{"success":true,"data":{"_id":222559139,"filings":[{"Organization":{"value":null,"Person":["JAMES BROATCH MSW","PAUL R CHARLESWORTH","MARY BETH LUDINGTON","GUY M TUFO","SUSAN PINKHAM","WILSON HULLEY","PETER A MOSKOVITZ MD","LINDA LANG","SHARON WEINER","ILONA THOMASON","ROBERT LANE","DAVID F BOND","R NORMAN HARDEN","FRANCIS LUDINGTON III","STEVEN SHISLER"],"Title":["EXECUTIVE DIRECTOR","DIRECTOR","CO-PRESIDENT","TREASURER","DIRECTOR","VICE PRESIDENT","CHAIRMAN OF BOARD","DIRECTOR","VICE PRESIDENT","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","PRESIDENT","SECRETARY"],"Hours":[40.0,1.0,6.0,2.0,1.0,1.0,3.0,6.0,6.0,1.0,1.0,1.0,3.0,5.0,1.0],"Total Compensation":[126844,0,0,0,0,0,0,0,0,0,0,0,0,0,0],"Direct compensation":[115483,0,0,0,0,0,0,0,0,0,0,0,0,0,0],"Other compensation":[11361,0,0,0,0,0,0,0,0,0,0,0,0,0,0]},"Basic":{"value":null,"mission":"We provide support, education and hope to everyone affected by crps/ rsd while we drive research to develop better treatment and a cure.","year":2014,"name":"REFLEX SYMPATHETIC DYSTROPHY SYNDROME ASSOCIATION OF AMERICA","phone":2038773790,"website":"HTTP://WWW.RSDS.ORG","type":"990","affiliation":null,"foreign_countries":["Albania","Andorra","Austria","Belarus","Belgium","Bosnia and Herzegovina","Bulgaria","Croatia","Cyprus","Czechia","Denmark","Estonia","Faroe Islands","Finland","France","Germany","Gibraltar","Greece","Guernsey","Hungary","Iceland","Ireland","Isle of Man","Italy","Jersey","Kosovo","Latvia","Liechtenstein","Lithuania","Luxembourg","Malta","Moldova","Monaco","Montenegro","Netherlands","North Macedonia","Norway","Poland","Portugal","Romania","Russia","San Marino","Serbia","Slovakia","Slovenia","Spain","Svalbard and Jan Mayen","Sweden","Switzerland","Ukraine","United Kingdom","Vatican City","Åland Islands"],"principal_officer":"JAMES BROATCH","year_formation":1984,"state_legal_domicile":"NJ","total_volunteers":400,"tax_period_begin":"2014-01-01T00:00:00","tax_period_end":"2014-12-31T00:00:00","address":"99 CHERRY STREET, MILFORD, CT, 6460, USA","city":"MILFORD","state":"CT","country":"USA","zip_code":6460},"Governance":{"value":null,"501c3 determination":true,"501c determination":false,"Number of voting members":15,"Number of independent voting members":14,"Number of employees total":6,"Total Gross UBI":0,"Net unrelated business taxable income":0,"Number of employees":6,"Prohibited tax shelter transactions":true,"Taxable party notification":true,"Funds to pay premiums":true,"Premiums Paid":true,"Family or business relationship":true,"Delegation of management duties":true,"Conflict of interest policy":true,"Whistle blower policy":true,"Compensation process for CEO":true,"Compensation process for other employees":true,"Changes to organizing documents":true,"Material diversion or misuse":true,"Members or stockholders":true,"Election of board members":true,"Decisions subject to approval":true,"Minutes of governing body":true,"Local chapters":true,"Form 990 provided to governing body":true,"Document retention policy":true,"Investment in joint venture":true,"Independent audit financial statements":true,"Consolidated audit financial statements":true,"Accountant compile or review":true,"Political activities":true,"Donor advised funds":true,"Conservation easements":true,"Collections of art":true,"School":true,"Hospital":true,"Foreign activities":true,"Foreign office":true,"Gaming":true,"Fundraising activities":true,"Professional fundraising":true,"Loan to officer or DQP":true,"Grant to related person":true,"Business relationship through family member":true,"Business relationship with organization":true},"Revenues":{"value":768592,"Contributions":{"value":681088,"Other contributions":495070,"Contributions from gifts and grants":0,"Fundraising revenue":163518,"Dues":22500,"Campaigns":0,"Grant revenue":0,"Related organizations":0},"Program revenue":{"value":50880,"Total revenue":50880,"Total other revenue":0,"Unrelated business revenue":0},"Investment income":{"value":12971,"Investment income total":12706,"Net investment gain":265,"Income from invest bond proceeds":0},"Other revenues":{"value":23653,"Other total":45,"Royalties revenue":14,"Net rental income":0,"Net income from fundraising events":23594,"Net income from gaming":0,"Net income":0,"Gross profit from sales of inventory":0,"Gain from sale of assets":0}},"Expenses":{"value":938930,"Grant expense":{"value":262578,"Grants to domestic orgs":199955,"Grants to domestic individuals":0,"Grants and similar":0,"Foreign grants":62623},"Total professional fundraising expense":{"value":0,"Fundraising professional":0,"Fees to independent contractors":0},"Benefits paid to members":{"value":0,"Benefits paid to members Total":0},"Salaries":{"value":286362,"Current officers":124567,"Disqualified persons":0,"Other salaries and wages":140904,"Pension plan contributions":0,"Other employee benefits":0,"Payroll taxes":20891},"Other expenses":{"value":389990,"Management services":0,"Legal":70,"Accounting":8750,"Lobbying services":0,"Investment management fees":0,"Other services":5016,"Advertising":0,"Office expenses":28816,"Information technology":0,"Royalties":0,"Occupancy":12900,"Travel":4941,"Conferences and meetings":62431,"Interest":0,"Payments to affiliates":0,"Depreciation and depletion":0,"Insurance":6627,"Travel entertainment public officials":0,"Travel entertainment payments":0,"Printing, publications, postage":0,"Itemized Expenses":{"value":228896,"RESEARCH EVENTS AND CON":138469,"AWARENESS CAMPAIGN":52794,"PATIENT ASSISTANCE":23801,"BOD MEETINGS":13832},"All other expenses":31543},"Functional Expenses":{"value":null,"Program Service Expenses":738350,"Management And General Expenses":96776,"Fundraising Expenses":103804}},"Assets":{"value":1192973,"Non-interest bearing cash":0,"Savings and temp cash investments":369371,"Pledges and grants receivable":14000,"Accounts receivable":0,"Receivables from officers":0,"Receivables from disqual persons":0,"Other net note and loans":0,"Inventories for sale or use":0,"Prepaid expenses deferred charges":23875,"Land, building, equipment":0,"Investments publicly traded":10597,"Investments other":774180,"Investments program related":0,"Intangible assets":0,"Other assets":950},"Liabilities":{"value":182284,"Sum of Total Liabilities":0,"Accounts payable, accrued":17054,"Grants payable":165230,"Deferred, revenue":0,"Tax exempt bond liabilities":0,"Escrow account liability":0,"Loans from officers, directors":0,"Secured mortgages and notes payable":0,"Unsecured notes loans payable":0,"Other liabilities":0},"Fund balance":{"value":1010689,"Net assets without donor restriction":0,"Net assets with donor restriction":0,"Unrestricted net assets":260645,"Temporarily restricted net assets":750044,"Permanently restricted net assets":0},"Ratings":{"Program Expense Ratio":{"score":0.7863738510858105,"percentile":0.6090090870276236},"Fundraising Efficiency":{"score":6.561288582328234,"percentile":0.27361061907820394},"Operating Margin":{"score":-0.22162343610133856,"percentile":0.1411592239883636},"Liabilities to Assets Ratio":{"score":0.15279809350253526,"percentile":0.28149206942266314},"Operating Reserve Ratio":{"score":1.270566495904913,"percentile":0.4916298843694318},"Officer Compensation Ratio":{"score":0.1350942029757277,"percentile":0.4485137581701421},"Program Expense Growth":{"score":null,"percentile":null},"Revenue Growth":{"score":null,"percentile":null},"Asset Growth":{"score":null,"percentile":null},"Independent Voting Board Pct":{"score":0.9333333333333333,"percentile":0.25846041760016036},"Governance Policy Score":{"score":6.0,"percentile":1.0},"Overall Score":{"score":0.4285210806403948,"percentile":0.1703451515613904}},"source_xml":"201502239349301120_public.xml"},{"Organization":{"value":null,"Person":["JAMES BROATCH MSW","RACHEL CHARLESWORTH","MARY BETH LUDINGTON","STEPHEN BRILLIANT","SUSAN PINKHAM","PETER A MOSKOVITZ MD","LINDA LANG","SHARON WEINER","ILONA THOMASSEN","ROBERT LANE","DAVID F BOND","NORMAN HARDEN MD","FRANCIS LUDINGTON III","STEVEN SHISLER","STEPHEN BRUEHL PHD","BILLY ALEXANDER MD"],"Title":["EXECUTIVE DIRECTOR","DIRECTOR","CO-PRESIDENT","TREASURER","DIRECTOR","CHAIRMAN OF BOARD","DIRECTOR","VICE PRESIDENT","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","CO-PRESIDENT","SECRETARY","DIRECTOR","DIRECTOR"],"Hours":[40.0,1.0,6.0,1.0,1.0,3.0,6.0,6.0,1.0,1.0,1.0,3.0,5.0,1.0,1.0,1.0],"Total Compensation":[127598,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0],"Direct compensation":[127598,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0],"Other compensation":[0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0]},"Basic":{"value":null,"mission":"We provide support, education and hope to everyone affected by crps/ rsd while we drive research to develop better treatment and a cure.","year":2017,"name":"REFLEX SYMPATHETIC DYSTROPHY SYNDROME ASSOCIATION OF AMERICA","phone":2038773790,"website":"HTTP://WWW.RSDS.ORG","type":"990","affiliation":null,"foreign_countries":["Albania","Andorra","Austria","Belarus","Belgium","Bosnia and Herzegovina","Bulgaria","Croatia","Cyprus","Czechia","Denmark","Estonia","Faroe Islands","Finland","France","Germany","Gibraltar","Greece","Guernsey","Hungary","Iceland","Ireland","Isle of Man","Italy","Jersey","Kosovo","Latvia","Liechtenstein","Lithuania","Luxembourg","Malta","Moldova","Monaco","Montenegro","Netherlands","North Macedonia","Norway","Poland","Portugal","Romania","Russia","San Marino","Serbia","Slovakia","Slovenia","Spain","Svalbard and Jan Mayen","Sweden","Switzerland","Ukraine","United Kingdom","Vatican City","Åland Islands"],"principal_officer":"JAMES BROATCH","year_formation":1984,"state_legal_domicile":"NJ","total_volunteers":0,"tax_period_begin":"2017-01-01T00:00:00","tax_period_end":"2017-12-31T00:00:00","address":"99 CHERRY STREET, MILFORD, CT, 6460, USA","city":"MILFORD","state":"CT","country":"USA","zip_code":6460},"Governance":{"value":null,"501c3 determination":true,"501c determination":false,"Number of voting members":16,"Number of independent voting members":14,"Number of employees total":6,"Total Gross UBI":0,"Net unrelated business taxable income":0,"Number of employees":6,"Prohibited tax shelter transactions":true,"Taxable party notification":true,"Funds to pay premiums":true,"Premiums Paid":true,"Family or business relationship":true,"Delegation of management duties":true,"Conflict of interest policy":true,"Whistle blower policy":true,"Compensation process for CEO":true,"Compensation process for other employees":true,"Changes to organizing documents":true,"Material diversion or misuse":true,"Members or stockholders":true,"Election of board members":true,"Decisions subject to approval":true,"Minutes of governing body":true,"Local chapters":true,"Form 990 provided to governing body":true,"Document retention policy":true,"Investment in joint venture":true,"Independent audit financial statements":true,"Consolidated audit financial statements":true,"Accountant compile or review":true,"Political activities":true,"Donor advised funds":true,"Conservation easements":true,"Collections of