{"success":true,"data":{"_id":263331487,"filings":[{"Organization":{"value":null,"Person":["NICOLE R BOICE","WALT KOWTONIUK","KATHERINE MAYNARD","SIMON FROST","CHRISTINA HARTMAN","BETSY BOGARD","KHRYSTAL DAVIS","ILANA FOGELMAN","PETER GOODHAND","HUGH HEMPEL","RAM IYER","NEIL KUMAR","CAROLINE LOEWY","INDU NAVAR","DAVID PEARCE","JOHN REYNDERS","MORRIE RUFFIN","ALVIN SHIH","KELLY MCVEARRY","CHARLENE SON RIGBY","VICTORIA WEISS","KARMEN TRZUPEK","ZOHREH TALEBIZADEH","LAUREN ALFORD","TIMOTHY EHRHARD","CHWENWOAN KUAN"],"Title":["FOUNDER & CHIEF MISSION OFFICER","CHAIR","VICE CHAIR","CFO","SECRETARY","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","CEO","SENIOR DIRECTOR, FINANCE","SENIOR DIRECTOR, SCIENTIFIC PROGRAMS","SENIOR DIRECTOR, RARE-X RESEARCH PROGRAM","SENIOR DIRECTOR, MARKETING","SENIOR DIRECTOR, IT (TERM 12/24)","DIRECTOR, PROGRAM OPERATIONS"],"Hours":[40.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,40.0,24.0,40.0,40.0,40.0,40.0,40.0],"Total Compensation":[254461,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,319961,136886,185673,180086,168592,151832,152347],"Direct compensation":[254375,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,319125,136800,179287,180000,168506,151746,146285],"Other compensation":[86,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,836,86,6386,86,86,86,6062]},"Basic":{"value":null,"mission":"Global genes strives to connect, empower and inspire the rare disease community.","year":2024,"name":"GLOBAL GENES","phone":9492487273,"website":"GLOBALGENES.ORG","type":"990","affiliation":null,"foreign_countries":["Australia","China","Hong Kong","Indonesia","Japan","Macau","Malaysia","Marshall Islands","Micronesia","Mongolia","Nauru","New Zealand","Niue","North Korea","Palau","Papua New Guinea","Philippines","Samoa","Solomon Islands","South Korea","Taiwan","Tonga","Tuvalu","Vanuatu"],"principal_officer":"CHARLENE SON RIGBY","year_formation":2008,"state_legal_domicile":"CA","total_volunteers":42,"tax_period_begin":"2024-01-01T00:00:00","tax_period_end":"2024-12-31T00:00:00","address":"1012 14TH STREET NW SUITE 500, WASHINGTON, DC, 20005, USA","city":"WASHINGTON","state":"DC","country":"USA","zip_code":20005},"Governance":{"value":null,"501c3 determination":true,"501c determination":false,"Number of voting members":18,"Number of independent voting members":17,"Number of employees total":38,"Total Gross UBI":0,"Net unrelated business taxable income":0,"Number of employees":38,"Prohibited tax shelter transactions":true,"Taxable party notification":true,"Funds to pay premiums":true,"Premiums Paid":true,"Family or business relationship":true,"Delegation of management duties":true,"Conflict of interest policy":true,"Whistle blower policy":true,"Compensation process for CEO":true,"Compensation process for other employees":true,"Changes to organizing documents":true,"Material diversion or misuse":true,"Members or stockholders":true,"Election of board members":true,"Decisions subject to approval":true,"Minutes of governing body":true,"Local chapters":true,"Form 990 provided to governing body":true,"Document retention policy":true,"Investment in joint venture":true,"Independent audit financial statements":true,"Consolidated audit financial statements":true,"Accountant compile or review":true,"Political activities":true,"Donor advised funds":true,"Conservation easements":true,"Collections of art":true,"School":true,"Hospital":true,"Foreign activities":true,"Foreign office":true,"Gaming":true,"Fundraising activities":true,"Professional fundraising":true,"Loan to officer or DQP":true,"Grant to related person":true,"Business relationship through family member":true,"Business relationship with organization":true},"Revenues":{"value":7145531,"Contributions":{"value":5686341,"Other contributions":5686341,"Contributions from gifts and grants":0,"Fundraising revenue":0,"Dues":0,"Campaigns":0,"Grant revenue":0,"Related organizations":0},"Program revenue":{"value":1449717,"Total revenue":{"value":1449717,"MEMBERSHIP FEES":1422000,"CONFERENCE SPONSORSHIP":27717},"Total other revenue":0,"Unrelated business revenue":0},"Investment income":{"value":9473,"Investment income total":9473,"Net investment gain":0,"Income from invest bond proceeds":0},"Other revenues":{"value":0,"Other total":0,"Royalties revenue":0,"Net rental income":0,"Net income from fundraising events":0,"Net income from gaming":0,"Net income":0,"Gross profit from sales of inventory":0,"Gain from sale of assets":0}},"Expenses":{"value":7415893,"Grant expense":{"value":175264,"Grants to domestic orgs":70750,"Grants to domestic individuals":95514,"Grants and similar":0,"Foreign grants":9000},"Total professional fundraising expense":{"value":0,"Fundraising professional":0,"Fees to independent contractors":0},"Benefits paid to members":{"value":0,"Benefits paid to members Total":0},"Salaries":{"value":3960600,"Current officers":711308,"Disqualified persons":0,"Other salaries and wages":2848775,"Pension plan contributions":0,"Other employee benefits":113150,"Payroll taxes":287367},"Other expenses":{"value":3280029,"Management services":0,"Legal":7417,"Accounting":61310,"Lobbying services":0,"Investment management fees":0,"Other services":1148545,"Advertising":38962,"Office expenses":7912,"Information technology":428498,"Royalties":0,"Occupancy":78909,"Travel":137940,"Conferences and meetings":999104,"Interest":0,"Payments to affiliates":0,"Depreciation and depletion":0,"Insurance":27363,"Travel entertainment public officials":0,"Travel entertainment payments":0,"Printing, publications, postage":0,"Itemized Expenses":{"value":332528,"PROGRAM AWARENESS":146060,"FEES AND TAXES":107811,"BANK CHARGES":72557,"OTHER COSTS":6100},"All other expenses":11541},"Functional Expenses":{"value":null,"Program Service Expenses":5861349,"Management And General Expenses":954354,"Fundraising Expenses":600190}},"Assets":{"value":1538482,"Non-interest bearing cash":554935,"Savings and temp cash investments":2003,"Pledges and grants receivable":0,"Accounts receivable":853682,"Receivables from officers":0,"Receivables from disqual persons":0,"Other net note and loans":0,"Inventories for sale or use":0,"Prepaid expenses deferred charges":126862,"Land, building, equipment":0,"Investments publicly traded":0,"Investments other":0,"Investments program related":0,"Intangible assets":0,"Other assets":1000},"Liabilities":{"value":1351107,"Sum of Total Liabilities":0,"Accounts payable, accrued":718207,"Grants payable":0,"Deferred, revenue":437000,"Tax exempt bond liabilities":0,"Escrow account liability":0,"Loans from officers, directors":0,"Secured mortgages and notes payable":0,"Unsecured notes loans payable":0,"Other liabilities":195900},"Fund balance":{"value":187375,"Net assets without donor restriction":-1318314,"Net assets with donor restriction":1505689,"Unrestricted net assets":0,"Temporarily restricted net assets":0,"Permanently restricted net assets":0},"Ratings":{"Program Expense Ratio":{"score":0.7903766950251305,"percentile":0.6134728476714492},"Fundraising Efficiency":{"score":9.474234825638547,"percentile":0.38249918154526175},"Operating Margin":{"score":-0.03783651627849631,"percentile":0.3050120050649329},"Liabilities to Assets Ratio":{"score":0.8782078698353312,"percentile":0.06815286128413245},"Operating Reserve Ratio":{"score":0.20745741611967702,"percentile":0.11898528351082674},"Officer Compensation Ratio":{"score":0.2089887219246556,"percentile":0.2993122990583366},"Program Expense Growth":{"score":0.11534743113027661,"percentile":0.7045778024183356},"Revenue Growth":{"score":0.10066515018292448,"percentile":0.7653869100362809},"Asset Growth":{"score":0.07449826904476152,"percentile":0.6120173476313822},"Independent Voting Board Pct":{"score":0.9444444444444444,"percentile":0.26473254673740193},"Governance Policy Score":{"score":6.0,"percentile":1.0},"Overall Score":{"score":0.49251333172271644,"percentile":0.30354054879396236}},"source_xml":"202512979349302126_public.xml"},{"Organization":{"value":null,"Person":["CAROLINE LOEWY","JOHN CROWLEY","NICOLE BOICE","NATALIE DOUGLAS","HUGH HEMPEL","PETER PELLIZZON","BRAD MARGUS","WENDY WHITE","MATT WILSEY","BARBARA LAVERY","ANDREA EPSTEIN","NORMAN SCHMELTZER","AMY GROVER"],"Title":["DIRECTOR","DIRECTOR","PRESIDENT/CEO","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","EXECUTIVE DIRECTOR","DIRECTOR","TREASURER/SECRETARY"],"Hours":[1.0,1.0,45.0,1.0,1.0,1.0,1.0,1.0,1.0,3.0,40.0,1.0,40.0],"Total Compensation":[0,0,157600,0,0,0,0,0,0,0,127000,0,61000],"Direct compensation":[0,0,157600,0,0,0,0,0,0,0,127000,0,61000],"Other compensation":[0,0,0,0,0,0,0,0,0,0,0,0,0]},"Basic":{"value":null,"mission":"To create greater public awareness for rare diseases, while connecting, educating and empowering the millions of families and caregivers affected, through an online community and collaborative portal.","year":2014,"name":"GLOBAL GENES","phone":9492487273,"website":"WWW.GLOBALGENES.ORG","type":"990","affiliation":null,"foreign_countries":null,"principal_officer":"NICOLE BOICE","year_formation":2008,"state_legal_domicile":"CA","total_volunteers":0,"tax_period_begin":"2014-01-01T00:00:00","tax_period_end":"2014-12-31T00:00:00","address":"28 ARGONAUT SUITE 140 150, ALISO VIEJO, CA, 92656, USA","city":"ALISO VIEJO","state":"CA","country":"USA","zip_code":92656},"Governance":{"value":null,"501c3 determination":true,"501c determination":false,"Number of voting members":9,"Number of independent voting members":9,"Number of employees total":4,"Total Gross UBI":0,"Net unrelated business taxable income":0,"Number of employees":4,"Prohibited tax shelter transactions":true,"Taxable party notification":true,"Funds to pay premiums":false,"Premiums Paid":false,"Family or business relationship":true,"Delegation of management duties":true,"Conflict of interest policy":true,"Whistle blower policy":true,"Compensation process for CEO":true,"Compensation process for other employees":true,"Changes to organizing documents":true,"Material diversion or misuse":true,"Members or stockholders":true,"Election of board members":true,"Decisions subject to approval":true,"Minutes of governing body":true,"Local chapters":true,"Form 990 provided to governing body":true,"Document retention policy":true,"Investment in joint venture":true,"Independent audit financial statements":true,"Consolidated audit financial statements":true,"Accountant compile or review":true,"Political activities":true,"Donor advised funds":true,"Conservation easements":true,"Collections of art":true,"School":true,"Hospital":true,"Foreign activities":true,"Foreign office":true,"Gaming":true,"Fundraising activities":true,"Professional fundraising":true,"Loan