Members or stockholders":true,"Election of board members":true,"Decisions subject to approval":true,"Minutes of governing body":true,"Local chapters":true,"Form 990 provided to governing body":true,"Document retention policy":true,"Investment in joint venture":true,"Independent audit financial statements":true,"Consolidated audit financial statements":true,"Accountant compile or review":true,"Political activities":true,"Donor advised funds":true,"Conservation easements":true,"Collections of art":true,"School":true,"Hospital":true,"Foreign activities":true,"Foreign office":true,"Gaming":true,"Fundraising activities":true,"Professional fundraising":true,"Loan to officer or DQP":true,"Grant to related person":true,"Business relationship through family member":true,"Business relationship with organization":true},"Revenues":{"value":230833,"Contributions":{"value":217378,"Other contributions":110169,"Contributions from gifts and grants":0,"Fundraising revenue":107209,"Dues":0,"Campaigns":0,"Grant revenue":0,"Related organizations":0},"Program revenue":{"value":0,"Total revenue":0,"Total other revenue":0,"Unrelated business revenue":0},"Investment income":{"value":1870,"Investment income total":1870,"Net investment gain":0,"Income from invest bond proceeds":0},"Other revenues":{"value":11585,"Other total":0,"Royalties revenue":0,"Net rental income":0,"Net income from fundraising events":11585,"Net income from gaming":0,"Net income":0,"Gross profit from sales of inventory":0,"Gain from sale of assets":0}},"Expenses":{"value":203083,"Grant expense":{"value":164339,"Grants to domestic orgs":164339,"Grants to domestic individuals":0,"Grants and similar":0,"Foreign grants":0},"Total professional fundraising expense":{"value":0,"Fundraising professional":0,"Fees to independent contractors":0},"Benefits paid to members":{"value":0,"Benefits paid to members Total":0},"Salaries":{"value":0,"Current officers":0,"Disqualified persons":0,"Other salaries and wages":0,"Pension plan contributions":0,"Other employee benefits":0,"Payroll taxes":0},"Other expenses":{"value":38744,"Management services":25973,"Legal":0,"Accounting":0,"Lobbying services":0,"Investment management fees":0,"Other services":0,"Advertising":0,"Office expenses":9955,"Information technology":0,"Royalties":0,"Occupancy":0,"Travel":0,"Conferences and meetings":0,"Interest":0,"Payments to affiliates":0,"Depreciation and depletion":0,"Insurance":1229,"Travel entertainment public officials":0,"Travel entertainment payments":0,"Printing, publications, postage":0,"Itemized Expenses":{"value":1587,"BANK FEES , CREDIT CARD":1148,"MISCELLANEOUS":245,"REGISTRATION":194},"All other expenses":0},"Functional Expenses":{"value":null,"Program Service Expenses":167689,"Management And General Expenses":15391,"Fundraising Expenses":20003}},"Assets":{"value":811730,"Non-interest bearing cash":6823,"Savings and temp cash investments":140451,"Pledges and grants receivable":0,"Accounts receivable":0,"Receivables from officers":0,"Receivables from disqual persons":0,"Other net note and loans":0,"Inventories for sale or use":0,"Prepaid expenses deferred charges":0,"Land, building, equipment":0,"Investments publicly traded":664456,"Investments other":0,"Investments program related":0,"Intangible assets":0,"Other assets":0},"Liabilities":{"value":0,"Sum of Total Liabilities":0,"Accounts payable, accrued":0,"Grants payable":0,"Deferred, revenue":0,"Tax exempt bond liabilities":0,"Escrow account liability":0,"Loans from officers, directors":0,"Secured mortgages and notes payable":0,"Unsecured notes loans payable":0,"Other liabilities":0},"Fund balance":{"value":811730,"Net assets without donor restriction":811730,"Net assets with donor restriction":0,"Unrestricted net assets":0,"Temporarily restricted net assets":0,"Permanently restricted net