art":true,"School":true,"Hospital":true,"Foreign activities":true,"Foreign office":true,"Gaming":true,"Fundraising activities":true,"Professional fundraising":true,"Loan to officer or DQP":true,"Grant to related person":true,"Business relationship through family member":true,"Business relationship with organization":true},"Revenues":{"value":939414,"Contributions":{"value":887122,"Other contributions":831046,"Contributions from gifts and grants":0,"Fundraising revenue":56076,"Dues":0,"Campaigns":0,"Grant revenue":0,"Related organizations":0},"Program revenue":{"value":41251,"Total revenue":41251,"Total other revenue":0,"Unrelated business revenue":0},"Investment income":{"value":20991,"Investment income total":22198,"Net investment gain":-1207,"Income from invest bond proceeds":0},"Other revenues":{"value":-9950,"Other total":0,"Royalties revenue":0,"Net rental income":0,"Net income from fundraising events":-9950,"Net income from gaming":0,"Net income":0,"Gross profit from sales of inventory":0,"Gain from sale of assets":0}},"Expenses":{"value":668359,"Grant expense":{"value":70729,"Grants to domestic orgs":0,"Grants to domestic individuals":0,"Grants and similar":0,"Foreign grants":70729},"Total professional fundraising expense":{"value":0,"Fundraising professional":0,"Fees to independent contractors":0},"Benefits paid to members":{"value":0,"Benefits paid to members Total":0},"Salaries":{"value":244361,"Current officers":127598,"Disqualified persons":0,"Other salaries and wages":96189,"Pension plan contributions":0,"Other employee benefits":0,"Payroll taxes":20574},"Other expenses":{"value":353269,"Management services":0,"Legal":0,"Accounting":0,"Lobbying services":0,"Investment management fees":0,"Other services":47459,"Advertising":0,"Office expenses":30864,"Information technology":0,"Royalties":0,"Occupancy":13185,"Travel":315,"Conferences and meetings":51428,"Interest":0,"Payments to affiliates":0,"Depreciation and depletion":0,"Insurance":8381,"Travel entertainment public officials":0,"Travel entertainment payments":0,"Printing, publications, postage":0,"Itemized Expenses":{"value":174361,"AWARENESS CAMPAIGN":70877,"RESEARCH EVENTS AND CON":67048,"POSTAGE":20485,"PATIENT ASSISTANCE":15951},"All other expenses":27276},"Functional Expenses":{"value":null,"Program Service Expenses":541439,"Management And General Expenses":82012,"Fundraising Expenses":44908}},"Assets":{"value":1433495,"Non-interest bearing cash":0,"Savings and temp cash investments":634649,"Pledges and grants receivable":0,"Accounts receivable":0,"Receivables from officers":0,"Receivables from disqual persons":0,"Other net note and loans":0,"Inventories for sale or use":0,"Prepaid expenses deferred charges":6376,"Land, building, equipment":0,"Investments publicly traded":46186,"Investments other":745334,"Investments program related":0,"Intangible assets":0,"Other assets":950},"Liabilities":{"value":118034,"Sum of Total Liabilities":0,"Accounts payable, accrued":37781,"Grants payable":80253,"Deferred, revenue":0,"Tax exempt bond liabilities":0,"Escrow account liability":0,"Loans from officers, directors":0,"Secured mortgages and notes payable":0,"Unsecured notes loans payable":0,"Other liabilities":0},"Fund balance":{"value":1315461,"Net assets without donor restriction":0,"Net assets with donor restriction":0,"Unrestricted net assets":324099,"Temporarily restricted net assets":991362,"Permanently restricted net assets":0},"Ratings":{"Program Expense Ratio":{"score":0.8101020559310191,"percentile":0.6383326754368298},"Fundraising Efficiency":{"score":19.75420860425759,"percentile":0.5946608909203848},"Operating Margin":{"score":0.2885362577095934,"percentile":0.8281293722291595},"Liabilities to Assets Ratio":{"score":0.08234001513782747,"percentile":0.344134535497097},"Operating Reserve Ratio":{"score":2.1447979304535436,"percentile":0.6340814011554367},"Officer Compensation Ratio":{"score":0.19091236895141683,"percentile":0.329648599030938},"Program Expense Growth":{"score":0.052366023720023025,"percentile":0.5401713451830804},"Revenue Growth":{"score":0.055847675072062494,"percentile":0.6301592647621639},"Asset Growth":{"score":0.02595456904879616,"percentile":0.4290076305915594},"Independent Voting Board Pct":{"score":0.875,"percentile":0.22520058322737488},"Governance Policy Score":{"score":6.0,"percentile":1.0},"Overall Score":{"score":0.6003061886245687,"percentile":0.606405549334921}},"source_xml":"201802479349300825_public.xml"},{"Organization":{"value":null,"Person":["JAMES BROATCH MSW","SHARON WEINER","FRANCIS H LUDINGTON III","MARY BETH LUDINGTON","PETER A MOSKOVITZ MD","NORMAN HARDEN MD","STEPHEN G BRILLIANT MS CPA","BRYAN POPE","JOSHUA PRAGER MD","DAVID F BOND","ROBERT LANE","STEPHEN BRUEHL PHD","SUSAN PINKHAM","ILONA THOMASSEN","KELLY CONSIDINE","ERIC MOYAL","LYNN COATNEY"],"Title":["EXEUCTIVE DIRECTOR UNTIL 3/20/24","EXECUTIVE DIRECTOR STARTING 3/20/24","CO-PRESIDENT","CO-PRESIDENT","CHAIRMAN OF THE BOARD","DIRECTOR","TREASURER","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR"],"Hours":[40.0,40.0,5.0,6.0,3.0,3.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0],"Total Compensation":[16032,72938,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0],"Direct compensation":[16032,72938,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0],"Other compensation":[0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0]},"Basic":{"value":null,"mission":"We provide support, education and hope to everyone affected by crps/ rsd while we drive research to develop better treatment and a cure.","year":2024,"name":"REFLEX SYMPATHETIC DYSTROPHY SYNDROME ASSOCIATION OF AMERICA","phone":2038773790,"website":"WWW.RSDS.ORG","type":"990","affiliation":null,"foreign_countries":null,"principal_officer":"SHARON WEINER","year_formation":1984,"state_legal_domicile":"NJ","total_volunteers":20,"tax_period_begin":"2024-01-01T00:00:00","tax_period_end":"2024-12-31T00:00:00","address":"99 CHERRY STREET, MILFORD, CT, 6460, USA","city":"MILFORD","state":"CT","country":"USA","zip_code":6460},"Governance":{"value":null,"501c3 determination":true,"501c determination":false,"Number of voting members":15,"Number of independent voting members":14,"Number of employees total":5,"Total Gross UBI":0,"Net unrelated business taxable income":0,"Number of employees":5,"Prohibited tax shelter transactions":true,"Taxable party notification":true,"Funds to pay premiums":false,"Premiums Paid":false,"Family or business relationship":true,"Delegation of management duties":true,"Conflict of interest policy":true,"Whistle blower policy":true,"Compensation process for CEO":true,"Compensation process for other employees":true,"Changes to organizing documents":true,"Material diversion or misuse":true,"Members or stockholders":true,"Election of board members":true,"Decisions subject to approval":true,"Minutes of governing body":true,"Local chapters":true,"Form 990 provided to governing body":true,"Document retention policy":true,"Investment in joint venture":true,"Independent audit financial statements":true,"Consolidated audit financial statements":true,"Accountant compile or review":true,"Political activities":true,"Donor advised funds":true,"Conservation easements":true,"Collections of art":true,"School":true,"Hospital":true,"Foreign activities":true,"Foreign office":true,"Gaming":true,"Fundraising activities":true,"Professional fundraising":true,"Loan to officer or DQP":true,"Grant to related person":true,"Business relationship through family member":true,"Business relationship with organization":true},"Revenues":{"value":524103,"Contributions":{"value":495916,"Other contributions":433586,"Contributions from gifts and grants":0,"Fundraising revenue":62330,"Dues":0,"Campaigns":0,"Grant revenue":0,"Related organizations":0},"Program revenue":{"value":0,"Total revenue":0,"Total other revenue":0,"Unrelated business revenue":0},"Investment income":{"value":35145,"Investment income total":26470,"Net investment gain":8675,"Income from invest bond proceeds":0},"Other revenues":{"value":-6958,"Other total":0,"Royalties revenue":0,"Net rental income":0,"Net income from fundraising events":-6958,"Net income from gaming":0,"Net income":0,"Gross profit from sales of inventory":0,"Gain from sale of assets":0}},"Expenses":{"value":518879,"Grant expense":{"value":0,"Grants to domestic orgs":0,"Grants to domestic individuals":0,"Grants and similar":0,"Foreign grants":0},"Total professional fundraising expense":{"value":0,"Fundraising professional":0,"Fees to independent contractors":0},"Benefits paid to members":{"value":0,"Benefits paid to members Total":0},"Salaries":{"value":167983,"Current officers":88970,"Disqualified persons":0,"Other salaries and wages":67333,"Pension plan contributions":0,"Other employee benefits":0,"Payroll taxes":11680},"Other expenses":{"value":350896,"Management services":0,"Legal":0,"Accounting":0,"Lobbying services":0,"Investment management fees":0,"Other services":61295,"Advertising":0,"Office expenses":37530,"Information technology":0,"Royalties":0,"Occupancy":16558,"Travel":5659,"Conferences and meetings":0,"Interest":0,"Payments to affiliates":0,"Depreciation and depletion":1341,"Insurance":9065,"Travel entertainment public officials":0,"Travel entertainment payments":0,"Printing, publications, postage":0,"Itemized Expenses":{"value":203056,"RESEARCH EVENTS AND CON":122969,"AWARENESS CAMPAIGN":57574,"BANK FEES":12823,"STATE REGISTRATION FEES":9690},"All other expenses":16392},"Functional Expenses":{"value":null,"Program Service Expenses":373963,"Management And General Expenses":97768,"Fundraising Expenses":47148}},"Assets":{"value":1959338,"Non-interest bearing cash":0,"Savings and temp cash investments":1216859,"Pledges and grants receivable":0,"Accounts receivable":0,"Receivables from officers":0,"Receivables from disqual persons":0,"Other net note and loans":0,"Inventories for sale or use":0,"Prepaid expenses deferred charges":11033,"Land, building, equipment":6572,"Investments publicly traded":24100,"Investments other":681282,"Investments program related":0,"Intangible assets":0,"Other assets":19492},"Liabilities":{"value":131392,"Sum of Total Liabilities":0,"Accounts payable, accrued":23153,"Grants payable":89697,"Deferred, revenue":0,"Tax exempt bond liabilities":0,"Escrow account liability":0,"Loans from officers, directors":0,"Secured mortgages and notes payable":0,"Unsecured notes loans payable":0,"Other liabilities":18542},"Fund balance":{"value":1827946,"Net assets without donor restriction":1208024,"Net assets with donor restriction":619922,"Unrestricted net assets":0,"Temporarily restricted net assets":0,"Permanently restricted net assets":0},"Ratings":{"Program Expense Ratio":{"score":0.7207133069559569,"percentile":0.5504213222914133},"Fundraising Efficiency":{"score":10.518282853991685,"percentile":0.4147208565308848},"Operating Margin":{"score":0.009967506387103298,"percentile":0.42495219271527646},"Liabilities to Assets Ratio":{"score":0.06705938434307915,"percentile":0.36297836236322845},"Operating Reserve