to officer or DQP":true,"Grant to related person":true,"Business relationship through family member":true,"Business relationship with organization":true},"Revenues":{"value":2131761,"Contributions":{"value":2131761,"Other contributions":1138000,"Contributions from gifts and grants":0,"Fundraising revenue":993761,"Dues":0,"Campaigns":0,"Grant revenue":0,"Related organizations":0},"Program revenue":{"value":0,"Total revenue":0,"Total other revenue":0,"Unrelated business revenue":0},"Investment income":{"value":0,"Investment income total":0,"Net investment gain":0,"Income from invest bond proceeds":0},"Other revenues":{"value":0,"Other total":0,"Royalties revenue":0,"Net rental income":0,"Net income from fundraising events":0,"Net income from gaming":0,"Net income":0,"Gross profit from sales of inventory":0,"Gain from sale of assets":0}},"Expenses":{"value":1825225,"Grant expense":{"value":120698,"Grants to domestic orgs":120698,"Grants to domestic individuals":0,"Grants and similar":0,"Foreign grants":0},"Total professional fundraising expense":{"value":0,"Fundraising professional":0,"Fees to independent contractors":0},"Benefits paid to members":{"value":0,"Benefits paid to members Total":0},"Salaries":{"value":402139,"Current officers":345600,"Disqualified persons":0,"Other salaries and wages":29800,"Pension plan contributions":0,"Other employee benefits":0,"Payroll taxes":26739},"Other expenses":{"value":1302388,"Management services":0,"Legal":10584,"Accounting":27298,"Lobbying services":0,"Investment management fees":0,"Other services":466642,"Advertising":125020,"Office expenses":0,"Information technology":37076,"Royalties":0,"Occupancy":61726,"Travel":156981,"Conferences and meetings":231860,"Interest":0,"Payments to affiliates":0,"Depreciation and depletion":5766,"Insurance":3020,"Travel entertainment public officials":0,"Travel entertainment payments":0,"Printing, publications, postage":0,"Itemized Expenses":{"value":120455,"PRINTING AND REPRODUCTI":44736,"SUPPLIES":36736,"GIFT PRODUCTS":22814,"POSTAGE & SHIPPING":16169},"All other expenses":55960},"Functional Expenses":{"value":null,"Program Service Expenses":1342993,"Management And General Expenses":225535,"Fundraising Expenses":256697}},"Assets":{"value":744445,"Non-interest bearing cash":610776,"Savings and temp cash investments":0,"Pledges and grants receivable":0,"Accounts receivable":0,"Receivables from officers":0,"Receivables from disqual persons":0,"Other net note and loans":0,"Inventories for sale or use":24869,"Prepaid expenses deferred charges":26438,"Land, building, equipment":78353,"Investments publicly traded":0,"Investments other":0,"Investments program related":0,"Intangible assets":0,"Other assets":4009},"Liabilities":{"value":78175,"Sum of Total Liabilities":0,"Accounts payable, accrued":64931,"Grants payable":0,"Deferred, revenue":0,"Tax exempt bond liabilities":0,"Escrow account liability":0,"Loans from officers, directors":0,"Secured mortgages and notes payable":0,"Unsecured notes loans payable":7258,"Other liabilities":5986},"Fund balance":{"value":666270,"Net assets without donor restriction":0,"Net assets with donor restriction":0,"Unrestricted net assets":500909,"Temporarily restricted net assets":165361,"Permanently restricted net assets":0},"Ratings":{"Program Expense Ratio":{"score":0.7357958607842868,"percentile":0.5613958415570396},"Fundraising Efficiency":{"score":8.30458088719385,"percentile":0.34225232983581944},"Operating Margin":{"score":0.14379473121048747,"percentile":0.6903115121245958},"Liabilities to Assets Ratio":{"score":0.10501111566334652,"percentile":0.32071417802708146},"Operating Reserve Ratio":{"score":0.40786478379377883,"percentile":0.21147215616644158},"Officer Compensation Ratio":{"score":0.18934651892232465,"percentile":0.33237332281017234},"Program Expense Growth":{"score":null,"percentile":null},"Revenue Growth":{"score":null,"percentile":null},"Asset Growth":{"score":null,"percentile":null},"Independent Voting Board Pct":{"score":1.0,"percentile":0.9933392423419786},"Governance Policy Score":{"score":6.0,"percentile":1.0},"Overall Score":{"score":0.5725748701372136,"percentile":0.5245484195910594}},"source_xml":"201521349349307092_public.xml"},{"Organization":{"value":null,"Person":["CAROLINE LOEWY","JOHN CROWLEY","NICOLE BOICE","NATALIE DOUGLAS","HUGH HEMPEL","PETER PELLIZZON","BRAD MARGUS","WENDY WHITE","SUSAN STEIN","NAUMAN SHAH","CRAIG MARTIN","ANGIE ROWE","TIFFANY LEITE"],"Title":["DIRECTOR","DIRECTOR","FOUNDER","VICE CHAIR","DIRECTOR","DIRECTOR","DIRECTOR","CHAIR","DIRECTOR","DIRECTOR","DIRECTOR","INTERIM EXECUTIVE DIRECTOR","CHIEF PROGRAM OFFICER"],"Hours":[1.0,1.0,50.0,5.0,1.0,1.0,1.0,5.0,1.0,1.0,5.0,50.0,50.0],"Total Compensation":[0,0,168000,0,0,0,0,0,0,0,0,137469,76333],"Direct compensation":[0,0,168000,0,0,0,0,0,0,0,0,137469,76333],"Other compensation":[0,0,0,0,0,0,0,0,0,0,0,0,0]},"Basic":{"value":null,"mission":"To create greater public awareness for rare diseases, while connecting, educating and empowering the millions of families and caregivers affected, through an online community and collaborative portal.","year":2017,"name":"GLOBAL GENES","phone":9492487273,"website":"WWW.GLOBALGENES.ORG","type":"990","affiliation":null,"foreign_countries":null,"principal_officer":"ANGIE ROWE","year_formation":2008,"state_legal_domicile":"CA","total_volunteers":100,"tax_period_begin":"2017-01-01T00:00:00","tax_period_end":"2017-12-31T00:00:00","address":"28 ARGONAUT SUITE 140 150, ALISO VIEJO, CA, 92656, USA","city":"ALISO VIEJO","state":"CA","country":"USA","zip_code":92656},"Governance":{"value":null,"501c3 determination":true,"501c determination":false,"Number of voting members":11,"Number of independent voting members":11,"Number of employees total":20,"Total Gross UBI":0,"Net unrelated business taxable income":0,"Number of employees":20,"Prohibited tax shelter transactions":true,"Taxable party notification":true,"Funds to pay premiums":true,"Premiums Paid":true,"Family or business relationship":true,"Delegation of management duties":true,"Conflict of interest policy":true,"Whistle blower policy":true,"Compensation process for CEO":true,"Compensation process for other employees":true,"Changes to organizing documents":true,"Material diversion or misuse":true,"Members or stockholders":true,"Election of board members":true,"Decisions subject to approval":true,"Minutes of governing body":true,"Local chapters":true,"Form 990 provided to governing body":true,"Document retention policy":true,"Investment in joint venture":true,"Independent audit financial statements":true,"Consolidated audit financial statements":true,"Accountant compile or review":true,"Political activities":true,"Donor advised funds":true,"Conservation easements":true,"Collections of art":true,"School":true,"Hospital":true,"Foreign activities":true,"Foreign office":true,"Gaming":true,"Fundraising activities":true,"Professional fundraising":true,"Loan to officer or DQP":true,"Grant to related person":true,"Business relationship through family member":true,"Business relationship with organization":true},"Revenues":{"value":3783379,"Contributions":{"value":3545874,"Other contributions":3545874,"Contributions from gifts and grants":0,"Fundraising revenue":0,"Dues":0,"Campaigns":0,"Grant revenue":0,"Related organizations":0},"Program revenue":{"value":0,"Total revenue":0,"Total other revenue":0,"Unrelated business revenue":0},"Investment income":{"value":346,"Investment income total":346,"Net investment gain":0,"Income from invest bond proceeds":0},"Other revenues":{"value":237159,"Other total":0,"Royalties revenue":0,"Net rental income":0,"Net income from fundraising events":237159,"Net income from gaming":0,"Net income":0,"Gross profit from sales of inventory":0,"Gain from sale of assets":0}},"Expenses":{"value":3986746,"Grant expense":{"value":150554,"Grants to domestic orgs":119087,"Grants to domestic individuals":31467,"Grants and similar":0,"Foreign grants":0},"Total professional fundraising expense":{"value":0,"Fundraising professional":0,"Fees to independent contractors":0},"Benefits paid to members":{"value":0,"Benefits paid to members Total":0},"Salaries":{"value":1428088,"Current officers":381802,"Disqualified persons":0,"Other salaries and wages":944715,"Pension plan contributions":0,"Other employee benefits":0,"Payroll taxes":101571},"Other expenses":{"value":2408104,"Management services":0,"Legal":10698,"Accounting":53932,"Lobbying services":0,"Investment management fees":0,"Other services":267790,"Advertising":81616,"Office expenses":0,"Information technology":71804,"Royalties":0,"Occupancy":114145,"Travel":157751,"Conferences and meetings":622976,"Interest":0,"Payments to affiliates":0,"Depreciation and depletion":23677,"Insurance":11669,"Travel entertainment public officials":0,"Travel entertainment payments":0,"Printing, publications, postage":0,"Itemized Expenses":{"value":741453,"FUNDED TRAVEL FOR PATIE":420624,"PATIENT SERVICES":182091,"FEES":73764,"MEALS & ENTERTAINMENT":64974},"All other expenses":250593},"Functional Expenses":{"value":null,"Program Service Expenses":3166234,"Management And General Expenses":556922,"Fundraising Expenses":263590}},"Assets":{"value":1189128,"Non-interest bearing cash":987903,"Savings and temp cash investments":0,"Pledges and grants receivable":0,"Accounts receivable":22119,"Receivables from officers":0,"Receivables from disqual persons":0,"Other net note and loans":0,"Inventories for sale or use":11861,"Prepaid expenses deferred charges":144017,"Land, building, equipment":13241,"Investments publicly traded":0,"Investments other":0,"Investments program related":0,"Intangible assets":0,"Other assets":9987},"Liabilities":{"value":227696,"Sum of Total Liabilities":0,"Accounts payable, accrued":74939,"Grants payable":0,"Deferred, revenue":0,"Tax exempt bond liabilities":0,"Escrow account liability":0,"Loans from officers, directors":0,"Secured mortgages and notes payable":0,"Unsecured notes loans payable":0,"Other liabilities":152757},"Fund balance":{"value":961432,"Net assets without donor restriction":0,"Net assets with donor restriction":0,"Unrestricted net assets":680932,"Temporarily restricted net assets":280500,"Permanently restricted net assets":0},"Ratings":{"Program Expense Ratio":{"score":0.7941900487264552,"percentile":0.6178389308241966},"Fundraising Efficiency":{"score":13.452232634014948,"percentile":0.488867575463447},"Operating Margin":{"score":-0.053752743248825986,"percentile":0.27962314225161256},"Liabilities to Assets Ratio":{"score":0.1914814889566136,"percentile":0.2560845611430388},"Operating Reserve Ratio":{"score":0.29827031870101584,"percentile":0.16193210581741982},"Officer