assets":0},"Ratings":{"Program Expense Ratio":{"score":0.825716578935706,"percentile":0.6587349858619385},"Fundraising Efficiency":{"score":10.867269909513572,"percentile":0.42455479422463777},"Operating Margin":{"score":0.12021678009643336,"percentile":0.6561236225153511},"Liabilities to Assets Ratio":{"score":0.0,"percentile":0.9977938754541298},"Operating Reserve Ratio":{"score":3.9970356947651946,"percentile":0.7686184171038744},"Officer Compensation Ratio":{"score":null,"percentile":null},"Program Expense Growth":{"score":null,"percentile":null},"Revenue Growth":{"score":null,"percentile":null},"Asset Growth":{"score":null,"percentile":null},"Independent Voting Board Pct":{"score":1.0,"percentile":0.9933392423419786},"Governance Policy Score":{"score":6.0,"percentile":1.0},"Overall Score":{"score":0.7130724039681803,"percentile":0.8694480002831783}},"source_xml":"202143479349301614_public.xml"}],"Latest":{"Organization":{"value":null,"Person":["ANN SLAW JD","KEN SLAW PHD","ANDREA GREENFIELD","RUTH WOODRUFF JD","TARA D SCHIMMEL MS ED","CAROL ALTERMAN RN","pat white","Terry finesmith horwich jd"],"Title":["PRESIDENT","VICE PRESIDENT","TREASURER","ADVISORY BOARD","NY REGIONAL REPRESENTATIVE","fl regional representative","advisory board","aDVISORY BOARD"],"Hours":[40.0,4.0,4.0,1.0,1.0,1.0,1.0,1.0],"Total Compensation":[0,0,0,0,0,0,0,0],"Direct compensation":[0,0,0,0,0,0,0,0],"Other compensation":[0,0,0,0,0,0,0,0]},"Basic":{"value":null,"mission":"To discover new treatments and cures for patients with famalial dysautonomia, a rare, fatal, genetic disease present at birth","year":2024,"name":"FAMILIAL DYSAUTONOMIA NOW FOUNDATION FD NOW","phone":8479130455,"website":"www.fdnow.org","type":"990","affiliation":null,"foreign_countries":["Mali"],"principal_officer":"ANN SLAW","year_formation":2009,"state_legal_domicile":"IL","total_volunteers":8,"tax_period_begin":"2024-08-01T00:00:00","tax_period_end":"2025-07-31T00:00:00","address":"1170 Green Knolls Drive, Buffalo Grove, IL, 60089, USA","city":"Buffalo Grove","state":"IL","country":"USA","zip_code":60089},"Governance":{"value":null,"501c3 determination":true,"501c determination":false,"Number of voting members":8,"Number of independent voting members":8,"Number of employees total":0,"Total Gross UBI":0,"Net unrelated business taxable income":0,"Number of employees":0,"Prohibited tax shelter transactions":true,"Taxable party notification":true,"Funds to pay premiums":true,"Premiums Paid":true,"Family or business relationship":true,"Delegation of management duties":true,"Conflict of interest policy":true,"Whistle blower policy":true,"Compensation process for CEO":true,"Compensation process for other employees":true,"Changes to organizing documents":true,"Material diversion or misuse":true,"Members or stockholders":true,"Election of board members":true,"Decisions subject to approval":true,"Minutes of governing body":true,"Local chapters":true,"Form 990 provided to governing body":true,"Document retention policy":true,"Investment in joint venture":true,"Independent audit financial statements":true,"Consolidated audit financial statements":true,"Accountant compile or review":true,"Political activities":true,"Donor advised funds":true,"Conservation easements":true,"Collections of art":true,"School":true,"Hospital":true,"Foreign activities":true,"Foreign office":true,"Gaming":true,"Fundraising activities":true,"Professional fundraising":true,"Loan to officer or DQP":true,"Grant to related person":true,"Business relationship through family member":true,"Business relationship with organization":true},"Revenues":{"value":289025,"Contributions":{"value":244764,"Other contributions":109231,"Contributions from gifts and grants":0,"Fundraising revenue":135533,"Dues":0,"Campaigns":0,"Grant revenue":0,"Related organizations":0},"Program