Ratio":{"score":3.776098088378986,"percentile":0.7582264792526018},"Officer Compensation Ratio":{"score":0.1714657945301313,"percentile":0.3661923267207053},"Program Expense Growth":{"score":-0.023497724495804437,"percentile":0.2510619099726564},"Revenue Growth":{"score":-0.015467098063908941,"percentile":0.31105104888193824},"Asset Growth":{"score":0.05046694297483062,"percentile":0.5285482026462175},"Independent Voting Board Pct":{"score":0.9333333333333333,"percentile":0.25846041760016036},"Governance Policy Score":{"score":6.0,"percentile":1.0},"Overall Score":{"score":0.4617000178222028,"percentile":0.23493940364168106}},"source_xml":"202533039349302403_public.xml"},{"Organization":{"value":null,"Person":["JAMES BROATCH MSW","SUSAN PINKHAM","MARY BETH LUDINGTON","STEPHEN BRILLIANT","PETER A MOSKOVITZ MD","KELLY CONSIDINE","SHARON WEINER","ILONA THOMASSEN","ROBERT LANE","DAVID BOND","NORMAN HARDEN MD","FRANCIS LUNDINGTON III","STEVEN SHISLER","STEPHEN BRUEHL PHD","ERIC MOYAL"],"Title":["EXECUTIVE DIRECTOR","DIRECTOR","CO-PRESIDENT","TREASURER","CHAIRMAN OF BOARD","DIRECTOR","VICE PRESIDENT","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","CO-PRESIDENT","SECRETARY","DIRECTOR","DIRECTOR"],"Hours":[40.0,1.0,6.0,1.0,3.0,1.0,6.0,1.0,1.0,1.0,3.0,5.0,1.0,1.0,1.0],"Total Compensation":[125334,0,0,0,0,0,0,0,0,0,0,0,0,0,0],"Direct compensation":[125334,0,0,0,0,0,0,0,0,0,0,0,0,0,0],"Other compensation":[0,0,0,0,0,0,0,0,0,0,0,0,0,0,0]},"Basic":{"value":null,"mission":"We provide support, education and hope to everyone affected by crps/ rsd while we drive research to develop better treatment and a cure.","year":2022,"name":"REFLEX SYMPATHETIC DYSTROPHY SYNDROME ASSOCIATION OF AMERICA","phone":2038773790,"website":"WWW.RSDS.ORG","type":"990","affiliation":null,"foreign_countries":null,"principal_officer":"JAMES BROATCH","year_formation":1984,"state_legal_domicile":"NJ","total_volunteers":14,"tax_period_begin":"2022-01-01T00:00:00","tax_period_end":"2022-12-31T00:00:00","address":"99 CHERRY STREET, MILFORD, CT, 6460, USA","city":"MILFORD","state":"CT","country":"USA","zip_code":6460},"Governance":{"value":null,"501c3 determination":true,"501c determination":false,"Number of voting members":15,"Number of independent voting members":14,"Number of employees total":4,"Total Gross UBI":0,"Net unrelated business taxable income":0,"Number of employees":4,"Prohibited tax shelter transactions":true,"Taxable party notification":true,"Funds to pay premiums":false,"Premiums Paid":false,"Family or business relationship":true,"Delegation of management duties":true,"Conflict of interest policy":true,"Whistle blower policy":true,"Compensation process for CEO":true,"Compensation process for other employees":true,"Changes to organizing documents":true,"Material diversion or misuse":true,"Members or stockholders":true,"Election of board members":true,"Decisions subject to approval":true,"Minutes of governing body":true,"Local chapters":true,"Form 990 provided to governing body":true,"Document retention policy":true,"Investment in joint venture":true,"Independent audit financial statements":true,"Consolidated audit financial statements":true,"Accountant compile or review":true,"Political activities":true,"Donor advised funds":true,"Conservation easements":true,"Collections of art":true,"School":true,"Hospital":true,"Foreign activities":true,"Foreign office":true,"Gaming":true,"Fundraising activities":true,"Professional fundraising":true,"Loan to officer or DQP":true,"Grant to related person":true,"Business relationship through family member":true,"Business relationship with organization":true},"Revenues":{"value":606080,"Contributions":{"value":621873,"Other contributions":519197,"Contributions from gifts and grants":0,"Fundraising revenue":102676,"Dues":0,"Campaigns":0,"Grant revenue":0,"Related organizations":0},"Program revenue":{"value":0,"Total revenue":0,"Total other revenue":0,"Unrelated business revenue":0},"Investment income":{"value":8140,"Investment income total":10837,"Net investment gain":-2697,"Income from invest bond proceeds":0},"Other revenues":{"value":-23933,"Other total":0,"Royalties revenue":0,"Net rental income":0,"Net income from fundraising events":-23933,"Net income from gaming":0,"Net income":0,"Gross profit from sales of inventory":0,"Gain from sale of assets":0}},"Expenses":{"value":547589,"Grant expense":{"value":0,"Grants to domestic orgs":0,"Grants to domestic individuals":0,"Grants and similar":0,"Foreign grants":0},"Total professional fundraising expense":{"value":0,"Fundraising professional":0,"Fees to independent contractors":0},"Benefits paid to members":{"value":0,"Benefits paid to members Total":0},"Salaries":{"value":201697,"Current officers":125334,"Disqualified persons":0,"Other salaries and wages":61241,"Pension plan contributions":0,"Other employee benefits":0,"Payroll taxes":15122},"Other expenses":{"value":345892,"Management services":0,"Legal":0,"Accounting":0,"Lobbying services":0,"Investment management fees":0,"Other services":64519,"Advertising":0,"Office expenses":30215,"Information technology":0,"Royalties":0,"Occupancy":16550,"Travel":27,"Conferences and meetings":3860,"Interest":0,"Payments to affiliates":0,"Depreciation and depletion":989,"Insurance":11109,"Travel entertainment public officials":0,"Travel entertainment payments":0,"Printing, publications, postage":0,"Itemized Expenses":{"value":187786,"RESEARCH EVENTS AND CON":97975,"AWARENESS CAMPAIGN":66493,"BANK FEES":12217,"PATIENT ASSISTANCE":11101},"All other expenses":30837},"Functional Expenses":{"value":null,"Program Service Expenses":392375,"Management And General Expenses":104598,"Fundraising Expenses":50616}},"Assets":{"value":1672832,"Non-interest bearing cash":0,"Savings and temp cash investments":997284,"Pledges and grants receivable":13600,"Accounts receivable":0,"Receivables from officers":0,"Receivables from disqual persons":0,"Other net note and loans":0,"Inventories for sale or use":0,"Prepaid expenses deferred charges":8916,"Land, building, equipment":4064,"Investments publicly traded":14911,"Investments other":610185,"Investments program related":0,"Intangible assets":0,"Other assets":23872},"Liabilities":{"value":202233,"Sum of Total Liabilities":0,"Accounts payable, accrued":17954,"Grants payable":160757,"Deferred, revenue":0,"Tax exempt bond liabilities":0,"Escrow account liability":0,"Loans from officers, directors":0,"Secured mortgages and notes payable":0,"Unsecured notes loans payable":0,"Other liabilities":23522},"Fund balance":{"value":1470599,"Net assets without donor restriction":1014238,"Net assets with donor restriction":456361,"Unrestricted net assets":0,"Temporarily restricted net assets":0,"Permanently restricted net assets":0},"Ratings":{"Program Expense Ratio":{"score":0.7165501863623995,"percentile":0.5475681325674882},"Fundraising Efficiency":{"score":12.286095305832148,"percentile":0.4616939180892418},"Operating Margin":{"score":0.09650706177402323,"percentile":0.6171559215510124},"Liabilities to Assets Ratio":{"score":0.12089259411584666,"percentile":0.30645691891457855},"Operating Reserve Ratio":{"score":3.054904316923824,"percentile":0.7162240295020935},"Officer Compensation Ratio":{"score":0.22888334133812038,"percentile":0.26910688741210825},"Program Expense Growth":{"score":0.00223221449476021,"percentile":0.3326068272435071},"Revenue Growth":{"score":-0.01323665028848433,"percentile":0.3186249930358237},"Asset Growth":{"score":0.046518255148025704,"percentile":0.5132665531577506},"Independent Voting Board Pct":{"score":0.9333333333333333,"percentile":0.25846041760016036},"Governance Policy Score":{"score":6.0,"percentile":1.0},"Overall Score":{"score":0.49273044403200245,"percentile":0.30406510861268027}},"source_xml":"202323199349309032_public.xml"},{"Organization":{"value":null,"Person":["JAMES BROATCH MSW","PAUL R CHARLESWORTH","MARY BETH LUDINGTON","GUY M TUFO","SUSAN PINKHAM","WILSON HULLEY","PETER A MOSKOVITZ MD","LINDA LANG","SHARON WEINER","ILONA THOMASON","ROBERT LANE","DAVID F BOND","R NORMAN HARDEN","FRANCIS LUDINGTON III","STEVEN SHISLER"],"Title":["EXECUTIVE DIRECTOR","DIRECTOR","CO-PRESIDENT","TREASURER","DIRECTOR","VICE PRESIDENT","CHAIRMAN OF BOARD","DIRECTOR","VICE PRESIDENT","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","PRESIDENT","SECRETARY"],"Hours":[40.0,1.0,6.0,2.0,1.0,1.0,3.0,6.0,6.0,1.0,1.0,1.0,3.0,5.0,1.0],"Total Compensation":[124758,0,0,0,0,0,0,0,0,0,0,0,0,0,0],"Direct compensation":[114583,0,0,0,0,0,0,0,0,0,0,0,0,0,0],"Other compensation":[10175,0,0,0,0,0,0,0,0,0,0,0,0,0,0]},"Basic":{"value":null,"mission":"We provide support, education and hope to everyone affected by crps/ rsd while we drive research to develop better treatment and a cure.","year":2013,"name":"REFLEX SYMPATHETIC DYSTROPHY SYNDROME ASSOCIATION OF AMERICA","phone":2038773790,"website":"HTTP://WWW.RSDS.ORG","type":"990","affiliation":null,"foreign_countries":null,"principal_officer":"JAMES BROATCH","year_formation":1984,"state_legal_domicile":"NJ","total_volunteers":500,"tax_period_begin":"2013-01-01T00:00:00","tax_period_end":"2013-12-31T00:00:00","address":"99 CHERRY STREET, MILFORD, CT, 6460, USA","city":"MILFORD","state":"CT","country":"USA","zip_code":6460},"Governance":{"value":null,"501c3 determination":true,"501c determination":false,"Number of voting members":15,"Number of independent voting members":14,"Number of employees total":6,"Total Gross UBI":0,"Net unrelated business taxable income":0,"Number of employees":6,"Prohibited tax shelter transactions":true,"Taxable party notification":true,"Funds to pay premiums":true,"Premiums Paid":true,"Family or business relationship":true,"Delegation of management duties":true,"Conflict of interest policy":true,"Whistle blower policy":true,"Compensation process for CEO":true,"Compensation process for other employees":true,"Changes to organizing documents":true,"Material diversion or misuse":true,"Members or stockholders":true,"Election of board members":true,"Decisions subject to approval":true,"Minutes of governing body":true,"Local chapters":true,"Form 990 provided to governing body":true,"Document retention policy":true,"Investment in joint venture":true,"Independent audit financial statements":true,"Consolidated audit financial statements":true,"Accountant compile or review":true,"Political activities":true,"Donor advised funds":true,"Conservation easements":true,"Collections of art":true,"School":true,"Hospital":true,"Foreign activities":true,"Foreign office":true,"Gaming":true,"Fundraising activities":true,"Professional fundraising":true,"Loan to officer or DQP":true,"Grant to related person":true,"Business relationship through family member":true,"Business relationship with organization":true},"Revenues":{"value":710592,"Contributions":{"value":642279,"Other contributions":524256,"Contributions from gifts and grants":0,"Fundraising revenue":73335,"Dues":22860,"Campaigns":21828,"Grant revenue":0,"Related organizations":0},"Program revenue":{"value":42111,"Total revenue":42111,"Total other revenue":0,"Unrelated business