Compensation Ratio":{"score":0.09576782669374974,"percentile":0.5663073912344869},"Program Expense Growth":{"score":0.22253094863937933,"percentile":0.821725945393363},"Revenue Growth":{"score":0.1598026338243413,"percentile":0.8598387782693063},"Asset Growth":{"score":0.14587230658582917,"percentile":0.7755108391856403},"Independent Voting Board Pct":{"score":1.0,"percentile":0.9933392423419786},"Governance Policy Score":{"score":6.0,"percentile":1.0},"Overall Score":{"score":0.6037751502239844,"percentile":0.6165093753818458}},"source_xml":"201803199349309925_public.xml"},{"Organization":{"value":null,"Person":["Nicole Boice","Christian Rubio","Tiffany Leite","Craig Martin","Mary K O'Connor","Kimberly Haugstad","Angie Rowe","Melissa Strodtbeck","Caroline Loewy","John Crowley","Natalie Douglas","Hugh Hempel","Peter Pellizzon","Brad Marcus","Wendy White","Susan Stein","Nauman Shah"],"Title":["Founder","VP Strategic Advancement","COO","Strategic Advis","Dir. Corporate Eng","CEO","Interim ED","Fin. Director","Director","Director","Vice Chairman","Director","Treasurer","Director","Chairman","Director","Director"],"Hours":[40.0,40.0,40.0,40.0,40.0,40.0,50.0,40.0,1.0,1.0,5.0,1.0,1.0,1.0,5.0,1.0,1.0],"Total Compensation":[197997,163935,152988,135000,125375,112838,101258,82795,0,0,0,0,0,0,0,0,0],"Direct compensation":[197997,163935,152988,135000,125375,112838,101258,82795,0,0,0,0,0,0,0,0,0],"Other compensation":[0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0]},"Basic":{"value":null,"mission":"Increase public awareness for rare disease and globally connect, empower and educate individuals and rare disease foundations in person, print and online.","year":2019,"name":"Global Genes","phone":9492487273,"website":"globalgenes.org","type":"990","affiliation":null,"foreign_countries":["Afghanistan","Albania","Andorra","Argentina","Armenia","Australia","Austria","Azerbaijan","Bahrain","Bangladesh","Belarus","Belgium","Bhutan","Bolivia","Bosnia and Herzegovina","Brazil","Brunei","Bulgaria","Cambodia","Canada","Chile","China","Colombia","Croatia","Cyprus","Czechia","Denmark","Ecuador","Estonia","Falkland Islands","Faroe Islands","Finland","France","French Guiana","Georgia","Germany","Gibraltar","Greece","Guernsey","Guyana","Hong Kong","Hungary","Iceland","India","Indonesia","Iran","Iraq","Ireland","Isle of Man","Israel","Italy","Japan","Jersey","Jordan","Kazakhstan","Kosovo","Kuwait","Kyrgyzstan","Laos","Latvia","Lebanon","Liechtenstein","Lithuania","Luxembourg","Macau","Malaysia","Maldives","Malta","Moldova","Monaco","Mongolia","Montenegro","Myanmar","Nepal","Netherlands","North Korea","North Macedonia","Norway","Oman","Pakistan","Palestine","Paraguay","Peru","Philippines","Poland","Portugal","Qatar","Romania","Russia","San Marino","Saudi Arabia","Serbia","Singapore","Slovakia","Slovenia","South Korea","Spain","Sri Lanka","Suriname","Svalbard and Jan Mayen","Sweden","Switzerland","Syria","Taiwan","Tajikistan","Thailand","Timor-Leste","Turkey","Turkmenistan","Ukraine","United Arab Emirates","United Kingdom","Uruguay","Uzbekistan","Vatican City","Venezuela","Vietnam","Yemen","Åland Islands"],"principal_officer":"Kimberly Haugstad","year_formation":2008,"state_legal_domicile":"CA","total_volunteers":50,"tax_period_begin":"2019-01-01T00:00:00","tax_period_end":"2019-12-31T00:00:00","address":"28 Argonaut Suite 140 150, Aliso Viejo, CA, 92656, USA","city":"Aliso Viejo","state":"CA","country":"USA","zip_code":92656},"Governance":{"value":null,"501c3 determination":true,"501c determination":false,"Number of voting members":12,"Number of independent voting members":9,"Number of employees total":24,"Total Gross UBI":0,"Net unrelated business taxable income":null,"Number of employees":24,"Prohibited tax shelter transactions":true,"Taxable party notification":true,"Funds to pay premiums":true,"Premiums Paid":true,"Family or business relationship":true,"Delegation of management duties":true,"Conflict of interest policy":true,"Whistle blower policy":true,"Compensation process for CEO":true,"Compensation process for other employees":true,"Changes to organizing documents":true,"Material diversion or misuse":true,"Members or stockholders":true,"Election of board members":true,"Decisions subject to approval":true,"Minutes of governing body":true,"Local chapters":true,"Form 990 provided to governing body":true,"Document retention policy":true,"Investment in joint venture":true,"Independent audit financial statements":true,"Consolidated audit financial statements":true,"Accountant compile or review":true,"Political activities":true,"Donor advised funds":true,"Conservation easements":true,"Collections of art":true,"School":true,"Hospital":true,"Foreign activities":true,"Foreign office":true,"Gaming":true,"Fundraising activities":true,"Professional fundraising":true,"Loan to officer or DQP":true,"Grant to related person":true,"Business relationship through family member":true,"Business relationship with organization":true},"Revenues":{"value":6988193,"Contributions":{"value":5297898,"Other contributions":5297898,"Contributions from gifts and grants":0,"Fundraising revenue":0,"Dues":0,"Campaigns":0,"Grant revenue":0,"Related organizations":0},"Program revenue":{"value":1667194,"Total revenue":{"value":1667194,"Conference sponsorships":350500,"Exhibit booths":106194,"Membership fees":1210500},"Total other revenue":0,"Unrelated business revenue":0},"Investment income":{"value":23101,"Investment income total":23101,"Net investment gain":0,"Income from invest bond proceeds":0},"Other revenues":{"value":0,"Other total":0,"Royalties revenue":0,"Net rental income":0,"Net income from fundraising events":0,"Net income from gaming":0,"Net income":0,"Gross profit from sales of inventory":0,"Gain from sale of assets":0}},"Expenses":{"value":6464707,"Grant expense":{"value":695910,"Grants to domestic orgs":501733,"Grants to domestic individuals":69371,"Grants and similar":0,"Foreign grants":124806},"Total professional fundraising expense":{"value":0,"Fundraising professional":0,"Fees to independent contractors":0},"Benefits paid to members":{"value":0,"Benefits paid to members Total":0},"Salaries":{"value":2036801,"Current officers":811810,"Disqualified persons":0,"Other salaries and wages":1070497,"Pension plan contributions":0,"Other employee benefits":0,"Payroll taxes":154494},"Other expenses":{"value":3731996,"Management services":0,"Legal":41013,"Accounting":0,"Lobbying services":0,"Investment management fees":0,"Other services":95284,"Advertising":0,"Office expenses":0,"Information technology":0,"Royalties":0,"Occupancy":114887,"Travel":290376,"Conferences and meetings":600897,"Interest":0,"Payments to affiliates":0,"Depreciation and depletion":58606,"Insurance":13924,"Travel entertainment public officials":0,"Travel entertainment payments":0,"Printing, publications, postage":0,"Itemized Expenses":{"value":2129308,"Outside Services":923496,"Funded Travel for Patients":916393,"Printing and Publications":159649,"program awareness":129770},"All other expenses":387701},"Functional Expenses":{"value":null,"Program Service Expenses":5702811,"Management And General Expenses":561880,"Fundraising Expenses":200016}},"Assets":{"value":2925050,"Non-interest bearing cash":2405810,"Savings and temp cash investments":0,"Pledges and grants receivable":147808,"Accounts receivable":6910,"Receivables from officers":0,"Receivables from disqual persons":0,"Other net note and loans":0,"Inventories for sale or use":7320,"Prepaid expenses deferred charges":196590,"Land, building, equipment":150625,"Investments publicly traded":0,"Investments other":0,"Investments program related":0,"Intangible assets":0,"Other assets":9987},"Liabilities":{"value":1283097,"Sum of Total Liabilities":0,"Accounts payable, accrued":322199,"Grants payable":0,"Deferred, revenue":725611,"Tax exempt bond liabilities":0,"Escrow account liability":0,"Loans from officers, directors":0,"Secured mortgages and notes payable":0,"Unsecured notes loans payable":0,"Other liabilities":235287},"Fund balance":{"value":1641953,"Net assets without donor restriction":1494144,"Net assets with donor restriction":147809,"Unrestricted net assets":0,"Temporarily restricted net assets":0,"Permanently restricted net assets":0},"Ratings":{"Program Expense Ratio":{"score":0.882145316098626,"percentile":0.7426345129820434},"Fundraising Efficiency":{"score":26.487371010319176,"percentile":0.6644998017467408},"Operating Margin":{"score":0.07491006616445768,"percentile":0.5771590112171593},"Liabilities to Assets Ratio":{"score":0.43865814259585306,"percentile":0.15264231039619294},"Operating Reserve Ratio":{"score":0.4524644349697519,"percentile":0.230934152800005},"Officer Compensation Ratio":{"score":0.16585221882445716,"percentile":0.3775439586978956},"Program Expense Growth":{"score":0.21315015086167616,"percentile":0.8149526007261347},"Revenue Growth":{"score":0.20162750647513727,"percentile":0.8977031796679089},"Asset Growth":{"score":0.2529474073782636,"percentile":0.892124008257199},"Independent Voting Board Pct":{"score":0.75,"percentile":0.17719847849878714},"Governance Policy Score":{"score":6.0,"percentile":1.0},"Overall Score":{"score":0.6370600895512847,"percentile":0.7088663008413556}},"source_xml":"202033149349304218_public.xml"},{"Organization":{"value":null,"Person":["CRAIG MARTIN","CHRISTOPHER NUNES","LAUREN ALFORD","VICTORIA WEISS","MARY K O'CONNOR","MARIA DELLA ROCCA","TIM EHRHARD","SHANKAR RAMKELLAWAN","NICOLE BOICE","PETER PELLIZZON","CAROLINE LOEWY","JOHN CROWLEY","CHRISTINA M HARTMAN","HUGH HEMPEL","NEIL KUMAR","INDU NAVAR"],"Title":["INTERIM CEO","FINANCE DIRECTOR","SENIOR DIRECTOR, MARKETING COMMUNICATIONS","SENIOR DIRECTOR, FINANCE","SENIOR DIRECTOR, DEVELOPMENT","SENIOR DIRECTOR, SUPPORT & EDUCATION","SENIOR DIRECTOR, IT","MANAGER, DATA SCIENCE & INSIGHTS","FOUNDER","BOARD CHAIRMAN","TREASURER","DIRECTOR","SECRETARY","DIRECTOR","DIRECTOR","DIRECTOR"],"Hours":[40.0,40.0,40.0,40.0,40.0,40.0,40.0,40.0,10.