revenue":{"value":0,"Total revenue":0,"Total other revenue":0,"Unrelated business revenue":0},"Investment income":{"value":44207,"Investment income total":44166,"Net investment gain":41,"Income from invest bond proceeds":0},"Other revenues":{"value":54,"Other total":54,"Royalties revenue":0,"Net rental income":0,"Net income from fundraising events":0,"Net income from gaming":0,"Net income":0,"Gross profit from sales of inventory":0,"Gain from sale of assets":0}},"Expenses":{"value":233939,"Grant expense":{"value":176400,"Grants to domestic orgs":176400,"Grants to domestic individuals":0,"Grants and similar":0,"Foreign grants":0},"Total professional fundraising expense":{"value":0,"Fundraising professional":0,"Fees to independent contractors":0},"Benefits paid to members":{"value":0,"Benefits paid to members Total":0},"Salaries":{"value":0,"Current officers":0,"Disqualified persons":0,"Other salaries and wages":0,"Pension plan contributions":0,"Other employee benefits":0,"Payroll taxes":0},"Other expenses":{"value":57539,"Management services":0,"Legal":0,"Accounting":0,"Lobbying services":0,"Investment management fees":0,"Other services":34731,"Advertising":0,"Office expenses":13226,"Information technology":2119,"Royalties":0,"Occupancy":0,"Travel":2252,"Conferences and meetings":0,"Interest":0,"Payments to affiliates":0,"Depreciation and depletion":0,"Insurance":1257,"Travel entertainment public officials":0,"Travel entertainment payments":0,"Printing, publications, postage":0,"Itemized Expenses":{"value":3954,"bank fees , credit card":2798,"Books, subscriptions, R":1130,"REGISTRATION":26},"All other expenses":0},"Functional Expenses":{"value":null,"Program Service Expenses":217915,"Management And General Expenses":16024,"Fundraising Expenses":0}},"Assets":{"value":1146133,"Non-interest bearing cash":20083,"Savings and temp cash investments":0,"Pledges and grants receivable":0,"Accounts receivable":0,"Receivables from officers":0,"Receivables from disqual persons":0,"Other net note and loans":0,"Inventories for sale or use":0,"Prepaid expenses deferred charges":0,"Land, building, equipment":0,"Investments publicly traded":1126050,"Investments other":0,"Investments program related":0,"Intangible assets":0,"Other assets":0},"Liabilities":{"value":0,"Sum of Total Liabilities":0,"Accounts payable, accrued":0,"Grants payable":0,"Deferred, revenue":0,"Tax exempt bond liabilities":0,"Escrow account liability":0,"Loans from officers, directors":0,"Secured mortgages and notes payable":0,"Unsecured notes loans payable":0,"Other liabilities":0},"Fund balance":{"value":1146133,"Net assets without donor restriction":1146133,"Net assets with donor restriction":0,"Unrestricted net assets":0,"Temporarily restricted net assets":0,"Permanently restricted net assets":0},"Ratings":{"Program Expense Ratio":{"score":0.9315035115991775,"percentile":0.8188761248016241},"Fundraising Efficiency":{"score":null,"percentile":null},"Operating Margin":{"score":0.19059250929850358,"percentile":0.7466530824616813},"Liabilities to Assets Ratio":{"score":0.0,"percentile":0.9977938754541298},"Operating Reserve Ratio":{"score":4.899281436613818,"percentile":0.8029969732788845},"Officer Compensation Ratio":{"score":null,"percentile":null},"Program Expense Growth":{"score":0.04628800214357854,"percentile":0.5171649381620067},"Revenue Growth":{"score":0.07431782544792546,"percentile":0.6953551533924568},"Asset Growth":{"score":0.08304591781880932,"percentile":0.637583488069368},"Independent Voting Board Pct":{"score":1.0,"percentile":0.9933392423419786},"Governance Policy Score":{"score":6.0,"percentile":1.0},"Overall Score":{"score":0.7829580746603682,"percentile":0.9474216275033333}},"source_xml":"202533459349300628_public.xml"},"sector":"Health","donation_categories":[],"zakat_policy":null},"error":null}