revenue":0},"Investment income":{"value":13850,"Investment income total":13850,"Net investment gain":0,"Income from invest bond proceeds":0},"Other revenues":{"value":12352,"Other total":1517,"Royalties revenue":14,"Net rental income":0,"Net income from fundraising events":10821,"Net income from gaming":0,"Net income":0,"Gross profit from sales of inventory":0,"Gain from sale of assets":0}},"Expenses":{"value":527175,"Grant expense":{"value":29177,"Grants to domestic orgs":5775,"Grants to domestic individuals":23402,"Grants and similar":0,"Foreign grants":0},"Total professional fundraising expense":{"value":0,"Fundraising professional":0,"Fees to independent contractors":0},"Benefits paid to members":{"value":0,"Benefits paid to members Total":0},"Salaries":{"value":244145,"Current officers":118695,"Disqualified persons":0,"Other salaries and wages":107068,"Pension plan contributions":0,"Other employee benefits":0,"Payroll taxes":18382},"Other expenses":{"value":253853,"Management services":0,"Legal":3129,"Accounting":8000,"Lobbying services":0,"Investment management fees":0,"Other services":0,"Advertising":0,"Office expenses":30461,"Information technology":0,"Royalties":0,"Occupancy":12810,"Travel":3206,"Conferences and meetings":70977,"Interest":0,"Payments to affiliates":0,"Depreciation and depletion":0,"Insurance":3264,"Travel entertainment public officials":0,"Travel entertainment payments":0,"Printing, publications, postage":0,"Itemized Expenses":{"value":115813,"AWARENESS CAMPAIGN":56363,"CONSULTING":45959,"BANK FEES":9997,"STATE REGISTRATION FEES":3494},"All other expenses":6193},"Functional Expenses":{"value":null,"Program Service Expenses":287341,"Management And General Expenses":123175,"Fundraising Expenses":116659}},"Assets":{"value":1220735,"Non-interest bearing cash":0,"Savings and temp cash investments":345911,"Pledges and grants receivable":0,"Accounts receivable":0,"Receivables from officers":0,"Receivables from disqual persons":0,"Other net note and loans":0,"Inventories for sale or use":0,"Prepaid expenses deferred charges":13408,"Land, building, equipment":0,"Investments publicly traded":757,"Investments other":859709,"Investments program related":0,"Intangible assets":0,"Other assets":950},"Liabilities":{"value":40950,"Sum of Total Liabilities":0,"Accounts payable, accrued":18450,"Grants payable":22500,"Deferred, revenue":0,"Tax exempt bond liabilities":0,"Escrow account liability":0,"Loans from officers, directors":0,"Secured mortgages and notes payable":0,"Unsecured notes loans payable":0,"Other liabilities":0},"Fund balance":{"value":1179785,"Net assets without donor restriction":0,"Net assets with donor restriction":0,"Unrestricted net assets":308723,"Temporarily restricted net assets":871062,"Permanently restricted net assets":0},"Ratings":{"Program Expense Ratio":{"score":0.5450580926637265,"percentile":0.48308568229237997},"Fundraising Efficiency":{"score":5.505610368681371,"percentile":0.2274996951796136},"Operating Margin":{"score":0.2581185828154553,"percentile":0.806990226994674},"Liabilities to Assets Ratio":{"score":0.03354536406345358,"percentile":0.4205698888785103},"Operating Reserve Ratio":{"score":2.3156162564613267,"percentile":0.6530274587486224},"Officer Compensation Ratio":{"score":0.23665386256935553,"percentile":0.25828222746535245},"Program Expense Growth":{"score":null,"percentile":null},"Revenue Growth":{"score":null,"percentile":null},"Asset Growth":{"score":null,"percentile":null},"Independent Voting Board Pct":{"score":0.9333333333333333,"percentile":0.25846041760016036},"Governance Policy Score":{"score":6.0,"percentile":1.0},"Overall Score":{"score":0.5185144573076531,"percentile":0.3694363011793297}},"source_xml":"201401639349300115_public.xml"},{"Organization":{"value":null,"Person":["JAMES BROATCH MSW","RACHEL CHARLESWORTH","MARY BETH LUDINGTON","GUY M TUFO","SUSAN PINKHAM","WILSON HULLEY","PETER A MOSKOVITZ MD","LINDA LANG","SHARON WEINER","ILONA THOMASSEN","ROBERT LANE","DAVID F BOND","NORMAN HARDEN MD","FRANCIS LUDINGTON III","STEVEN SHISLER","STEPHEN BRUEHL PHD","BILLY ALEXANDER MD"],"Title":["EXECUTIVE DIRECTOR","DIRECTOR","CO-PRESIDENT","DIRECTOR","DIRECTOR","VICE PRESIDENT","CHAIRMAN OF BOARD","DIRECTOR","VICE PRESIDENT","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","CO-PRESIDENT","SECRETARY","DIRECTOR","DIRECTOR"],"Hours":[40.0,1.0,6.0,1.0,1.0,1.0,3.0,6.0,6.0,1.0,1.0,1.0,3.0,5.0,1.0,1.0,1.0],"Total Compensation":[120638,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0],"Direct compensation":[120638,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0],"Other compensation":[0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0]},"Basic":{"value":null,"mission":"We provide support, education and hope to everyone affected by crps/ rsd while we drive research to develop better treatment and a cure.","year":2015,"name":"REFLEX SYMPATHETIC DYSTROPHY SYNDROME ASSOCIATION OF AMERICA","phone":2038773790,"website":"HTTP://WWW.RSDS.ORG","type":"990","affiliation":null,"foreign_countries":["Albania","Andorra","Austria","Belarus","Belgium","Bosnia and Herzegovina","Bulgaria","Croatia","Cyprus","Czechia","Denmark","Estonia","Faroe Islands","Finland","France","Germany","Gibraltar","Greece","Guernsey","Hungary","Iceland","Ireland","Isle of Man","Italy","Jersey","Kosovo","Latvia","Liechtenstein","Lithuania","Luxembourg","Malta","Moldova","Monaco","Montenegro","Netherlands","North Macedonia","Norway","Poland","Portugal","Romania","Russia","San Marino","Serbia","Slovakia","Slovenia","Spain","Svalbard and Jan Mayen","Sweden","Switzerland","Ukraine","United Kingdom","Vatican City","Åland Islands"],"principal_officer":"JAMES BROATCH","year_formation":1984,"state_legal_domicile":"NJ","total_volunteers":400,"tax_period_begin":"2015-01-01T00:00:00","tax_period_end":"2015-12-31T00:00:00","address":"99 CHERRY STREET, MILFORD, CT, 6460, USA","city":"MILFORD","state":"CT","country":"USA","zip_code":6460},"Governance":{"value":null,"501c3 determination":true,"501c determination":false,"Number of voting members":16,"Number of independent voting members":14,"Number of employees total":6,"Total Gross UBI":0,"Net unrelated business taxable income":0,"Number of employees":6,"Prohibited tax shelter transactions":true,"Taxable party notification":true,"Funds to pay premiums":true,"Premiums Paid":true,"Family or business relationship":true,"Delegation of management duties":true,"Conflict of interest policy":true,"Whistle blower policy":true,"Compensation process for CEO":true,"Compensation process for other employees":true,"Changes to organizing documents":true,"Material diversion or misuse":true,"Members or stockholders":true,"Election of board members":true,"Decisions subject to approval":true,"Minutes of governing body":true,"Local chapters":true,"Form 990 provided to governing body":true,"Document retention policy":true,"Investment in joint venture":true,"Independent audit financial statements":true,"Consolidated audit financial statements":true,"Accountant compile or review":true,"Political activities":true,"Donor advised funds":true,"Conservation easements":true,"Collections of art":true,"School":true,"Hospital":true,"Foreign activities":true,"Foreign office":true,"Gaming":true,"Fundraising activities":true,"Professional fundraising":true,"Loan to officer or DQP":true,"Grant to related person":true,"Business relationship through family member":true,"Business relationship with organization":true},"Revenues":{"value":670512,"Contributions":{"value":606710,"Other contributions":489440,"Contributions from gifts and grants":0,"Fundraising revenue":79270,"Dues":38000,"Campaigns":0,"Grant revenue":0,"Related organizations":0},"Program revenue":{"value":38724,"Total revenue":38724,"Total other revenue":0,"Unrelated business revenue":0},"Investment income":{"value":18424,"Investment income total":17612,"Net investment gain":812,"Income from invest bond proceeds":0},"Other revenues":{"value":6654,"Other total":0,"Royalties revenue":0,"Net rental income":0,"Net income from fundraising events":6654,"Net income from gaming":0,"Net income":0,"Gross profit from sales of inventory":0,"Gain from sale of assets":0}},"Expenses":{"value":761883,"Grant expense":{"value":152433,"Grants to domestic orgs":59812,"Grants to domestic individuals":0,"Grants and similar":0,"Foreign grants":92621},"Total professional fundraising expense":{"value":0,"Fundraising professional":0,"Fees to independent contractors":0},"Benefits paid to members":{"value":0,"Benefits paid to members Total":0},"Salaries":{"value":252325,"Current officers":123164,"Disqualified persons":0,"Other salaries and wages":109947,"Pension plan contributions":0,"Other employee benefits":0,"Payroll taxes":19214},"Other expenses":{"value":357125,"Management services":0,"Legal":1085,"Accounting":0,"Lobbying services":0,"Investment management fees":0,"Other services":26637,"Advertising":0,"Office expenses":22689,"Information technology":0,"Royalties":0,"Occupancy":12970,"Travel":1812,"Conferences and meetings":32323,"Interest":0,"Payments to affiliates":0,"Depreciation and depletion":0,"Insurance":8157,"Travel entertainment public officials":0,"Travel entertainment payments":0,"Printing, publications, postage":0,"Itemized Expenses":{"value":222524,"RESEARCH EVENTS AND CON":113739,"AWARENESS CAMPAIGN":70296,"PATIENT ASSISTANCE":24534,"POSTAGE":13955},"All other expenses":28928},"Functional Expenses":{"value":null,"Program Service Expenses":598650,"Management And General Expenses":84458,"Fundraising Expenses":78775}},"Assets":{"value":1222857,"Non-interest bearing cash":0,"Savings and temp cash investments":399312,"Pledges and grants receivable":14750,"Accounts receivable":0,"Receivables from officers":0,"Receivables from disqual persons":0,"Other net note and loans":0,"Inventories for sale or use":0,"Prepaid expenses deferred charges":21116,"Land, building, equipment":0,"Investments publicly traded":10723,"Investments other":776006,"Investments program related":0,"Intangible assets":0,"Other assets":950},"Liabilities":{"value":319910,"Sum of Total Liabilities":0,"Accounts payable, accrued":15747,"Grants payable":304163,"Deferred, revenue":0,"Tax exempt bond liabilities":0,"Escrow account liability":0,"Loans from officers, directors":0,"Secured mortgages and notes payable":0,"Unsecured notes loans payable":0,"Other liabilities":0},"Fund balance":{"value":902947,"Net assets without donor restriction":0,"Net assets with donor restriction":0,"Unrestricted net assets":145901,"Temporarily restricted net assets":757046,"Permanently restricted net assets":0},"Ratings":{"Program Expense Ratio":{"score":0.7857505680005985,"percentile":0.6083342060531849},"Fundraising Efficiency":{"score":7.701808949539829,"percentile":0.3197023416926124},"Operating Margin":{"score":-0.1362704918032787,"percentile":0.1911339625029475},"Liabilities to Assets Ratio":{"score":0.26160867542157423,"percentile":0.21890388589276555},"Operating Reserve Ratio":{"score":1.6050456566165672,"percentile":0.5571250413529284},"Officer Compensation