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0],"Total Compensation":[420000,65001,160553,23750,149534,146956,158390,115911,0,0,0,0,0,0,0,0],"Direct compensation":[420000,65001,160475,23750,143684,146875,158312,111064,0,0,0,0,0,0,0,0],"Other compensation":[0,0,78,0,5850,81,78,4847,0,0,0,0,0,0,0,0]},"Basic":{"value":null,"mission":"Increase public awareness for rare disease and globally connect, empower and educate individuals and rare disease foundations in person, print and online.","year":2022,"name":"GLOBAL GENES","phone":9492487273,"website":"GLOBALGENES.ORG","type":"990","affiliation":null,"foreign_countries":["Albania","Andorra","Angola","Austria","Belarus","Belgium","Benin","Bosnia and Herzegovina","Botswana","Bulgaria","Burkina Faso","Burundi","Cameroon","Cape Verde","Central African Republic","Chad","Comoros","Congo","Congo, Democratic Republic of the","Cote d'Ivoire","Croatia","Cyprus","Czechia","Denmark","Djibouti","Equatorial Guinea","Eritrea","Estonia","Ethiopia","Faroe Islands","Finland","France","Gabon","Gambia","Germany","Ghana","Gibraltar","Greece","Greenland","Guernsey","Guinea","Guinea-Bissau","Hungary","Iceland","Ireland","Isle of Man","Italy","Jersey","Kenya","Kosovo","Latvia","Lesotho","Liberia","Liechtenstein","Lithuania","Luxembourg","Madagascar","Malawi","Mali","Malta","Mauritania","Mauritius","Mayotte","Moldova","Monaco","Montenegro","Mozambique","Namibia","Netherlands","Niger","Nigeria","North Macedonia","Norway","Poland","Portugal","Romania","Russia","Rwanda","Saint Helena","San Marino","Sao Tome and Principe","Senegal","Serbia","Seychelles","Sierra Leone","Slovakia","Slovenia","Somalia","South Africa","South Sudan","Spain","Sudan","Svalbard and Jan Mayen","Swaziland","Sweden","Switzerland","Tanzania","Togo","Uganda","Ukraine","United Kingdom","Vatican City","Zambia","Zimbabwe","Åland Islands"],"principal_officer":"CRAIG MARTIN","year_formation":2008,"state_legal_domicile":"CA","total_volunteers":12,"tax_period_begin":"2022-01-01T00:00:00","tax_period_end":"2022-12-31T00:00:00","address":"28 ARGONAUT SUITE 150, ALISO VIEJO, CA, 92656, USA","city":"ALISO VIEJO","state":"CA","country":"USA","zip_code":92656},"Governance":{"value":null,"501c3 determination":true,"501c determination":false,"Number of voting members":8,"Number of independent voting members":8,"Number of employees total":36,"Total Gross UBI":0,"Net unrelated business taxable income":0,"Number of employees":36,"Prohibited tax shelter transactions":true,"Taxable party notification":true,"Funds to pay premiums":true,"Premiums Paid":true,"Family or business relationship":true,"Delegation of management duties":true,"Conflict of interest policy":true,"Whistle blower policy":true,"Compensation process for CEO":true,"Compensation process for other employees":true,"Changes to organizing documents":true,"Material diversion or misuse":true,"Members or stockholders":true,"Election of board members":true,"Decisions subject to approval":true,"Minutes of governing body":true,"Local chapters":true,"Form 990 provided to governing body":true,"Document retention policy":true,"Investment in joint venture":true,"Independent audit financial statements":true,"Consolidated audit financial statements":true,"Accountant compile or review":true,"Political activities":true,"Donor advised funds":true,"Conservation easements":true,"Collections of art":true,"School":true,"Hospital":true,"Foreign activities":true,"Foreign office":true,"Gaming":true,"Fundraising activities":true,"Professional fundraising":true,"Loan to officer or DQP":true,"Grant to related person":true,"Business relationship through family member":true,"Business relationship with organization":true},"Revenues":{"value":5557435,"Contributions":{"value":3865176,"Other contributions":3865176,"Contributions from gifts and grants":0,"Fundraising revenue":0,"Dues":0,"Campaigns":0,"Grant revenue":0,"Related organizations":0},"Program revenue":{"value":1690520,"Total revenue":{"value":1690520,"MEMBERSHIP FEES":1230634,"CONFERENCE SPONSORSHIP":445400,"EXHIBIT BOOTHS":14486},"Total other revenue":0,"Unrelated business revenue":0},"Investment income":{"value":1739,"Investment income total":1597,"Net investment gain":142,"Income from invest bond proceeds":0},"Other revenues":{"value":0,"Other total":0,"Royalties revenue":0,"Net rental income":0,"Net income from fundraising events":0,"Net income from gaming":0,"Net income":0,"Gross profit from sales of inventory":0,"Gain from sale of assets":0}},"Expenses":{"value":7700189,"Grant expense":{"value":469253,"Grants to domestic orgs":221259,"Grants to domestic individuals":0,"Grants and similar":0,"Foreign grants":247994},"Total professional fundraising expense":{"value":0,"Fundraising professional":0,"Fees to independent contractors":0},"Benefits paid to members":{"value":0,"Benefits paid to members Total":0},"Salaries":{"value":2572193,"Current officers":508751,"Disqualified persons":0,"Other salaries and wages":1812826,"Pension plan contributions":0,"Other employee benefits":48332,"Payroll taxes":202284},"Other expenses":{"value":4658743,"Management services":0,"Legal":12155,"Accounting":99185,"Lobbying services":0,"Investment management fees":0,"Other services":0,"Advertising":57420,"Office expenses":25113,"Information technology":611619,"Royalties":0,"Occupancy":84772,"Travel":618632,"Conferences and meetings":1149,"Interest":0,"Payments to affiliates":0,"Depreciation and depletion":10917,"Insurance":18725,"Travel entertainment public officials":0,"Travel entertainment payments":0,"Printing, publications, postage":0,"Itemized Expenses":{"value":3062085,"SUPPLIES":1290517,"OUTSIDE SERVICES":1227671,"PROGRAM AWARENESS":487625,"FEES AND TAXES":56272},"All other expenses":56971},"Functional Expenses":{"value":null,"Program Service Expenses":6222906,"Management And General Expenses":1041496,"Fundraising Expenses":435787}},"Assets":{"value":2294462,"Non-interest bearing cash":945899,"Savings and temp cash investments":425887,"Pledges and grants receivable":372750,"Accounts receivable":160977,"Receivables from officers":0,"Receivables from disqual persons":0,"Other net note and loans":0,"Inventories for sale or use":0,"Prepaid expenses deferred charges":332882,"Land, building, equipment":2525,"Investments publicly traded":0,"Investments other":0,"Investments program related":0,"Intangible assets":0,"Other assets":53542},"Liabilities":{"value":1753204,"Sum of Total Liabilities":0,"Accounts payable, accrued":1228794,"Grants payable":0,"Deferred, revenue":473927,"Tax exempt bond liabilities":0,"Escrow account liability":0,"Loans from officers, directors":0,"Secured mortgages and notes payable":0,"Unsecured notes loans payable":0,"Other liabilities":50483},"Fund balance":{"value":541258,"Net assets without donor restriction":541258,"Net assets with donor restriction":0,"Unrestricted net assets":0,"Temporarily restricted net assets":0,"Permanently restricted net assets":0},"Ratings":{"Program Expense Ratio":{"score":0.8081497739860671,"percentile":0.635805144482128},"Fundraising Efficiency":{"score":8.869415563107665,"percentile":0.3623090312280085},"Operating Margin":{"score":-0.38556528326467154,"percentile":0.09257585425906198},"Liabilities to Assets Ratio":{"score":0.7641024344704772,"percentile":0.08398759162483838},"Operating Reserve Ratio":{"score":0.29797476399605255,"percentile":0.16179084401200503},"Officer Compensation Ratio":{"score":0.16104734572099463,"percentile":0.38762724372138957},"Program Expense Growth":{"score":0.14992224237630464,"percentile":0.755072617761253},"Revenue Growth":{"score":0.10823981356381064,"percentile":0.7817358562829189},"Asset Growth":{"score":0.1572826182192662,"percentile":0.7932728444637208},"Independent Voting Board Pct":{"score":1.0,"percentile":0.9933392423419786},"Governance Policy Score":{"score":6.0,"percentile":1.0},"Overall Score":{"score":0.5379823708159871,"percentile":0.42268322246515916}},"source_xml":"202303189349314915_public.xml"},{"Organization":{"value":null,"Person":["CAROLINE LOEWY","JOHN CROWLEY","NICOLE BOICE","NATALIE DOUGLAS","HUGH HEMPEL","PETER PELLIZZON","BRAD MARGUS","WENDY WHITE","MATT WILSEY","SUSAN STEIN","ANGIE ROWE"],"Title":["DIRECTOR","DIRECTOR","PRESIDENT/CEO","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","COO / TREASURER & SECRETARY"],"Hours":[1.0,1.0,50.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,50.0],"Total Compensation":[0,0,168000,0,0,0,0,0,0,0,125000],"Direct compensation":[0,0,168000,0,0,0,0,0,0,0,125000],"Other compensation":[0,0,0,0,0,0,0,0,0,0,0]},"Basic":{"value":null,"mission":"To create greater public awareness for rare diseases, while connecting, educating and empowering the millions of families and caregivers affected, through an online community and collaborative portal.","year":2015,"name":"GLOBAL GENES","phone":9492487273,"website":"WWW.GLOBALGENES.ORG","type":"990","affiliation":null,"foreign_countries":null,"principal_officer":"NICOLE BOICE","year_formation":2008,"state_legal_domicile":"CA","total_volunteers":0,"tax_period_begin":"2015-01-01T00:00:00","tax_period_end":"2015-12-31T00:00:00","address":"28 ARGONAUT SUITE 140 150, ALISO VIEJO, CA, 92656, USA","city":"ALISO VIEJO","state":"CA","country":"USA","zip_code":92656},"Governance":{"value":null,"501c3 determination":true,"501c determination":false,"Number of voting members":10,"Number of independent voting members":10,"Number of employees total":14,"Total Gross UBI":0,"Net unrelated business taxable income":0,"Number of employees":14,"Prohibited tax shelter transactions":true,"Taxable party notification":true,"Funds to pay premiums":false,"Premiums Paid":false,"Family or business relationship":true,"Delegation of management duties":true,"Conflict of interest policy":true,"Whistle blower policy":true,"Compensation process for CEO":true,"Compensation process for other employees":true,"Changes to organizing documents":true,"Material diversion or misuse":true,"Members or stockholders":true,"Election of board members":true,"Decisions subject to approval":true,"Minutes of governing body":true,"Local chapters":true,"Form 990 provided to governing body":true,"Document retention policy":true,"Investment in joint venture":true,"Independent audit financial statements":true,"Consolidated audit financial statements":true,"Accountant compile or review":true,"Political activities":true,"Donor advised funds":true,"Conservation easements":true,"Collections of art":true,"School":true,"Hospital":true,"Foreign activities":true,"Foreign office":true,"Gaming":true,"Fundraising activities":true,"Professional fundraising":true,"Loan to officer or DQP":true,"Grant to related person":true,"Business relationship through family member":true,"Business relationship with organization":true},"Revenues":{"value":3381807,"Contributions":{"value":2717117,"Other contributions":2717117,"Contributions from gifts and grants":0,"Fundraising revenue":0,"Dues":0,"Campaigns":0,"Grant revenue":0,"Related organizations":0},"Program revenue":{"value":0,"Total revenue":0,"Total other revenue":0,"Unrelated business revenue":0},"Investment income":{"value":0,"Investment income total":0,"Net investment gain":0,"Income from invest bond proceeds":0},"Other revenues":{"value":664690,"Other total":0,"Royalties revenue":0,"Net rental income":0,"Net income from fundraising events":664690,"Net