Ratio":{"score":0.15834189764045137,"percentile":0.393548475321934},"Program Expense Growth":{"score":0.2874787375310972,"percentile":0.8592644736379832},"Revenue Growth":{"score":-0.027966745065348773,"percentile":0.27273562083076813},"Asset Growth":{"score":0.0008752765315620648,"percentile":0.32369329939467206},"Independent Voting Board Pct":{"score":0.875,"percentile":0.22520058322737488},"Governance Policy Score":{"score":6.0,"percentile":1.0},"Overall Score":{"score":0.46089675301229055,"percentile":0.23325993228918665}},"source_xml":"201632789349300313_public.xml"},{"Organization":{"value":null,"Person":["JAMES BROATCH MSW","RACHEL CHARLESWORTH","MARY BETH LUDINGTON","STEPHEN BRILLIANT","PETER A MOSKOVITZ MD","BILLY ALEXANDER MD","SHARON WEINER","ILONA THOMASSEN","ROBERT LANE","DAVID BOND","NORMAN HARDEN MD","FRANCIS LUNDINGTON III","STEVEN SHISLER","STEPHEN BRUEHL PHD"],"Title":["EXECUTIVE DIRECTOR","DIRECTOR","CO-PRESIDENT","TREASURER","CHAIRMAN OF BOARD","DIRECTOR","VICE PRESIDENT","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","CO-PRESIDENT","SECRETARY","DIRECTOR"],"Hours":[40.0,1.0,6.0,1.0,3.0,1.0,6.0,1.0,1.0,1.0,3.0,5.0,1.0,1.0],"Total Compensation":[127318,0,0,0,0,0,0,0,0,0,0,0,0,0],"Direct compensation":[127318,0,0,0,0,0,0,0,0,0,0,0,0,0],"Other compensation":[0,0,0,0,0,0,0,0,0,0,0,0,0,0]},"Basic":{"value":null,"mission":"We provide support, education and hope to everyone affected by crps/ rsd while we drive research to develop better treatment and a cure.","year":2020,"name":"REFLEX SYMPATHETIC DYSTROPHY SYNDROME ASSOCIATION OF AMERICA","phone":2038773790,"website":"WWW.RSDS.ORG","type":"990","affiliation":null,"foreign_countries":null,"principal_officer":"JAMES BROATCH","year_formation":1984,"state_legal_domicile":"NJ","total_volunteers":150,"tax_period_begin":"2020-01-01T00:00:00","tax_period_end":"2020-12-31T00:00:00","address":"99 CHERRY STREET, MILFORD, CT, 6460, USA","city":"MILFORD","state":"CT","country":"USA","zip_code":6460},"Governance":{"value":null,"501c3 determination":true,"501c determination":false,"Number of voting members":14,"Number of independent voting members":13,"Number of employees total":6,"Total Gross UBI":0,"Net unrelated business taxable income":0,"Number of employees":6,"Prohibited tax shelter transactions":true,"Taxable party notification":true,"Funds to pay premiums":false,"Premiums Paid":false,"Family or business relationship":true,"Delegation of management duties":true,"Conflict of interest policy":true,"Whistle blower policy":true,"Compensation process for CEO":true,"Compensation process for other employees":true,"Changes to organizing documents":true,"Material diversion or misuse":true,"Members or stockholders":true,"Election of board members":true,"Decisions subject to approval":true,"Minutes of governing body":true,"Local chapters":true,"Form 990 provided to governing body":true,"Document retention policy":true,"Investment in joint venture":true,"Independent audit financial statements":true,"Consolidated audit financial statements":true,"Accountant compile or review":true,"Political activities":true,"Donor advised funds":true,"Conservation easements":true,"Collections of art":true,"School":true,"Hospital":true,"Foreign activities":true,"Foreign office":true,"Gaming":true,"Fundraising activities":true,"Professional fundraising":true,"Loan to officer or DQP":true,"Grant to related person":true,"Business relationship through family member":true,"Business relationship with organization":true},"Revenues":{"value":562434,"Contributions":{"value":542581,"Other contributions":460774,"Contributions from gifts and grants":0,"Fundraising revenue":81807,"Dues":0,"Campaigns":0,"Grant revenue":0,"Related organizations":0},"Program revenue":{"value":1530,"Total revenue":1530,"Total other revenue":0,"Unrelated business revenue":0},"Investment income":{"value":11991,"Investment income total":11991,"Net investment gain":0,"Income from invest bond proceeds":0},"Other revenues":{"value":6332,"Other total":8991,"Royalties revenue":0,"Net rental income":0,"Net income from fundraising events":-2659,"Net income from gaming":0,"Net income":0,"Gross profit from sales of inventory":0,"Gain from sale of assets":0}},"Expenses":{"value":752953,"Grant expense":{"value":260880,"Grants to domestic orgs":260880,"Grants to domestic individuals":0,"Grants and similar":0,"Foreign grants":0},"Total professional fundraising expense":{"value":0,"Fundraising professional":0,"Fees to independent contractors":0},"Benefits paid to members":{"value":0,"Benefits paid to members Total":0},"Salaries":{"value":215068,"Current officers":127318,"Disqualified persons":0,"Other salaries and wages":71460,"Pension plan contributions":0,"Other employee benefits":0,"Payroll taxes":16290},"Other expenses":{"value":277005,"Management services":0,"Legal":0,"Accounting":0,"Lobbying services":0,"Investment management fees":0,"Other services":65288,"Advertising":0,"Office expenses":33609,"Information technology":0,"Royalties":0,"Occupancy":14750,"Travel":32,"Conferences and meetings":2255,"Interest":0,"Payments to affiliates":0,"Depreciation and depletion":924,"Insurance":8755,"Travel entertainment public officials":0,"Travel entertainment payments":0,"Printing, publications, postage":0,"Itemized Expenses":{"value":126360,"RESEARCH EVENTS AND CON":67377,"AWARENESS CAMPAIGN":39134,"POSTAGE":11088,"BANK FEES":8761},"All other expenses":25032},"Functional Expenses":{"value":null,"Program Service Expenses":589564,"Management And General Expenses":114414,"Fundraising Expenses":48975}},"Assets":{"value":1623582,"Non-interest bearing cash":0,"Savings and temp cash investments":916149,"Pledges and grants receivable":32885,"Accounts receivable":0,"Receivables from officers":0,"Receivables from disqual persons":0,"Other net note and loans":0,"Inventories for sale or use":0,"Prepaid expenses deferred charges":6376,"Land, building, equipment":3697,"Investments publicly traded":15084,"Investments other":648441,"Investments program related":0,"Intangible assets":0,"Other assets":950},"Liabilities":{"value":415469,"Sum of Total Liabilities":0,"Accounts payable, accrued":13981,"Grants payable":346988,"Deferred, revenue":0,"Tax exempt bond liabilities":0,"Escrow account liability":0,"Loans from officers, directors":0,"Secured mortgages and notes payable":0,"Unsecured notes loans payable":54500,"Other liabilities":0},"Fund balance":{"value":1208113,"Net assets without donor restriction":673536,"Net assets with donor restriction":534577,"Unrestricted net assets":0,"Temporarily restricted net assets":0,"Permanently restricted net assets":0},"Ratings":{"Program Expense Ratio":{"score":0.7830023919155644,"percentile":0.6053555460675244},"Fundraising Efficiency":{"score":11.078734047983666,"percentile":0.4303862242306766},"Operating Margin":{"score":-0.33874018996006644,"percentile":0.102801711707654},"Liabilities to Assets Ratio":{"score":0.25589653001819435,"percentile":0.2215811419572524},"Operating Reserve Ratio":{"score":2.156285983321668,"percentile":0.6354194475268978},"Officer Compensation Ratio":{"score":0.16909156348404217,"percentile":0.3709253072090653},"Program Expense Growth":{"score":0.03902009464480799,"percentile":0.48758955647852914},"Revenue Growth":{"score":0.0022734712967860337,"percentile":0.37994222043416703},"Asset Growth":{"score":0.05119786540468523,"percentile":0.5313445255404874},"Independent Voting Board Pct":{"score":0.9285714285714286,"percentile":0.2554649107023994},"Governance Policy Score":{"score":6.0,"percentile":1.0},"Overall Score":{"score":0.4447981638395362,"percentile":0.20104619986109065}},"source_xml":"202131839349300208_public.xml"},{"Organization":{"value":null,"Person":["JAMES BROATCH MSW","SUSAN PINKHAM","MARY BETH LUDINGTON","STEPHEN BRILLIANT","PETER A MOSKOVITZ MD","KELLY CONSIDINE","SHARON WEINER","ILONA THOMASSEN","ROBERT LANE","DAVID BOND","NORMAN HARDEN MD","FRANCIS LUNDINGTON III","STEVEN SHISLER","STEPHEN BRUEHL PHD","ERIC MOYAL"],"Title":["EXECUTIVE DIRECTOR","DIRECTOR","CO-PRESIDENT","TREASURER","CHAIRMAN OF BOARD","DIRECTOR","VICE PRESIDENT","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","CO-PRESIDENT","SECRETARY","DIRECTOR","DIRECTOR"],"Hours":[40.0,1.0,6.0,1.0,3.0,1.0,6.0,1.0,1.0,1.0,3.0,5.0,1.0,1.0,1.0],"Total Compensation":[125344,0,0,0,0,0,0,0,0,0,0,0,0,0,0],"Direct compensation":[125344,0,0,0,0,0,0,0,0,0,0,0,0,0,0],"Other compensation":[0,0,0,0,0,0,0,0,0,0,0,0,0,0,0]},"Basic":{"value":null,"mission":"We provide support, education and hope to everyone affected by crps/ rsd while we drive research to develop better treatment and a cure.","year":2023,"name":"REFLEX SYMPATHETIC DYSTROPHY SYNDROME ASSOCIATION OF AMERICA","phone":2038773790,"website":"WWW.RSDS.ORG","type":"990","affiliation":null,"foreign_countries":null,"principal_officer":"SHARON WEINER","year_formation":1984,"state_legal_domicile":"NJ","total_volunteers":20,"tax_period_begin":"2023-01-01T00:00:00","tax_period_end":"2023-12-31T00:00:00","address":"99 CHERRY STREET, MILFORD, CT, 6460, USA","city":"MILFORD","state":"CT","country":"USA","zip_code":6460},"Governance":{"value":null,"501c3 determination":true,"501c determination":false,"Number of voting members":15,"Number of independent voting members":14,"Number of employees total":4,"Total Gross UBI":0,"Net unrelated business taxable income":0,"Number of employees":4,"Prohibited tax shelter transactions":true,"Taxable party notification":true,"Funds to pay premiums":false,"Premiums Paid":false,"Family or business relationship":true,"Delegation of management duties":true,"Conflict of interest policy":true,"Whistle blower policy":true,"Compensation process for CEO":true,"Compensation process for other employees":true,"Changes to organizing documents":true,"Material diversion or misuse":true,"Members or stockholders":true,"Election of board members":true,"Decisions subject to approval":true,"Minutes of governing body":true,"Local chapters":true,"Form 990 provided to governing body":true,"Document retention policy":true,"Investment in joint venture":true,"Independent audit financial statements":true,"Consolidated audit financial statements":true,"Accountant compile or review":true,"Political activities":true,"Donor advised funds":true,"Conservation easements":true,"Collections of art":true,"School":true,"Hospital":true,"Foreign activities":true,"Foreign office":true,"Gaming":true,"Fundraising activities":true,"Professional fundraising":true,"Loan to officer or DQP":true,"Grant to related person":true,"Business relationship through family member":true,"Business relationship with organization":true},"Revenues":{"value":824669,"Contributions":{"value":813931,"Other contributions":745689,"Contributions from gifts and grants":0,"Fundraising revenue":68242,"Dues":0,"Campaigns":0,"Grant revenue":0,"Related organizations":0},"Program revenue":{"value":0,"Total revenue":0,"Total other revenue":0,"Unrelated business revenue":0},"Investment income":{"value":23767,"Investment income total":19742,"Net investment gain":4025,"Income from invest bond proceeds":0},"Other revenues":{"value":-13029,"Other total":0,"Royalties revenue":0,"Net rental income":0,"Net income from fundraising events":-13029,"Net income from gaming":0,"Net income":0,"Gross profit from sales of inventory":0,"Gain from sale of assets":0}},"Expenses":{"value":576749,"Grant expense":{"value":0,"Grants to domestic orgs":0,"Grants to domestic individuals":0,"Grants and similar":0,"Foreign grants":0},"Total professional fundraising expense":{"value":0,"Fundraising professional":0,"Fees to independent contractors":0},"Benefits paid to members":{"value":0,"Benefits paid to members Total":0},"Salaries":{"value":204182,"Current officers":125344,"Disqualified persons":0,"Other salaries and wages":63539,"Pension plan contributions":0,"Other employee benefits":0,"Payroll taxes":15299},"Other expenses":{"value":372567,"Management services":0,"Legal":0,"Accounting":0,"Lobbying services":0,"Investment management fees":0,"Other services":68352,"Advertising":0,"Office expenses":40364,"Information technology":0,"Royalties":0,"Occupancy":16800,"Travel":414,"Conferences and meetings":100,"Interest":0,"Payments to affiliates":0,"Depreciation and depletion":995,"Insurance":9811,"Travel entertainment public officials":0,"Travel entertainment payments":0,"Printing, publications, postage":0,"Itemized Expenses":{"value":215799,"RESEARCH EVENTS AND CON":98512,"AWARENESS CAMPAIGN":96329,"BANK FEES":11931,"STATE REGISTRATION FEES":9027},"All other expenses":19932},"Functional Expenses":{"value":null,"Program Service Expenses":386366,"Management And General Expenses":111088,"Fundraising Expenses":79295}},"Assets":{"value":1931743,"Non-interest bearing cash":0,"Savings and temp cash investments":1224458,"Pledges and grants receivable":13600,"Accounts receivable":0,"Receivables from officers":0,"Receivables from disqual persons":0,"Other net note and loans":0,"Inventories for sale or use":0,"Prepaid expenses deferred charges":9805,"Land, building, equipment":3069,"Investments publicly traded":32752,"Investments other":640362,"Investments program related":0,"Intangible assets":0,"Other assets":7697},"Liabilities":{"value":186110,"Sum of Total Liabilities":0,"Accounts payable, accrued":18356,"Grants payable":160757,"Deferred, revenue":0,"Tax exempt bond liabilities":0,"Escrow account liability":0,"Loans from officers, directors":0,"Secured mortgages and notes payable":0,"Unsecured notes loans payable":0,"Other liabilities":6997},"Fund balance":{"value":1745633,"Net assets without donor restriction":1324165,"Net assets with donor restriction":421468,"Unrestricted net assets":0,"Temporarily restricted net assets":0,"Permanently restricted net assets":0},"Ratings":{"Program Expense Ratio":{"score":0.6699031987918488,"percentile":0.5211136442364238},"Fundraising Efficiency":{"score":10.264594236711016,"percentile":0.40721219435155825},"Operating Margin":{"score":0.30062970719161264,"percentile":0.8357116901268659},"Liabilities to Assets Ratio":{"score":0.09634304356221299,"percentile":0.3291625903548317},"Operating Reserve Ratio":{"score":3.349365148444124,"percentile":0.7351118848063531},"Officer Compensation Ratio":{"score":0.21732850858865815,"percentile":0.2862234664210394},"Program Expense Growth":{"score":-0.014313910668020272,"percentile":0.2753806552008096},"Revenue Growth":{"score":-0.0032016738175586683,"percentile":0.35592778086207966},"Asset Growth":{"score":0.05057139503850587,"percentile":0.5289575300400048},"Independent Voting Board Pct":{"score":0.9333333333333333,"percentile":0.25846041760016036},"Governance Policy Score":{"score":6.0,"percentile":1.0},"Overall Score":{"score":0.5144336748154615,"percentile":0.3587319211348411}},"source_xml":"202433209349316748_public.xml"},{"Organization":{"value":null,"Person":["JAMES BROATCH MSW","RACHEL CHARLESWORTH","MARY BETH LUDINGTON","STEPHEN BRILLIANT","SUSAN PINKHAM","PETER A MOSKOVITZ MD","BILLY ALEXANDER MD","SHARON WEINER","ILONA THOMASSEN","ROBERT LANE","DAVID F BOND","NORMAN HARDEN MD","FRANCIS LUDINGTON III","STEVEN SHISLER","STEPHEN BRUEHL PHD"],"Title":["EXECUTIVE DIRECTOR","DIRECTOR","CO-PRESIDENT","TREASURER","DIRECTOR","CHAIRMAN OF BOARD","DIRECTOR","VICE PRESIDENT","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","CO-PRESIDENT","SECRETARY","DIRECTOR"],"Hours":[40.0,1.0,6.0,1.0,1.0,3.0,1.0,6.0,1.0,1.0,1.0,3.0,5.0,1.0,1.0],"Total Compensation":[125335,0,0,0,0,0,0,0,0,0,0,0,0,0,0],"Direct compensation":[125335,0,0,0,0,0,0,0,0,0,0,0,0,0,0],"Other compensation":[0,0,0,0,0,0,0,0,0,0,0,0,0,0,0]},"Basic":{"value":null,"mission":"We provide support, education and hope to everyone affected by crps/ rsd while we drive research to develop better treatment and a cure.","year":2018,"name":"REFLEX SYMPATHETIC DYSTROPHY SYNDROME ASSOCIATION OF AMERICA","phone":2038773790,"website":"HTTP://WWW.RSDS.ORG","type":"990","affiliation":null,"foreign_countries":["Albania","Andorra","Austria","Belarus","Belgium","Bosnia and Herzegovina","Bulgaria","Croatia","Cyprus","Czechia","Denmark","Estonia","Faroe Islands","Finland","France","Germany","Gibraltar","Greece","Guernsey","Hungary","Iceland","Ireland","Isle of Man","Italy","Jersey","Kosovo","Latvia","Liechtenstein","Lithuania","Luxembourg","Malta","Moldova","Monaco","Montenegro","Netherlands","North Macedonia","Norway","Poland","Portugal","Romania","Russia","San Marino","Serbia","Slovakia","Slovenia","Spain","Svalbard and Jan Mayen","Sweden","Switzerland","Ukraine","United Kingdom","Vatican City","Åland Islands"],"principal_officer":"JAMES BROATCH","year_formation":1984,"state_legal_domicile":"NJ","total_volunteers":0,"tax_period_begin":"2018-01-01T00:00:00","tax_period_end":"2018-12-31T00:00:00","address":"99 CHERRY STREET, MILFORD, CT, 6460, USA","city":"MILFORD","state":"CT","country":"USA","zip_code":6460},"Governance":{"value":null,"501c3 determination":true,"501c determination":false,"Number of voting members":15,"Number of independent voting members":14,"Number of employees total":5,"Total Gross UBI":0,"Net unrelated business taxable income":0,"Number of employees":5,"Prohibited tax shelter transactions":true,"Taxable party notification":true,"Funds to pay premiums":false,"Premiums Paid":false,"Family or business relationship":true,"Delegation of management duties":true,"Conflict of interest policy":true,"Whistle blower policy":true,"Compensation process for CEO":true,"Compensation process for other employees":true,"Changes to organizing documents":true,"Material diversion or misuse":true,"Members or stockholders":true,"Election of board members":true,"Decisions subject to approval":true,"Minutes of governing body":true,"Local chapters":true,"Form 990 provided to governing body":true,"Document retention policy":true,"Investment in joint venture":true,"Independent audit financial statements":true,"Consolidated audit financial statements":true,"Accountant compile or review":true,"Political activities":true,"Donor advised funds":true,"Conservation easements":true,"Collections of art":true,"School":true,"Hospital":true,"Foreign activities":true,"Foreign office":true,"Gaming":true,"Fundraising activities":true,"Professional fundraising":true,"Loan to officer or DQP":true,"Grant to related person":true,"Business relationship through family member":true,"Business relationship with organization":true},"Revenues":{"value":794514,"Contributions":{"value":713684,"Other contributions":655703,"Contributions from gifts and grants":0,"Fundraising revenue":57981,"Dues":0,"Campaigns":0,"Grant revenue":0,"Related organizations":0},"Program revenue":{"value":21140,"Total revenue":21140,"Total other revenue":0,"Unrelated business revenue":0},"Investment income":{"value":35415,"Investment income total":30832,"Net investment gain":4583,"Income from invest bond proceeds":0},"Other revenues":{"value":24275,"Other total":0,"Royalties revenue":0,"Net rental income":0,"Net income from fundraising events":24275,"Net income from gaming":0,"Net income":0,"Gross profit from sales of inventory":0,"Gain from sale of assets":0}},"Expenses":{"value":703003,"Grant expense":{"value":149583,"Grants to domestic orgs":0,"Grants to domestic individuals":0,"Grants and similar":0,"Foreign grants":149583},"Total professional fundraising expense":{"value":0,"Fundraising professional":0,"Fees to independent contractors":0},"Benefits paid to members":{"value":0,"Benefits paid to members Total":0},"Salaries":{"value":233861,"Current officers":125335,"Disqualified persons":0,"Other salaries and wages":86970,"Pension plan contributions":0,"Other employee benefits":0,"Payroll taxes":21556},"Other expenses":{"value":319559,"Management services":0,"Legal":0,"Accounting":0,"Lobbying services":0,"Investment management fees":0,"Other services":56888,"Advertising":0,"Office expenses":29111,"Information technology":0,"Royalties":0,"Occupancy":13520,"Travel":403,"Conferences and meetings":36958,"Interest":0,"Payments to affiliates":0,"Depreciation and depletion":0,"Insurance":11348,"Travel entertainment public officials":0,"Travel entertainment payments":0,"Printing, publications, postage":0,"Itemized Expenses":{"value":144093,"AWARENESS CAMPAIGN":75473,"RESEARCH EVENTS AND CON":35355,"PATIENT ASSISTANCE":20030,"POSTAGE":13235},"All other expenses":27238},"Functional Expenses":{"value":null,"Program Service Expenses":528555,"Management And General Expenses":112990,"Fundraising Expenses":61458}},"Assets":{"value":1539767,"Non-interest bearing cash":0,"Savings and temp cash investments":676284,"Pledges and grants receivable":55992,"Accounts receivable":0,"Receivables from officers":0,"Receivables from disqual persons":0,"Other net note and loans":0,"Inventories for sale or use":0,"Prepaid expenses deferred charges":6376,"Land, building, equipment":0,"Investments publicly traded":52702,"Investments other":747463,"Investments program related":0,"Intangible assets":0,"Other assets":950},"Liabilities":{"value":166875,"Sum of Total Liabilities":0,"Accounts payable, accrued":23188,"Grants payable":143687,"Deferred, revenue":0,"Tax exempt bond liabilities":0,"Escrow account liability":0,"Loans from officers, directors":0,"Secured mortgages and notes payable":0,"Unsecured notes loans payable":0,"Other liabilities":0},"Fund balance":{"value":1372892,"Net assets without donor restriction":0,"Net assets with donor restriction":0,"Unrestricted net assets":376051,"Temporarily restricted net assets":996841,"Permanently restricted net assets":0},"Ratings":{"Program Expense Ratio":{"score":0.751853121537177,"percentile":0.5750455156968736},"Fundraising Efficiency":{"score":11.612548407042208,"percentile":0.4447401442208455},"Operating Margin":{"score":0.1151785871614597,"percentile":0.6482714683393799},"Liabilities to Assets Ratio":{"score":0.10837678687749511,"percentile":0.31757111627853624},"Operating Reserve Ratio":{"score":2.1902708807786024,"percentile":0.639308694229627},"Officer Compensation Ratio":{"score":0.17828515667785202,"percentile":0.3528085069597914},"Program Expense Growth":{"score":0.02819687140951504,"percentile":0.44098548330292775},"Revenue Growth":{"score":0.0370902310377808,"percentile":0.5487586128312744},"Asset