income from gaming":0,"Net income":0,"Gross profit from sales of inventory":0,"Gain from sale of assets":0}},"Expenses":{"value":3136661,"Grant expense":{"value":18989,"Grants to domestic orgs":18989,"Grants to domestic individuals":0,"Grants and similar":0,"Foreign grants":0},"Total professional fundraising expense":{"value":7500,"Fundraising professional":7500,"Fees to independent contractors":0},"Benefits paid to members":{"value":0,"Benefits paid to members Total":0},"Salaries":{"value":749920,"Current officers":293000,"Disqualified persons":0,"Other salaries and wages":402262,"Pension plan contributions":0,"Other employee benefits":0,"Payroll taxes":54658},"Other expenses":{"value":2360252,"Management services":0,"Legal":10094,"Accounting":32137,"Lobbying services":0,"Investment management fees":0,"Other services":277554,"Advertising":53820,"Office expenses":0,"Information technology":70115,"Royalties":0,"Occupancy":72020,"Travel":127314,"Conferences and meetings":583880,"Interest":0,"Payments to affiliates":0,"Depreciation and depletion":13343,"Insurance":3586,"Travel entertainment public officials":0,"Travel entertainment payments":0,"Printing, publications, postage":0,"Itemized Expenses":{"value":719078,"FUNDED TRAVEL FOR PATIE":310098,"DONATIONS":147155,"PATIENT SERVICES":135206,"ADVOCACY":126619},"All other expenses":397311},"Functional Expenses":{"value":null,"Program Service Expenses":2743275,"Management And General Expenses":259402,"Fundraising Expenses":133984}},"Assets":{"value":1024830,"Non-interest bearing cash":851829,"Savings and temp cash investments":0,"Pledges and grants receivable":0,"Accounts receivable":5000,"Receivables from officers":0,"Receivables from disqual persons":0,"Other net note and loans":0,"Inventories for sale or use":26949,"Prepaid expenses deferred charges":81714,"Land, building, equipment":55329,"Investments publicly traded":0,"Investments other":0,"Investments program related":0,"Intangible assets":0,"Other assets":4009},"Liabilities":{"value":124836,"Sum of Total Liabilities":0,"Accounts payable, accrued":49155,"Grants payable":0,"Deferred, revenue":0,"Tax exempt bond liabilities":0,"Escrow account liability":0,"Loans from officers, directors":0,"Secured mortgages and notes payable":0,"Unsecured notes loans payable":7258,"Other liabilities":68423},"Fund balance":{"value":899994,"Net assets without donor restriction":0,"Net assets with donor restriction":0,"Unrestricted net assets":673082,"Temporarily restricted net assets":226912,"Permanently restricted net assets":0},"Ratings":{"Program Expense Ratio":{"score":0.8745844705564293,"percentile":0.7308783723909033},"Fundraising Efficiency":{"score":20.279413959875807,"percentile":0.6015090289238544},"Operating Margin":{"score":0.07248964828566504,"percentile":0.5723274336878366},"Liabilities to Assets Ratio":{"score":0.12181142238224876,"percentile":0.3056695147591166},"Operating Reserve Ratio":{"score":0.3267264138521823,"percentile":0.1750389379375655},"Officer Compensation Ratio":{"score":0.09341143336815805,"percentile":0.574590473381075},"Program Expense Growth":{"score":null,"percentile":null},"Revenue Growth":{"score":null,"percentile":null},"Asset Growth":{"score":null,"percentile":null},"Independent Voting Board Pct":{"score":1.0,"percentile":0.9933392423419786},"Governance Policy Score":{"score":6.0,"percentile":1.0},"Overall Score":{"score":0.6506731224819651,"percentile":0.7432968634602589}},"source_xml":"201611769349300026_public.xml"},{"Organization":{"value":null,"Person":["NICOLE R BOICE","BETSY BOGARD","KHRYSTAL DAVIS","ILANA FOGELMAN","SIMON FROST","PETER GOODHAND","CHRISTINA HARTMAN","HUGH HEMPEL","RAM IYER","WALT KOWTONIUK","NEIL KUMAR","CAROLINE LOEWY","KATHERINE MAYNARD","INDU NAVAR","DAVID PEARCE","JOHN REYNDERS","MORRIE RUFFIN","ALVIN SHIH","CHARLENE RIGBY","VICTORIA WEISS","TIMOTHY R EHRHARD","LAUREN ALFORD","KARMEN TRZUPEK","VANESSA VOGEL-FARLEY","MARIA DELLA ROCCA"],"Title":["FOUNDER & CHIEF MISSION OFFICER","DIRECTOR","DIRECTOR","DIRECTOR","CFO","DIRECTOR","SECRETARY","DIRECTOR","DIRECTOR","CHAIR","DIRECTOR","DIRECTOR","VICE CHAIR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","CEO","SENIOR DIRECTOR, FINANCE","SENIOR DIRECTOR, IT","SENIOR DIRECTOR, MARKETING COMMUNICATION","SENIOR DIRECTOR, SCIENTIFIC PROGRAMS","SENIOR DIRECTOR, RESEARCH DATA ANALYTICS & GOVERNA","SENIOR DIRECTOR, SUPPORT & EDUCATION"],"Hours":[40.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,40.0,24.0,40.0,40.0,40.0,40.0,40.0],"Total Compensation":[257864,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,322617,124450,170078,165078,168475,160072,160851],"Direct compensation":[257792,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,322542,124450,170000,165000,162097,160000,160779],"Other compensation":[72,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,75,0,78,78,6378,72,72]},"Basic":{"value":null,"mission":"Global genes strives to connect, empower and inspire the rare disease community.","year":2023,"name":"GLOBAL GENES","phone":9492487273,"website":"GLOBALGENES.ORG","type":"990","affiliation":null,"foreign_countries":["Albania","Andorra","Angola","Austria","Belarus","Belgium","Benin","Bermuda","Bosnia and Herzegovina","Botswana","Bulgaria","Burkina Faso","Burundi","Cameroon","Canada","Cape Verde","Central African Republic","Chad","Comoros","Congo","Congo, Democratic Republic of the","Cote d'Ivoire","Croatia","Cyprus","Czechia","Denmark","Djibouti","Equatorial Guinea","Eritrea","Estonia","Ethiopia","Faroe Islands","Finland","France","Gabon","Gambia","Germany","Ghana","Gibraltar","Greece","Greenland","Guernsey","Guinea","Guinea-Bissau","Hungary","Iceland","Ireland","Isle of Man","Italy","Jersey","Kenya","Kosovo","Latvia","Lesotho","Liberia","Liechtenstein","Lithuania","Luxembourg","Madagascar","Malawi","Mali","Malta","Mauritania","Mauritius","Mayotte","Mexico","Moldova","Monaco","Montenegro","Mozambique","Namibia","Netherlands","Niger","Nigeria","North Macedonia","Norway","Poland","Portugal","Romania","Russia","Rwanda","Saint Helena","Saint Pierre and Miquelon","San Marino","Sao Tome and Principe","Senegal","Serbia","Seychelles","Sierra Leone","Slovakia","Slovenia","Somalia","South Africa","South Sudan","Spain","Sudan","Svalbard and Jan Mayen","Swaziland","Sweden","Switzerland","Tanzania","Togo","Uganda","Ukraine","United Kingdom","United States","United States Minor Outlying Islands","Vatican City","Zambia","Zimbabwe","Åland Islands"],"principal_officer":"CHARLENE SON RIGBY","year_formation":2008,"state_legal_domicile":"CA","total_volunteers":17,"tax_period_begin":"2023-01-01T00:00:00","tax_period_end":"2023-12-31T00:00:00","address":"1012 14TH STREET NW SUITE 500, WASHINGTON, DC, 20005, USA","city":"WASHINGTON","state":"DC","country":"USA","zip_code":20005},"Governance":{"value":null,"501c3 determination":true,"501c determination":false,"Number of voting members":18,"Number of independent voting members":16,"Number of employees total":41,"Total Gross UBI":0,"Net unrelated business taxable income":0,"Number of employees":41,"Prohibited tax shelter transactions":true,"Taxable party notification":true,"Funds to pay premiums":true,"Premiums Paid":true,"Family or business relationship":true,"Delegation of management duties":true,"Conflict of interest policy":true,"Whistle blower policy":true,"Compensation process for CEO":true,"Compensation process for other employees":true,"Changes to organizing documents":true,"Material diversion or misuse":true,"Members or stockholders":true,"Election of board members":true,"Decisions subject to approval":true,"Minutes of governing body":true,"Local chapters":true,"Form 990 provided to governing body":true,"Document retention policy":true,"Investment in joint venture":true,"Independent audit financial statements":true,"Consolidated audit financial statements":true,"Accountant compile or review":true,"Political activities":true,"Donor advised funds":true,"Conservation easements":true,"Collections of art":true,"School":true,"Hospital":true,"Foreign activities":true,"Foreign office":true,"Gaming":true,"Fundraising activities":true,"Professional fundraising":true,"Loan to officer or DQP":true,"Grant to related person":true,"Business relationship through family member":true,"Business relationship with organization":true},"Revenues":{"value":8469402,"Contributions":{"value":6410826,"Other contributions":6410826,"Contributions from gifts and grants":0,"Fundraising revenue":0,"Dues":0,"Campaigns":0,"Grant revenue":0,"Related organizations":0},"Program revenue":{"value":2055089,"Total revenue":{"value":2055089,"MEMBERSHIP FEES":2017302,"CONFERENCE SPONSORSHIP":37787},"Total other revenue":0,"Unrelated business revenue":0},"Investment income":{"value":3487,"Investment income total":3487,"Net investment gain":0,"Income from invest bond proceeds":0},"Other revenues":{"value":0,"Other total":0,"Royalties revenue":0,"Net rental income":0,"Net income from fundraising events":0,"Net income from gaming":0,"Net income":0,"Gross profit from sales of inventory":0,"Gain from sale of assets":0}},"Expenses":{"value":8561859,"Grant expense":{"value":274880,"Grants to domestic orgs":274880,"Grants to domestic individuals":0,"Grants and similar":0,"Foreign grants":0},"Total professional fundraising expense":{"value":0,"Fundraising professional":0,"Fees to independent contractors":0},"Benefits paid to members":{"value":0,"Benefits paid to members Total":0},"Salaries":{"value":4277732,"Current officers":704930,"Disqualified persons":0,"Other salaries and wages":3167908,"Pension plan contributions":0,"Other employee benefits":86928,"Payroll taxes":317966},"Other expenses":{"value":4009247,"Management services":0,"Legal":71815,"Accounting":99867,"Lobbying services":0,"Investment management fees":0,"Other services":0,"Advertising":0,"Office expenses":18000,"Information technology":682559,"Royalties":0,"Occupancy":49198,"Travel":154014,"Conferences and meetings":932847,"Interest":0,"Payments to affiliates":0,"Depreciation and depletion":2525,"Insurance":23266,"Travel entertainment public officials":0,"Travel entertainment payments":0,"Printing, publications, postage":0,"Itemized Expenses":{"value":1759303,"OUTSIDE SERVICES":1292159,"PROGRAM AWARENESS":223494,"FEES AND TAXES":143785,"BANK CHARGES":99865},"All other expenses":215853},"Functional Expenses":{"value":null,"Program Service Expenses":6822737,"Management And General Expenses":1297184,"Fundraising Expenses":441938}},"Assets":{"value":2099140,"Non-interest bearing cash":1157502,"Savings and temp cash investments":251643,"Pledges and grants receivable":0,"Accounts receivable":466406,"Receivables from officers":0,"Receivables from