Growth":{"score":0.04857470744634795,"percentile":0.5212941362168673},"Independent Voting Board Pct":{"score":0.9333333333333333,"percentile":0.25846041760016036},"Governance Policy Score":{"score":6.0,"percentile":1.0},"Overall Score":{"score":0.533116702870257,"percentile":0.409071065156409}},"source_xml":"201923109349302537_public.xml"},{"Organization":{"value":null,"Person":["JAMES BROATCH MSW","RACHEL CHARLESWORTH","MARY BETH LUDINGTON","STEPHEN BRILLIANT","SUSAN PINKHAM","WILSON HULLEY","PETER A MOSKOVITZ MD","LINDA LANG","SHARON WEINER","ILONA THOMASSEN","ROBERT LANE","DAVID F BOND","NORMAN HARDEN MD","FRANCIS LUDINGTON III","STEVEN SHISLER","STEPHEN BRUEHL PHD","BILLY ALEXANDER MD"],"Title":["EXECUTIVE DIRECTOR","DIRECTOR","CO-PRESIDENT","TREASURER","DIRECTOR","VICE PRESIDENT","CHAIRMAN OF BOARD","DIRECTOR","VICE PRESIDENT","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","CO-PRESIDENT","SECRETARY","DIRECTOR","DIRECTOR"],"Hours":[40.0,1.0,6.0,1.0,1.0,1.0,3.0,6.0,6.0,1.0,1.0,1.0,3.0,5.0,1.0,1.0,1.0],"Total Compensation":[126415,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0],"Direct compensation":[126415,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0],"Other compensation":[0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0]},"Basic":{"value":null,"mission":"We provide support, education and hope to everyone affected by crps/ rsd while we drive research to develop better treatment and a cure.","year":2016,"name":"REFLEX SYMPATHETIC DYSTROPHY SYNDROME ASSOCIATION OF AMERICA","phone":2038773790,"website":"HTTP://WWW.RSDS.ORG","type":"990","affiliation":null,"foreign_countries":null,"principal_officer":"JAMES BROATCH","year_formation":1984,"state_legal_domicile":"NJ","total_volunteers":0,"tax_period_begin":"2016-01-01T00:00:00","tax_period_end":"2016-12-31T00:00:00","address":"99 CHERRY STREET, MILFORD, CT, 6460, USA","city":"MILFORD","state":"CT","country":"USA","zip_code":6460},"Governance":{"value":null,"501c3 determination":true,"501c determination":false,"Number of voting members":16,"Number of independent voting members":14,"Number of employees total":6,"Total Gross UBI":0,"Net unrelated business taxable income":0,"Number of employees":6,"Prohibited tax shelter transactions":true,"Taxable party notification":true,"Funds to pay premiums":true,"Premiums Paid":true,"Family or business relationship":true,"Delegation of management duties":true,"Conflict of interest policy":true,"Whistle blower policy":true,"Compensation process for CEO":true,"Compensation process for other employees":true,"Changes to organizing documents":true,"Material diversion or misuse":true,"Members or stockholders":true,"Election of board members":true,"Decisions subject to approval":true,"Minutes of governing body":true,"Local chapters":true,"Form 990 provided to governing body":true,"Document retention policy":true,"Investment in joint venture":true,"Independent audit financial statements":true,"Consolidated audit financial statements":true,"Accountant compile or review":true,"Political activities":true,"Donor advised funds":true,"Conservation easements":true,"Collections of art":true,"School":true,"Hospital":true,"Foreign activities":true,"Foreign office":true,"Gaming":true,"Fundraising activities":true,"Professional fundraising":true,"Loan to officer or DQP":true,"Grant to related person":true,"Business relationship through family member":true,"Business relationship with organization":true},"Revenues":{"value":738471,"Contributions":{"value":673035,"Other contributions":553525,"Contributions from gifts and grants":0,"Fundraising revenue":70659,"Dues":48851,"Campaigns":0,"Grant revenue":0,"Related organizations":0},"Program revenue":{"value":48657,"Total revenue":48657,"Total other revenue":0,"Unrelated business revenue":0},"Investment income":{"value":16234,"Investment income total":16897,"Net investment gain":-663,"Income from invest bond proceeds":0},"Other revenues":{"value":545,"Other total":0,"Royalties revenue":0,"Net rental income":0,"Net income from fundraising events":545,"Net income from gaming":0,"Net income":0,"Gross profit from sales of inventory":0,"Gain from sale of assets":0}},"Expenses":{"value":619800,"Grant expense":{"value":17000,"Grants to domestic orgs":17000,"Grants to domestic individuals":0,"Grants and similar":0,"Foreign grants":0},"Total professional fundraising expense":{"value":0,"Fundraising professional":0,"Fees to independent contractors":0},"Benefits paid to members":{"value":0,"Benefits paid to members Total":0},"Salaries":{"value":230483,"Current officers":126415,"Disqualified persons":0,"Other salaries and wages":86998,"Pension plan contributions":0,"Other employee benefits":0,"Payroll taxes":17070},"Other expenses":{"value":372317,"Management services":0,"Legal":0,"Accounting":0,"Lobbying services":0,"Investment management fees":0,"Other services":36875,"Advertising":0,"Office expenses":21471,"Information technology":0,"Royalties":0,"Occupancy":13080,"Travel":1124,"Conferences and meetings":104734,"Interest":0,"Payments to affiliates":0,"Depreciation and depletion":0,"Insurance":7863,"Travel entertainment public officials":0,"Travel entertainment payments":0,"Printing, publications, postage":0,"Itemized Expenses":{"value":160099,"RESEARCH EVENTS AND CON":88961,"AWARENESS CAMPAIGN":50582,"PATIENT ASSISTANCE":12555,"POSTAGE":8001},"All other expenses":27071},"Functional Expenses":{"value":null,"Program Service Expenses":510440,"Management And General Expenses":74117,"Fundraising Expenses":35243}},"Assets":{"value":1087064,"Non-interest bearing cash":0,"Savings and temp cash investments":267598,"Pledges and grants receivable":9100,"Accounts receivable":0,"Receivables from officers":0,"Receivables from disqual persons":0,"Other net note and loans":0,"Inventories for sale or use":0,"Prepaid expenses deferred charges":15746,"Land, building, equipment":0,"Investments publicly traded":25123,"Investments other":768547,"Investments program related":0,"Intangible assets":0,"Other assets":950},"Liabilities":{"value":54480,"Sum of Total Liabilities":0,"Accounts payable, accrued":18079,"Grants payable":36401,"Deferred, revenue":0,"Tax exempt bond liabilities":0,"Escrow account liability":0,"Loans from officers, directors":0,"Secured mortgages and notes payable":0,"Unsecured notes loans payable":0,"Other liabilities":0},"Fund balance":{"value":1032584,"Net assets without donor restriction":0,"Net assets with donor restriction":0,"Unrestricted net assets":209333,"Temporarily restricted net assets":823251,"Permanently restricted net assets":0},"Ratings":{"Program Expense Ratio":{"score":0.8235559858018716,"percentile":0.65586185784602},"Fundraising Efficiency":{"score":19.096983798201062,"percentile":0.5859377475165539},"Operating Margin":{"score":0.16069825355362635,"percentile":0.7123072448798872},"Liabilities to Assets Ratio":{"score":0.05011664446619518,"percentile":0.3882863185045712},"Operating Reserve Ratio":{"score":1.7538948047757341,"percentile":0.5811777435255511},"Officer Compensation Ratio":{"score":0.20396095514682155,"percentile":0.30745081797878143},"Program Expense Growth":{"score":0.0992320992176715,"percentile":0.6735418392957675},"Revenue Growth":{"score":-0.0020002998441572112,"percentile":0.3608370001996164},"Asset Growth":{"score":-0.03142744699043892,"percentile":0.20886070448608807},"Independent Voting Board Pct":{"score":0.875,"percentile":0.22520058322737488},"Governance Policy Score":{"score":6.0,"percentile":1.0},"Overall Score":{"score":0.5656792899413553,"percentile":0.5039283990846302}},"source_xml":"201713189349304646_public.xml"},{"Organization":{"value":null,"Person":["JAMES BROATCH MSW","RACHEL CHARLESWORTH","MARY BETH LUDINGTON","STEPHEN BRILLIANT","SUSAN PINKHAM","PETER A MOSKOVITZ MD","BILLY ALEXANDER MD","SHARON WEINER","ILONA THOMASSEN","ROBERT LANE","DAVID F BOND","NORMAN HARDEN MD","FRANCIS LUDINGTON III","STEVEN SHISLER","STEPHEN BRUEHL PHD"],"Title":["EXECUTIVE DIRECTOR","DIRECTOR","CO-PRESIDENT","TREASURER","DIRECTOR","CHAIRMAN OF BOARD","DIRECTOR","VICE PRESIDENT","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","CO-PRESIDENT","SECRETARY","DIRECTOR"],"Hours":[40.0,1.0,6.0,1.0,1.0,3.0,1.0,6.0,1.0,1.0,1.0,3.0,5.0,1.0,1.0],"Total Compensation":[125334,0,0,0,0,0,0,0,0,0,0,0,0,0,0],"Direct compensation":[125334,0,0,0,0,0,0,0,0,0,0,0,0,0,0],"Other compensation":[0,0,0,0,0,0,0,0,0,0,0,0,0,0,0]},"Basic":{"value":null,"mission":"We provide support, education and hope to everyone affected by crps/ rsd while we drive research to develop better treatment and a cure.","year":2019,"name":"REFLEX SYMPATHETIC DYSTROPHY SYNDROME ASSOCIATION OF AMERICA","phone":2038773790,"website":"HTTP://WWW.RSDS.ORG","type":"990","affiliation":null,"foreign_countries":null,"principal_officer":"JAMES BROATCH","year_formation":1984,"state_legal_domicile":"NJ","total_volunteers":300,"tax_period_begin":"2019-01-01T00:00:00","tax_period_end":"2019-12-31T00:00:00","address":"99 CHERRY STREET, MILFORD, CT, 6460, USA","city":"MILFORD","state":"CT","country":"USA","zip_code":6460},"Governance":{"value":null,"501c3 determination":true,"501c determination":false,"Number of voting members":15,"Number of independent voting members":14,"Number of employees total":5,"Total Gross UBI":0,"Net unrelated business taxable income":0,"Number of employees":5,"Prohibited tax shelter transactions":true,"Taxable party notification":true,"Funds to pay premiums":false,"Premiums Paid":false,"Family or business relationship":true,"Delegation of management duties":true,"Conflict of interest policy":true,"Whistle blower policy":true,"Compensation process for CEO":true,"Compensation process for other employees":true,"Changes to organizing documents":true,"Material diversion or misuse":true,"Members or stockholders":true,"Election of board members":true,"Decisions subject to approval":true,"Minutes of governing body":true,"Local chapters":true,"Form 990 provided to governing body":true,"Document retention policy":true,"Investment in joint venture":true,"Independent audit financial statements":true,"Consolidated audit financial statements":true,"Accountant compile or review":true,"Political activities":true,"Donor advised funds":true,"Conservation easements":true,"Collections of art":true,"School":true,"Hospital":true,"Foreign activities":true,"Foreign office":true,"Gaming":true,"Fundraising activities":true,"Professional fundraising":true,"Loan to officer or DQP":true,"Grant to related person":true,"Business relationship through family member":true,"Business relationship with organization":true},"Revenues":{"value":890427,"Contributions":{"value":808555,"Other contributions":700967,"Contributions from gifts and grants":0,"Fundraising revenue":107588,"Dues":0,"Campaigns":0,"Grant revenue":0,"Related organizations":0},"Program revenue":{"value":54891,"Total revenue":54891,"Total other revenue":0,"Unrelated business revenue":0},"Investment income":{"value":50356,"Investment income total":16489,"Net investment gain":33867,"Income from invest bond proceeds":0},"Other revenues":{"value":-23375,"Other total":0,"Royalties revenue":0,"Net rental income":0,"Net income from fundraising events":-23375,"Net income from gaming":0,"Net income":0,"Gross profit from sales of inventory":0,"Gain from sale of assets":0}},"Expenses":{"value":904651,"Grant expense":{"value":281437,"Grants to domestic orgs":281437,"Grants to domestic individuals":0,"Grants and similar":0,"Foreign grants":0},"Total professional fundraising expense":{"value":0,"Fundraising professional":0,"Fees to independent contractors":0},"Benefits paid to members":{"value":0,"Benefits paid to members Total":0},"Salaries":{"value":226711,"Current officers":125333,"Disqualified persons":0,"Other salaries and wages":79839,"Pension plan contributions":0,"Other employee benefits":0,"Payroll taxes":21539},"Other expenses":{"value":396503,"Management services":0,"Legal":0,"Accounting":0,"Lobbying services":0,"Investment management fees":0,"Other services":54034,"Advertising":0,"Office expenses":32647,"Information technology":0,"Royalties":0,"Occupancy":14150,"Travel":415,"Conferences and meetings":42095,"Interest":0,"Payments to affiliates":0,"Depreciation and depletion":0,"Insurance":11654,"Travel entertainment public officials":0,"Travel entertainment payments":0,"Printing, publications, postage":0,"Itemized Expenses":{"value":210004,"RESEARCH EVENTS AND CON":87139,"AWARENESS CAMPAIGN":86911,"POSTAGE":18390,"PATIENT ASSISTANCE":17564},"All other expenses":31504},"Functional Expenses":{"value":null,"Program Service Expenses":721100,"Management And General Expenses":124573,"Fundraising Expenses":58978}},"Assets":{"value":1536890,"Non-interest bearing cash":0,"Savings and temp cash investments":850420,"Pledges and grants receivable":42768,"Accounts receivable":0,"Receivables from officers":0,"Receivables from disqual persons":0,"Other net note and loans":0,"Inventories for sale or use":0,"Prepaid expenses deferred charges":8877,"Land, building, equipment":4621,"Investments publicly traded":9536,"Investments other":619718,"Investments program related":0,"Intangible assets":0,"Other assets":950},"Liabilities":{"value":156800,"Sum of Total Liabilities":0,"Accounts payable, accrued":15812,"Grants payable":140988,"Deferred, revenue":0,"Tax exempt bond liabilities":0,"Escrow account liability":0,"Loans from officers, directors":0,"Secured mortgages and notes payable":0,"Unsecured notes loans payable":0,"Other liabilities":0},"Fund balance":{"value":1380090,"Net assets without donor restriction":569006,"Net assets with donor restriction":811084,"Unrestricted net assets":0,"Temporarily restricted net assets":0,"Permanently restricted net assets":0},"Ratings":{"Program Expense Ratio":{"score":0.7971029712010488,"percentile":0.6212654974905948},"Fundraising Efficiency":{"score":13.709434026247076,"percentile":0.4943668232531392},"Operating Margin":{"score":-0.015974358369636142,"percentile":0.3469672664545612},"Liabilities to Assets Ratio":{"score":0.1020242177384198,"percentile":0.32354957040999094},"Operating Reserve Ratio":{"score":1.698876141185938,"percentile":0.572651916562977},"Officer Compensation Ratio":{"score":0.1385440352135796,"percentile":0.43982091741972223},"Program Expense Growth":{"score":0.05250269048301334,"percentile":0.5406610619870934},"Revenue Growth":{"score":0.03901349509353432,"percentile":0.5577771861144264},"Asset Growth":{"score":0.050160681740231874,"percentile":0.5273611532042345},"Independent Voting Board Pct":{"score":0.9333333333333333,"percentile":0.25846041760016036},"Governance Policy Score":{"score":6.0,"percentile":1.0},"Overall Score":{"score":0.5167478348658677,"percentile":0.3647982564535557}},"source_xml":"202002879349300030_public.xml"}],"Latest":{"Organization":{"value":null,"Person":["JAMES BROATCH MSW","SHARON WEINER","FRANCIS H LUDINGTON III","MARY BETH LUDINGTON","PETER A MOSKOVITZ MD","NORMAN HARDEN MD","STEPHEN G BRILLIANT MS CPA","BRYAN POPE","JOSHUA PRAGER MD","DAVID F BOND","ROBERT LANE","STEPHEN BRUEHL PHD","SUSAN PINKHAM","ILONA THOMASSEN","KELLY CONSIDINE","ERIC MOYAL","LYNN COATNEY"],"Title":["EXEUCTIVE DIRECTOR UNTIL 3/20/24","EXECUTIVE DIRECTOR STARTING 3/20/24","CO-PRESIDENT","CO-PRESIDENT","CHAIRMAN OF THE BOARD","DIRECTOR","TREASURER","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR","DIRECTOR"],"Hours":[40.0,40.0,5.0,6.0,3.0,3.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0,1.0],"Total Compensation":[16032,72938,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0],"Direct compensation":[16032,72938,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0],"Other compensation":[0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0]},"Basic":{"value":null,"mission":"We provide support, education and hope to everyone affected by crps/ rsd while we drive research to develop better treatment and a cure.","year":2024,"name":"REFLEX SYMPATHETIC DYSTROPHY SYNDROME ASSOCIATION OF AMERICA","phone":2038773790,"website":"WWW.RSDS.ORG","type":"990","affiliation":null,"foreign_countries":null,"principal_officer":"SHARON WEINER","year_formation":1984,"state_legal_domicile":"NJ","total_volunteers":20,"tax_period_begin":"2024-01-01T00:00:00","tax_period_end":"2024-12-31T00:00:00","address":"99 CHERRY STREET, MILFORD, CT, 6460, USA","city":"MILFORD","state":"CT","country":"USA","zip_code":6460},"Governance":{"value":null,"501c3 determination":true,"501c determination":false,"Number of voting members":15,"Number of independent voting members":14,"Number of employees total":5,"Total Gross UBI":0,"Net unrelated business taxable income":0,"Number of employees":5,"Prohibited tax shelter transactions":true,"Taxable party notification":true,"Funds to pay premiums":false,"Premiums Paid":false,"Family or business relationship":true,"Delegation of management duties":true,"Conflict of interest policy":true,"Whistle blower policy":true,"Compensation process for CEO":true,"Compensation process for other employees":true,"Changes to organizing documents":true,"Material diversion or misuse":true,"Members or stockholders":true,"Election of board members":true,"Decisions subject to approval":true,"Minutes of governing body":true,"Local chapters":true,"Form 990 provided to governing body":true,"Document retention policy":true,"Investment in joint venture":true,"Independent audit financial statements":true,"Consolidated audit financial statements":true,"Accountant compile or review":true,"Political activities":true,"Donor advised funds":true,"Conservation easements":true,"Collections of art":true,"School":true,"Hospital":true,"Foreign activities":true,"Foreign office":true,"Gaming":true,"Fundraising activities":true,"Professional fundraising":true,"Loan to officer or DQP":true,"Grant to related person":true,"Business relationship through family member":true,"Business relationship with organization":true},"Revenues":{"value":524103,"Contributions":{"value":495916,"Other contributions":433586,"Contributions from gifts and grants":0,"Fundraising revenue":62330,"Dues":0,"Campaigns":0,"Grant revenue":0,"Related organizations":0},"Program revenue":{"value":0,"Total revenue":0,"Total other revenue":0,"Unrelated business revenue":0},"Investment income":{"value":35145,"Investment income total":26470,"Net investment gain":8675,"Income from invest bond proceeds":0},"Other revenues":{"value":-6958,"Other total":0,"Royalties revenue":0,"Net rental income":0,"Net income from fundraising events":-6958,"Net income from gaming":0,"Net income":0,"Gross profit from sales of inventory":0,"Gain from sale of assets":0}},"Expenses":{"value":518879,"Grant expense":{"value":0,"Grants to domestic orgs":0,"Grants to domestic individuals":0,"Grants and similar":0,"Foreign grants":0},"Total professional fundraising expense":{"value":0,"Fundraising professional":0,"Fees to independent contractors":0},"Benefits paid to members":{"value":0,"Benefits paid to members Total":0},"Salaries":{"value":167983,"Current officers":88970,"Disqualified persons":0,"Other salaries and wages":67333,"Pension plan contributions":0,"Other employee benefits":0,"Payroll taxes":11680},"Other expenses":{"value":350896,"Management services":0,"Legal":0,"Accounting":0,"Lobbying services":0,"Investment management fees":0,"Other services":61295,"Advertising":0,"Office expenses":37530,"Information technology":0,"Royalties":0,"Occupancy":16558,"Travel":5659,"Conferences and meetings":0,"Interest":0,"Payments to affiliates":0,"Depreciation and depletion":1341,"Insurance":9065,"Travel entertainment public officials":0,"Travel entertainment payments":0,"Printing, publications, postage":0,"Itemized Expenses":{"value":203056,"RESEARCH EVENTS AND CON":122969,"AWARENESS CAMPAIGN":57574,"BANK FEES":12823,"STATE REGISTRATION FEES":9690},"All other expenses":16392},"Functional Expenses":{"value":null,"Program Service Expenses":373963,"Management And General Expenses":97768,"Fundraising Expenses":47148}},"Assets":{"value":1959338,"Non-interest bearing cash":0,"Savings and temp cash investments":1216859,"Pledges and grants receivable":0,"Accounts receivable":0,"Receivables from officers":0,"Receivables from disqual persons":0,"Other net note and loans":0,"Inventories for sale or use":0,"Prepaid expenses deferred charges":11033,"Land, building, equipment":6572,"Investments publicly traded":24100,"Investments other":681282,"Investments program related":0,"Intangible assets":0,"Other assets":19492},"Liabilities":{"value":131392,"Sum of Total Liabilities":0,"Accounts payable, accrued":23153,"Grants payable":89697,"Deferred, revenue":0,"Tax exempt bond liabilities":0,"Escrow account liability":0,"Loans from officers, directors":0,"Secured mortgages and notes payable":0,"Unsecured notes loans payable":0,"Other liabilities":18542},"Fund balance":{"value":1827946,"Net assets without donor restriction":1208024,"Net assets with donor restriction":619922,"Unrestricted net assets":0,"Temporarily restricted net assets":0,"Permanently restricted net assets":0},"Ratings":{"Program Expense Ratio":{"score":0.7207133069559569,"percentile":0.5504213222914133},"Fundraising Efficiency":{"score":10.518282853991685,"percentile":0.4147208565308848},"Operating Margin":{"score":0.009967506387103298,"percentile":0.42495219271527646},"Liabilities to Assets Ratio":{"score":0.06705938434307915,"percentile":0.36297836236322845},"Operating Reserve Ratio":{"score":3.776098088378986,"percentile":0.7582264792526018},"Officer Compensation Ratio":{"score":0.1714657945301313,"percentile":0.3661923267207053},"Program Expense Growth":{"score":-0.023497724495804437,"percentile":0.2510619099726564},"Revenue Growth":{"score":-0.015467098063908941,"percentile":0.31105104888193824},"Asset Growth":{"score":0.05046694297483062,"percentile":0.5285482026462175},"Independent Voting Board Pct":{"score":0.9333333333333333,"percentile":0.25846041760016036},"Governance Policy Score":{"score":6.0,"percentile":1.0},"Overall Score":{"score":0.4617000178222028,"percentile":0.23493940364168106}},"source_xml":"202533039349302403_public.xml"},"sector":"Health","donation_categories":[],"zakat_policy":null},"error":null}