disqual persons":0,"Other net note and loans":0,"Inventories for sale or use":0,"Prepaid expenses deferred charges":194808,"Land, building, equipment":0,"Investments publicly traded":0,"Investments other":0,"Investments program related":0,"Intangible assets":0,"Other assets":28781},"Liabilities":{"value":1641403,"Sum of Total Liabilities":0,"Accounts payable, accrued":804996,"Grants payable":0,"Deferred, revenue":645000,"Tax exempt bond liabilities":0,"Escrow account liability":0,"Loans from officers, directors":0,"Secured mortgages and notes payable":0,"Unsecured notes loans payable":0,"Other liabilities":191407},"Fund balance":{"value":457737,"Net assets without donor restriction":457737,"Net assets with donor restriction":0,"Unrestricted net assets":0,"Temporarily restricted net assets":0,"Permanently restricted net assets":0},"Ratings":{"Program Expense Ratio":{"score":0.7968756551585351,"percentile":0.6209847502275785},"Fundraising Efficiency":{"score":14.506166023288335,"percentile":0.5107743205865608},"Operating Margin":{"score":-0.010916591277636839,"percentile":0.35821764578445014},"Liabilities to Assets Ratio":{"score":0.7819406995245672,"percentile":0.08142996199812202},"Operating Reserve Ratio":{"score":0.2451733904984887,"percentile":0.13682974153131436},"Officer Compensation Ratio":{"score":0.17863935857855168,"percentile":0.35212476197127585},"Program Expense Growth":{"score":0.13832123869883467,"percentile":0.7401321849767053},"Revenue Growth":{"score":0.11609804826808513,"percentile":0.7969285392923725},"Asset Growth":{"score":0.1129822508404377,"percentile":0.7131733610853568},"Independent Voting Board Pct":{"score":0.8888888888888888,"percentile":0.2330250129411084},"Governance Policy Score":{"score":6.0,"percentile":1.0},"Overall Score":{"score":0.5283134103594597,"percentile":0.3958654767044844}},"source_xml":"202412699349301651_public.xml"},{"Organization":{"value":null,"Person":["CAROLINE LOEWY","JOHN CROWLEY","NICOLE BOICE","NATALIE DOUGLAS","HUGH HEMPEL","PETER PELLIZZON","BRAD MARGUS","WENDY WHITE","MATT WILSEY","SUSAN STEIN","NAUMAN SHAH","ANGIE ROWE","TRICIA MULLINS"],"Title":["DIRECTOR","DIRECTOR","PRESIDENT/CEO","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","COO / TREASURER & SECRETAR","FORMER VP, STRATEGIC ALLIANCES"],"Hours":[1.0,1.0,50.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,50.0,50.0],"Total Compensation":[0,0,168000,0,0,0,0,0,0,0,0,129688,144654],"Direct compensation":[0,0,168000,0,0,0,0,0,0,0,0,129688,144654],"Other compensation":[0,0,0,0,0,0,0,0,0,0,0,0,0]},"Basic":{"value":null,"mission":"To create greater public awareness for rare diseases, while connecting, educating and empowering the millions of families and caregivers affected, through an online community and collaborative portal.","year":2016,"name":"GLOBAL GENES","phone":9492487273,"website":"WWW.GLOBALGENES.ORG","type":"990","affiliation":null,"foreign_countries":null,"principal_officer":"NICOLE BOICE","year_formation":2008,"state_legal_domicile":"CA","total_volunteers":0,"tax_period_begin":"2016-01-01T00:00:00","tax_period_end":"2016-12-31T00:00:00","address":"28 ARGONAUT SUITE 140 150, ALISO VIEJO, CA, 92656, USA","city":"ALISO VIEJO","state":"CA","country":"USA","zip_code":92656},"Governance":{"value":null,"501c3 determination":true,"501c determination":false,"Number of voting members":11,"Number of independent voting members":11,"Number of employees total":20,"Total Gross UBI":0,"Net unrelated business taxable income":0,"Number of employees":20,"Prohibited tax shelter transactions":true,"Taxable party notification":true,"Funds to pay premiums":true,"Premiums Paid":true,"Family or business relationship":true,"Delegation of management duties":true,"Conflict of interest policy":true,"Whistle blower policy":true,"Compensation process for CEO":true,"Compensation process for other employees":true,"Changes to organizing documents":true,"Material diversion or misuse":true,"Members or stockholders":true,"Election of board members":true,"Decisions subject to approval":true,"Minutes of governing body":true,"Local chapters":true,"Form 990 provided to governing body":true,"Document retention policy":true,"Investment in joint venture":true,"Independent audit financial statements":true,"Consolidated audit financial statements":true,"Accountant compile or review":true,"Political activities":true,"Donor advised funds":true,"Conservation easements":true,"Collections of art":true,"School":true,"Hospital":true,"Foreign activities":true,"Foreign office":true,"Gaming":true,"Fundraising activities":true,"Professional fundraising":true,"Loan to officer or DQP":true,"Grant to related person":true,"Business relationship through family member":true,"Business relationship with organization":true},"Revenues":{"value":3565642,"Contributions":{"value":3106963,"Other contributions":3106963,"Contributions from gifts and grants":0,"Fundraising revenue":0,"Dues":0,"Campaigns":0,"Grant revenue":0,"Related organizations":0},"Program revenue":{"value":0,"Total revenue":0,"Total other revenue":0,"Unrelated business revenue":0},"Investment income":{"value":-182,"Investment income total":0,"Net investment gain":-182,"Income from invest bond proceeds":0},"Other revenues":{"value":458861,"Other total":0,"Royalties revenue":0,"Net rental income":0,"Net income from fundraising events":458861,"Net income from gaming":0,"Net income":0,"Gross profit from sales of inventory":0,"Gain from sale of assets":0}},"Expenses":{"value":3413356,"Grant expense":{"value":97694,"Grants to domestic orgs":97694,"Grants to domestic individuals":0,"Grants and similar":0,"Foreign grants":0},"Total professional fundraising expense":{"value":0,"Fundraising professional":0,"Fees to independent contractors":0},"Benefits paid to members":{"value":0,"Benefits paid to members Total":0},"Salaries":{"value":1280443,"Current officers":297688,"Disqualified persons":0,"Other salaries and wages":892549,"Pension plan contributions":0,"Other employee benefits":0,"Payroll taxes":90206},"Other expenses":{"value":2035219,"Management services":0,"Legal":20622,"Accounting":37418,"Lobbying services":0,"Investment management fees":0,"Other services":66175,"Advertising":65898,"Office expenses":0,"Information technology":42825,"Royalties":0,"Occupancy":80153,"Travel":147665,"Conferences and meetings":350057,"Interest":0,"Payments to affiliates":0,"Depreciation and depletion":25899,"Insurance":10518,"Travel entertainment public officials":0,"Travel entertainment payments":0,"Printing, publications, postage":0,"Itemized Expenses":{"value":884427,"FUNDED TRAVEL FOR PATIE":311837,"MEALS & ENTERTAINMENT":269049,"PATIENT SERVICES":234271,"FEES":69270},"All other expenses":303562},"Functional Expenses":{"value":null,"Program Service Expenses":2948835,"Management And General Expenses":396380,"Fundraising Expenses":68141}},"Assets":{"value":1211444,"Non-interest bearing cash":1028392,"Savings and temp cash investments":0,"Pledges and grants receivable":0,"Accounts receivable":0,"Receivables from officers":0,"Receivables from disqual persons":0,"Other net note and loans":0,"Inventories for sale or use":17545,"Prepaid expenses deferred charges":115994,"Land, building, equipment":39526,"Investments publicly traded":0,"Investments other":0,"Investments program related":0,"Intangible assets":0,"Other assets":9987},"Liabilities":{"value":159016,"Sum of Total Liabilities":0,"Accounts payable, accrued":67854,"Grants payable":0,"Deferred, revenue":0,"Tax exempt bond liabilities":0,"Escrow account liability":0,"Loans from officers, directors":0,"Secured mortgages and notes payable":0,"Unsecured notes loans payable":7258,"Other liabilities":83904},"Fund balance":{"value":1052428,"Net assets without donor restriction":0,"Net assets with donor restriction":0,"Unrestricted net assets":607983,"Temporarily restricted net assets":444445,"Permanently restricted net assets":0},"Ratings":{"Program Expense Ratio":{"score":0.8639107669988129,"percentile":0.7146155736186187},"Fundraising Efficiency":{"score":45.59608752439794,"percentile":0.7678190317368425},"Operating Margin":{"score":0.04270927928266494,"percentile":0.5084284095209815},"Liabilities to Assets Ratio":{"score":0.13126153582006267,"percentile":0.2979062915312676},"Operating Reserve Ratio":{"score":0.35491287753167267,"percentile":0.18789901660361755},"Officer Compensation Ratio":{"score":0.1295915222437976,"percentile":0.46310829495000605},"Program Expense Growth":{"score":0.3423920019365743,"percentile":0.882412268712709},"Revenue Growth":{"score":0.23689522546565173,"percentile":0.9198751571664103},"Asset Growth":{"score":0.23500990868310628,"percentile":0.8788071302589108},"Independent Voting Board Pct":{"score":1.0,"percentile":0.9933392423419786},"Governance Policy Score":{"score":6.0,"percentile":1.0},"Overall Score":{"score":0.7044510810821984,"percentile":0.8561004227076205}},"source_xml":"201712229349301571_public.xml"},{"Organization":{"value":null,"Person":["Caroline Loewy","John Crowley","Nicole Boice","Natalie Douglas","Hugh Hempel","Peter Pellizzon","Brad Marcus","Wendy White","Susan Stein","Nauman Shah","Craig Martin","Angie Rowe","Tiffany Leite"],"Title":["Director","Director","Founder","Vice Chairman","Director","Treasurer","Director","Chairman","Director","Director","Director","Interim ED","COO"],"Hours":[1.0,1.0,50.0,5.0,1.0,1.0,1.0,5.0,1.0,1.0,5.0,50.0,50.0],"Total Compensation":[0,0,172811,0,0,0,0,0,0,0,36000,157148,140367],"Direct compensation":[0,0,171208,0,0,0,0,0,0,0,36000,155948,139167],"Other compensation":[0,0,1603,0,0,0,0,0,0,0,0,1200,1200]},"Basic":{"value":null,"mission":"Increase public awareness for rare disease and globally connect, empower and educate individuals and rare disease foundations in person, print and online.","year":2018,"name":"Global Genes","phone":9492487273,"website":"globalgenes.org","type":"990","affiliation":null,"foreign_countries":["Albania","Andorra","Australia","Austria","Belarus","Belgium","Bosnia and Herzegovina","Bulgaria","Canada","Croatia","Cyprus","Czechia","Denmark","Estonia","Faroe Islands","Finland","France","Germany","Gibraltar","Greece","Guernsey","Hungary","Iceland","Ireland","Isle of Man","Italy","Jersey","Kosovo","Latvia","Liechtenstein","Lithuania","Luxembourg","Malta","Moldova","Monaco","Montenegro","Netherlands","North Macedonia","Norway","Poland","Portugal","Romania","Russia","San Marino","Serbia","Slovakia","Slovenia","Spain","Svalbard and Jan Mayen","Sweden","Switzerland","Ukraine","United Kingdom","Vatican City","Åland Islands"],"principal_officer":"Peter Pellizzon","year_formation":2008,"state_legal_domicile":"CA","total_volunteers":50,"tax_period_begin":"2018-01-01T00:00:00","tax_period_end":"2018-12-31T00:00:00","address":"28 Argonaut Suite 140 150, Aliso Viejo, CA, 92656, USA","city":"Aliso Viejo","state":"CA","country":"USA","zip_code":92656},"Governance":{"value":null,"501c3 determination":true,"501c determination":false,"Number of voting members":12,"Number of independent voting members":9,"Number of employees total":24,"Total Gross UBI":0,"Net unrelated business taxable income":null,"Number of employees":24,"Prohibited tax shelter transactions":true,"Taxable party notification":true,"Funds to pay premiums":true,"Premiums Paid":true,"Family or business relationship":true,"Delegation of management duties":true,"Conflict of interest policy":true,"Whistle blower policy":true,"Compensation process for CEO":true,"Compensation process for other employees":true,"Changes to organizing documents":true,"Material diversion or misuse":true,"Members or stockholders":true,"Election of board members":true,"Decisions subject to approval":true,"Minutes of governing body":true,"Local chapters":true,"Form 990 provided to governing body":true,"Document retention policy":true,"Investment in joint venture":true,"Independent audit financial statements":true,"Consolidated audit financial statements":true,"Accountant compile or review":true,"Political activities":true,"Donor advised funds":true,"Conservation easements":true,"Collections of art":true,"School":true,"Hospital":true,"Foreign activities":true,"Foreign office":true,"Gaming":true,"Fundraising activities":true,"Professional fundraising":true,"Loan to officer or DQP":true,"Grant to related person":true,"Business relationship through family member":true,"Business relationship with organization":true},"Revenues":{"value":4930932,"Contributions":{"value":4955803,"Other contributions":4955803,"Contributions from gifts and grants":0,"Fundraising revenue":0,"Dues":0,"Campaigns":0,"Grant revenue":0,"Related organizations":0},"Program revenue":{"value":0,"Total revenue":0,"Total other revenue":0,"Unrelated business revenue":0},"Investment income":{"value":1250,"Investment income total":1250,"Net investment gain":0,"Income from invest bond proceeds":0},"Other revenues":{"value":-26121,"Other total":0,"Royalties revenue":0,"Net rental income":0,"Net income from fundraising events":-26121,"Net income from gaming":0,"Net income":0,"Gross profit from sales of inventory":0,"Gain from sale of assets":0}},"Expenses":{"value":4476426,"Grant expense":{"value":379628,"Grants to domestic orgs":243496,"Grants to domestic individuals":65400,"Grants and similar":0,"Foreign grants":70732},"Total professional fundraising expense":{"value":0,"Fundraising professional":0,"Fees to independent contractors":0},"Benefits paid to members":{"value":0,"Benefits paid to members Total":0},"Salaries":{"value":1499844,"Current officers":565982,"Disqualified persons":0,"Other salaries and wages":823638,"Pension plan contributions":0,"Other employee benefits":0,"Payroll taxes":110224},"Other expenses":{"value":2596954,"Management services":0,"Legal":16760,"Accounting":0,"Lobbying services":0,"Investment management fees":0,"Other services":101719,"Advertising":234218,"Office expenses":0,"Information technology":0,"Royalties":0,"Occupancy":114542,"Travel":145352,"Conferences and meetings":568750,"Interest":0,"Payments to affiliates":0,"Depreciation and depletion":5028,"Insurance":10016,"Travel entertainment public officials":0,"Travel entertainment payments":0,"Printing, publications, postage":0,"Itemized Expenses":{"value":1080453,"Funded Travel for Patients":694210,"Patient Services":202892,"Computer and Software":95876,"Professional Fees":87475},"All other expenses":320116},"Functional Expenses":{"value":null,"Program Service Expenses":3408908,"Management And General Expenses":425251,"Fundraising Expenses":642267}},"Assets":{"value":1746498,"Non-interest bearing cash":1105306,"Savings and temp cash investments":0,"Pledges and grants receivable":155964,"Accounts receivable":22161,"Receivables from officers":0,"Receivables from disqual persons":0,"Other net note and loans":0,"Inventories for sale or use":8302,"Prepaid expenses deferred charges":240056,"Land, building, equipment":204722,"Investments publicly traded":0,"Investments other":0,"Investments program related":0,"Intangible assets":0,"Other assets":9987},"Liabilities":{"value":330560,"Sum of Total Liabilities":0,"Accounts payable, accrued":209819,"Grants payable":0,"Deferred, revenue":2501,"Tax exempt bond liabilities":0,"Escrow account liability":0,"Loans from officers, directors":0,"Secured mortgages and notes payable":0,"Unsecured notes loans payable":0,"Other liabilities":118240},"Fund balance":{"value":1415938,"Net assets without donor restriction":0,"Net assets with donor restriction":0,"Unrestricted net assets":879974,"Temporarily restricted net assets":535964,"Permanently restricted net assets":0},"Ratings":{"Program Expense Ratio":{"score":0.7615244840415099,"percentile":0.5838290382090178},"Fundraising Efficiency":{"score":7.716110278124207,"percentile":0.3202803003464872},"Operating Margin":{"score":0.09217446113635312,"percentile":0.6094588620938929},"Liabilities to Assets Ratio":{"score":0.18927018525071315,"percentile":0.25746087969677156},"Operating Reserve Ratio":{"score":0.3901545563357911,"percentile":0.20368557910974344},"Officer Compensation Ratio":{"score":0.11310943149735972,"percentile":0.5103423755352136},"Program Expense Growth":{"score":0.16732942720722516,"percentile":0.7747641175971571},"Revenue Growth":{"score":0.16859827799118565,"percentile":0.8691896722455668},"Asset Growth":{"score":0.18325537134835784,"percentile":0.827996984434625},"Independent Voting Board Pct":{"score":0.75,"percentile":0.17719847849878714},"Governance Policy Score":{"score":6.0,"percentile":1.0},"Overall Score":{"score":0.568793888874081,"percentile":0.5131768906501762}},"source_xml":"201943189349310954_public.xml"},{"Organization":{"value":null,"Person":["CAROLINE LOEWY","JOHN CROWLEY","NICOLE BOICE","HUGH HEMPEL","PETER PELLIZZON","BRAD MARGUS","CRAIG MARTIN TERM START 1025","CHRISTINA M HARTMAN","KATIE STEVENS","NEIL KUMAR","INDU NAVAR","MELISSA STRODTBECK","CHRISTIAN RUBIO","PAM FERRIS","MARY K O'CONNOR","SUSAN BRISENDINE","KIMBERLY HAUGSTAD TERM END 1025"],"Title":["DIRECTOR","DIRECTOR","FOUNDER","DIRECTOR","TREASURER","DIRECTOR","CEO (NEW)","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","FIN. DIRECTOR","VP STRATEGIC ADVANCEMENT","VP DEVELOPMENT & MARKETING","DIR. CORPORATE ENG","DIR. ENGAGEMENT PROGRAMS","CEO (FORMER)"],"Hours":[1.0,1.0,40.0,1.0,1.0,1.0,40.0,1.0,1.0,1.0,1.0,40.0,40.0,40.0,40.0,40.0,40.0],"Total Compensation":[0,0,159410,0,0,0,35000,0,0,0,0,94739,188417,192019,150000,120887,317847],"Direct compensation":[0,0,159410,0,0,0,35000,0,0,0,0,94739,188417,192019,150000,120887,317847],"Other compensation":[0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0]},"Basic":{"value":null,"mission":"Increase public awareness for rare disease and globally connect, empower and educate individuals and rare disease foundations in person, print and online.","year":2020,"name":"GLOBAL GENES","phone":9492487273,"website":"GLOBALGENES.ORG","type":"990","affiliation":null,"foreign_countries":null,"principal_officer":"CRAIG MARTIN","year_formation":2008,"state_legal_domicile":"CA","total_volunteers":0,"tax_period_begin":"2020-01-01T00:00:00","tax_period_end":"2020-12-31T00:00:00","address":"28 ARGONAUT SUITE 140 150, ALISO VIEJO, CA, 92656, USA","city":"ALISO VIEJO","state":"CA","country":"USA","zip_code":92656},"Governance":{"value":null,"501c3 determination":true,"501c determination":false,"Number of voting members":11,"Number of independent voting members":9,"Number of employees total":27,"Total Gross UBI":0,"Net unrelated business taxable income":0,"Number of employees":27,"Prohibited tax shelter transactions":true,"Taxable party notification":true,"Funds to pay premiums":false,"Premiums Paid":false,"Family or business relationship":true,"Delegation of management duties":true,"Conflict of interest policy":true,"Whistle blower policy":true,"Compensation process for CEO":true,"Compensation process for other employees":true,"Changes to organizing documents":true,"Material diversion or misuse":true,"Members or stockholders":true,"Election of board members":true,"Decisions subject to approval":true,"Minutes of governing body":true,"Local chapters":true,"Form 990 provided to governing body":true,"Document retention policy":true,"Investment in joint venture":true,"Independent audit financial statements":true,"Consolidated audit financial statements":true,"Accountant compile or review":true,"Political activities":true,"Donor advised funds":true,"Conservation easements":true,"Collections of art":true,"School":true,"Hospital":true,"Foreign activities":true,"Foreign office":true,"Gaming":true,"Fundraising activities":true,"Professional fundraising":true,"Loan to officer or DQP":true,"Grant to related person":true,"Business relationship through family member":true,"Business relationship with organization":true},"Revenues":{"value":5567077,"Contributions":{"value":3867120,"Other contributions":3581873,"Contributions from gifts and grants":0,"Fundraising revenue":0,"Dues":0,"Campaigns":0,"Grant revenue":285247,"Related organizations":0},"Program revenue":{"value":1688650,"Total revenue":{"value":1688650,"MEMBERSHIP FEES":1415650,"CONFERENCE SPONSORSHIP":273000},"Total other revenue":0,"Unrelated business revenue":0},"Investment income":{"value":11307,"Investment income total":11307,"Net investment gain":0,"Income from invest bond proceeds":0},"Other revenues":{"value":0,"Other total":0,"Royalties revenue":0,"Net rental income":0,"Net income from fundraising events":0,"Net income from gaming":0,"Net income":0,"Gross profit from sales of inventory":0,"Gain from sale of assets":0}},"Expenses":{"value":5166425,"Grant expense":{"value":603390,"Grants to domestic orgs":529000,"Grants to domestic individuals":69390,"Grants and similar":0,"Foreign grants":5000},"Total professional fundraising expense":{"value":0,"Fundraising professional":0,"Fees to independent contractors":0},"Benefits paid to members":{"value":0,"Benefits paid to members Total":0},"Salaries":{"value":2608063,"Current officers":793022,"Disqualified persons":0,"Other salaries and wages":1621428,"Pension plan contributions":0,"Other employee benefits":0,"Payroll taxes":193613},"Other expenses":{"value":1954972,"Management services":0,"Legal":3200,"Accounting":0,"Lobbying services":0,"Investment management fees":0,"Other services":83369,"Advertising":0,"Office expenses":0,"Information technology":0,"Royalties":0,"Occupancy":117403,"Travel":110533,"Conferences and meetings":368,"Interest":0,"Payments to affiliates":0,"Depreciation and depletion":69401,"Insurance":15028,"Travel entertainment public officials":0,"Travel entertainment payments":0,"Printing, publications, postage":0,"Itemized Expenses":{"value":1231455,"OUTSIDE SERVICES":662820,"COMPUTER AND SOFTWARE":256297,"SUPPLIES":217957,"PROGRAM AWARENESS":94381},"All other expenses":324215},"Functional Expenses":{"value":null,"Program Service Expenses":4417753,"Management And General Expenses":651908,"Fundraising Expenses":96764}},"Assets":{"value":3087118,"Non-interest bearing cash":2535442,"Savings and temp cash investments":0,"Pledges and grants receivable":109012,"Accounts receivable":44324,"Receivables from officers":0,"Receivables from disqual persons":0,"Other net note and loans":0,"Inventories for sale or use":4299,"Prepaid expenses deferred charges":302977,"Land, building, equipment":81077,"Investments publicly traded":0,"Investments other":0,"Investments program related":0,"Intangible assets":0,"Other assets":9987},"Liabilities":{"value":1044513,"Sum of Total Liabilities":0,"Accounts payable, accrued":66213,"Grants payable":0,"Deferred, revenue":826214,"Tax exempt bond liabilities":0,"Escrow account liability":0,"Loans from officers, directors":0,"Secured mortgages and notes payable":0,"Unsecured notes loans payable":0,"Other liabilities":152086},"Fund balance":{"value":2042605,"Net assets without donor restriction":1933593,"Net assets with donor restriction":109012,"Unrestricted net assets":0,"Temporarily restricted net assets":0,"Permanently restricted net assets":0},"Ratings":{"Program Expense Ratio":{"score":0.8550889638386312,"percentile":0.7012601403333522},"Fundraising Efficiency":{"score":39.96444958869001,"percentile":0.7456674702404097},"Operating Margin":{"score":0.07196810821908876,"percentile":0.5712780477386028},"Liabilities to Assets Ratio":{"score":0.3383456673829766,"percentile":0.18641383700979788},"Operating Reserve Ratio":{"score":0.5975346588792056,"percentile":0.2902772470074828},"Officer Compensation Ratio":{"score":0.24355700508572176,"percentile":0.24919672173581364},"Program Expense Growth":{"score":0.16437940442738386,"percentile":0.7716582933519337},"Revenue Growth":{"score":0.15555817363531876,"percentile":0.8550216680371046},"Asset Growth":{"score":0.2381586246332632,"percentile":0.8812468336703743},"Independent Voting Board Pct":{"score":0.8181818181818182,"percentile":0.19651986163686286},"Governance Policy Score":{"score":6.0,"percentile":1.0},"Overall Score":{"score":0.6252541743320851,"percentile":0.6772241246320532}},"source_xml":"202143199349311269_public.xml"}],"Latest":{"Organization":{"value":null,"Person":["NICOLE R BOICE","WALT KOWTONIUK","KATHERINE MAYNARD","SIMON FROST","CHRISTINA HARTMAN","BETSY BOGARD","KHRYSTAL DAVIS","ILANA FOGELMAN","PETER GOODHAND","HUGH HEMPEL","RAM IYER","NEIL KUMAR","CAROLINE LOEWY","INDU NAVAR","DAVID PEARCE","JOHN REYNDERS","MORRIE RUFFIN","ALVIN SHIH","KELLY MCVEARRY","CHARLENE SON RIGBY","VICTORIA WEISS","KARMEN TRZUPEK","ZOHREH TALEBIZADEH","LAUREN ALFORD","TIMOTHY EHRHARD","CHWENWOAN KUAN"],"Title":["FOUNDER & CHIEF MISSION OFFICER","CHAIR","VICE CHAIR","CFO","SECRETARY","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","CEO","SENIOR DIRECTOR, FINANCE","SENIOR DIRECTOR, SCIENTIFIC PROGRAMS","SENIOR DIRECTOR, RARE-X RESEARCH PROGRAM","SENIOR DIRECTOR, MARKETING","SENIOR DIRECTOR, IT (TERM 12/24)","DIRECTOR, PROGRAM OPERATIONS"],"Hours":[40.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,40.0,24.0,40.0,40.0,40.0,40.0,40.0],"Total Compensation":[254461,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,319961,136886,185673,180086,168592,151832,152347],"Direct compensation":[254375,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,319125,136800,179287,180000,168506,151746,146285],"Other compensation":[86,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,836,86,6386,86,86,86,6062]},"Basic":{"value":null,"mission":"Global genes strives to connect, empower and inspire the rare disease community.","year":2024,"name":"GLOBAL GENES","phone":9492487273,"website":"GLOBALGENES.ORG","type":"990","affiliation":null,"foreign_countries":["Australia","China","Hong Kong","Indonesia","Japan","Macau","Malaysia","Marshall Islands","Micronesia","Mongolia","Nauru","New Zealand","Niue","North Korea","Palau","Papua New Guinea","Philippines","Samoa","Solomon Islands","South Korea","Taiwan","Tonga","Tuvalu","Vanuatu"],"principal_officer":"CHARLENE SON RIGBY","year_formation":2008,"state_legal_domicile":"CA","total_volunteers":42,"tax_period_begin":"2024-01-01T00:00:00","tax_period_end":"2024-12-31T00:00:00","address":"1012 14TH STREET NW SUITE 500, WASHINGTON, DC, 20005, USA","city":"WASHINGTON","state":"DC","country":"USA","zip_code":20005},"Governance":{"value":null,"501c3 determination":true,"501c determination":false,"Number of voting members":18,"Number of independent voting members":17,"Number of employees total":38,"Total Gross UBI":0,"Net unrelated business taxable income":0,"Number of employees":38,"Prohibited tax shelter transactions":true,"Taxable party notification":true,"Funds to pay premiums":true,"Premiums Paid":true,"Family or business relationship":true,"Delegation of management duties":true,"Conflict of interest policy":true,"Whistle blower policy":true,"Compensation process for CEO":true,"Compensation process for other employees":true,"Changes to organizing documents":true,"Material diversion or misuse":true,"Members or stockholders":true,"Election of board members":true,"Decisions subject to approval":true,"Minutes of governing body":true,"Local chapters":true,"Form 990 provided to governing body":true,"Document retention policy":true,"Investment in joint venture":true,"Independent audit financial statements":true,"Consolidated audit financial statements":true,"Accountant compile or review":true,"Political activities":true,"Donor advised funds":true,"Conservation easements":true,"Collections of art":true,"School":true,"Hospital":true,"Foreign activities":true,"Foreign office":true,"Gaming":true,"Fundraising activities":true,"Professional fundraising":true,"Loan to officer or DQP":true,"Grant to related person":true,"Business relationship through family member":true,"Business relationship with organization":true},"Revenues":{"value":7145531,"Contributions":{"value":5686341,"Other contributions":5686341,"Contributions from gifts and grants":0,"Fundraising revenue":0,"Dues":0,"Campaigns":0,"Grant revenue":0,"Related organizations":0},"Program revenue":{"value":1449717,"Total revenue":{"value":1449717,"MEMBERSHIP FEES":1422000,"CONFERENCE SPONSORSHIP":27717},"Total other revenue":0,"Unrelated business revenue":0},"Investment income":{"value":9473,"Investment income total":9473,"Net investment gain":0,"Income from invest bond proceeds":0},"Other revenues":{"value":0,"Other total":0,"Royalties revenue":0,"Net rental income":0,"Net income from fundraising events":0,"Net income from gaming":0,"Net income":0,"Gross profit from sales of inventory":0,"Gain from sale of assets":0}},"Expenses":{"value":7415893,"Grant expense":{"value":175264,"Grants to domestic orgs":70750,"Grants to domestic individuals":95514,"Grants and similar":0,"Foreign grants":9000},"Total professional fundraising expense":{"value":0,"Fundraising professional":0,"Fees to independent contractors":0},"Benefits paid to members":{"value":0,"Benefits paid to members Total":0},"Salaries":{"value":3960600,"Current officers":711308,"Disqualified persons":0,"Other salaries and wages":2848775,"Pension plan contributions":0,"Other employee benefits":113150,"Payroll taxes":287367},"Other expenses":{"value":3280029,"Management services":0,"Legal":7417,"Accounting":61310,"Lobbying services":0,"Investment management fees":0,"Other services":1148545,"Advertising":38962,"Office expenses":7912,"Information technology":428498,"Royalties":0,"Occupancy":78909,"Travel":137940,"Conferences and meetings":999104,"Interest":0,"Payments to affiliates":0,"Depreciation and depletion":0,"Insurance":27363,"Travel entertainment public officials":0,"Travel entertainment payments":0,"Printing, publications, postage":0,"Itemized Expenses":{"value":332528,"PROGRAM AWARENESS":146060,"FEES AND TAXES":107811,"BANK CHARGES":72557,"OTHER COSTS":6100},"All other expenses":11541},"Functional Expenses":{"value":null,"Program Service Expenses":5861349,"Management And General Expenses":954354,"Fundraising Expenses":600190}},"Assets":{"value":1538482,"Non-interest bearing cash":554935,"Savings and temp cash investments":2003,"Pledges and grants receivable":0,"Accounts receivable":853682,"Receivables from officers":0,"Receivables from disqual persons":0,"Other net note and loans":0,"Inventories for sale or use":0,"Prepaid expenses deferred charges":126862,"Land, building, equipment":0,"Investments publicly traded":0,"Investments other":0,"Investments program related":0,"Intangible assets":0,"Other assets":1000},"Liabilities":{"value":1351107,"Sum of Total Liabilities":0,"Accounts payable, accrued":718207,"Grants payable":0,"Deferred, revenue":437000,"Tax exempt bond liabilities":0,"Escrow account liability":0,"Loans from officers, directors":0,"Secured mortgages and notes payable":0,"Unsecured notes loans payable":0,"Other liabilities":195900},"Fund balance":{"value":187375,"Net assets without donor restriction":-1318314,"Net assets with donor restriction":1505689,"Unrestricted net assets":0,"Temporarily restricted net assets":0,"Permanently restricted net assets":0},"Ratings":{"Program Expense Ratio":{"score":0.7903766950251305,"percentile":0.6134728476714492},"Fundraising Efficiency":{"score":9.474234825638547,"percentile":0.38249918154526175},"Operating Margin":{"score":-0.03783651627849631,"percentile":0.3050120050649329},"Liabilities to Assets Ratio":{"score":0.8782078698353312,"percentile":0.06815286128413245},"Operating Reserve Ratio":{"score":0.20745741611967702,"percentile":0.11898528351082674},"Officer Compensation Ratio":{"score":0.2089887219246556,"percentile":0.2993122990583366},"Program Expense Growth":{"score":0.11534743113027661,"percentile":0.7045778024183356},"Revenue Growth":{"score":0.10066515018292448,"percentile":0.7653869100362809},"Asset Growth":{"score":0.07449826904476152,"percentile":0.6120173476313822},"Independent Voting Board Pct":{"score":0.9444444444444444,"percentile":0.26473254673740193},"Governance Policy Score":{"score":6.0,"percentile":1.0},"Overall Score":{"score":0.49251333172271644,"percentile":0.30354054879396236}},"source_xml":"202512979349302126_public.xml"},"sector":"Health","donation_categories":[],"zakat_policy":null},"error":null}